Hi all, newbie here
I was diagnosed with b12 deficiency in January after months of feeling rotten. Initially I was pleased it was 'nothing serious' and could be sorted with injections. Levels were below 150 at diagnosis, no idea of the exact figure as test didn't show them. Also had slightly low ferratin levels. I had my loading doses early Feb and expected to feel normal again. Had my 4 Week blood test and told by GP that at 921, my levels were fine and I'd have 3 monthly injections.
Unfortunately, by early April I was feeling awful so asked if I could have injections more frequently. After a lengthy discussion with my GP, where she intimated I wanted them for a 'psychological boost' she agreed to give me 3 more loading doses and a retest after 4 weeks as she stated she'd have expected the post loading dose reading to be nearer 2000. She also said she'd test for pernicious anaemia. Got my blood test post 3 extra doses reading back which was low 800s so I was told I could have another injection, there was some confusion about whether it was a one off or what, so I booked to see GP. Saw her today, different GP, and if I wasnt so exhausted and ill I'd be fuming. She basically suggested it was all in my mind due to depression/low mood, suggested b12 tablets (!), PA test hadn't been done, dismissed my neurological symptoms saying i could walk so they didn't count and she said she couldn't prescribe more frequent injections as it had to be the GP partner. She also said my symptoms are all unrelated as they are all to do with different systems in the body so can't be due to b12 and that my test results were normal. Disputed the fact that test can show active and inactive b12 and that reading quite low after injections. She then cut me off by saying 'I'm ending this appointment here'.
I cried in the waiting room, and I am not a crier.
The fabulous health care assistant who'd earlier done my b12 injection said it was very unusual that my levels didn't seem to be 'sticking' and that it was unique among her patients. She also said that, having known me for years, knew I wasn't the type of person to be needlessly asking for meds, appointments or exaggerating symptoms.
Intrinsic Factor test has now been done and sent off (done 30 mins after having b12 - will this be ok? ) and i have another GP appt in a couple of weeks. My question is, how do i now deal with this? It's clear to me that, for whatever reason, I'm not keeping the b12 in my body and there's no way I'm going to last 3 months between injections. It's been less than 6 weeks since my last and i feel like I'm dying. I have a job, family, children and I'm struggling to do anything more than cope at work and collapse at home, and I only work a 4 day week. I'm worried that the damage will be permanent and I'm sick and tired of having to argue my case all the time - I just don't have it in me. I'm also worried that maybe it's something else as well?
Advice, help, tips or b12 injections all gratefully received!
Thanks for reading all the waffle btw x