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Pernicious Anaemia Society

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All posts for January 2018

Help needed to interpret son's results

Hi Please can someone interpret my14 year old son's results. He has been taking iron supplement for the last few months (Spatone) and has liver occasionally...

Hi Please can someone interpret my14 year old son's results. He has been takin...

mb008

•6 years ago

11 Replies

B vits 6 and 12 and increased risk of lung cancer

My Son sent me this link. It's the first I've heard of it and am not personally troubled but wondered if anyone else has heard of this.......

My Son sent me this link. It's the first I've heard of it and am not personally ...

Flatfred

•6 years ago

4 Replies

Feeling hopeless

Feeling so helpless and depressed. My injection isn't due until the 23rd January but now, in spite of using Viepatches B12+10 i am quite breathless and no...

Feeling so helpless and depressed. My injection isn't due until the 23rd January...

Margaret-S

•6 years ago

15 Replies

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Needles and self injection

Have decided to self inject advice on size of needle to draw up and for injection Have to wait until end February for neurologists appt after bloods, brain and...

Have decided to self inject advice on size of needle to draw up and for injectio...

wobblw

•6 years ago

3 Replies

Feeling very weak and fragile

Hi , Just wondering if a very low folate and vit d level can cause extreme weakness that ends in body shaking if I do the smallest of tasks ? I had a ferritin...

Hi , Just wondering if a very low folate and vit d level can cause extreme weakn...

wiiliamsa

•6 years ago

6 Replies

B12 injections

Hi. I have been self administering B12 injections for 34 years following being diagnosed with macrocytic cells. I have moved house and my new GP has...

Hi. I have been self administering B12 injections for 34 years following being d...

Chaka

•6 years ago

6 Replies

Benefits of adding more probiotic foods into diet

https://draxe.com/probiotics-benefits-foods-supplements/?rs_oid_rd=340844312717079&utm_campaign=20180109_newsletter_curated_week2_currenttemplate_eot&utm_medium

https://draxe.com/probiotics-benefits-foods-supplements/?rs_oid_rd=3408443127170...

Polaris

•6 years ago

7 Replies

Feeling worse during loading shots, is this normal?

I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for...

I'm new here and this is my first question/post and this may be answered elsewhe...

Kat7

•6 years ago

5 Replies

Can B12 deficiency symptoms relapse after ongoing treatment?

Hi I new to the site - but having a bad experience and not feeling helped by my GP at all. Ive been treated with 3 monthly B12 injections for about 7 years,...

Hi I new to the site - but having a bad experience and not feeling helped by my ...

Smileyhelen

•6 years ago

5 Replies

New here - waiting 5 months for B12 injection - depressed/hypochondriac?

I am new here and I was diagnosed B12 deficient in February 2017. I also have Hashimotos and at the moment it is undertreated. I was prescribed B12 injections...

I am new here and I was diagnosed B12 deficient in February 2017. I also have Ha...

Leanne_j88

•6 years ago

12 Replies

Cured of PA also cured of osteoporosis!

My dear mother now 90 has now had her 3 monthly injection of b12 stopped (she had her last injection in September) and was 90 in December. The reason being she...

My dear mother now 90 has now had her 3 monthly injection of b12 stopped (she ha...

jointpain

•6 years ago

4 Replies

The power of two words: 'medical' and 'negligence'

I thought I would post an update on my situation as it may be of help to others and, well, I need to tell someone as I’m quietly fuming. I’ve just had a call...

I thought I would post an update on my situation as it may be of help to others ...

Hidden

•6 years ago

25 Replies

Pottasium Levels

I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 - had every symptom under the sun: Brain fog, dizziness, fatigue, sore lips,...

I have posted on here before, as I was diagnosed with a B12 deficiency in 2011 -...

Hayley31

•6 years ago

14 Replies

Query

Anybody feels minor pain in chest before injections or after injections?

Jotk9

•6 years ago

4 Replies

Whats going on?

Hi new to forum. I suffer with Hypothyroidism (secondary) Have been feeling really strange for weeks, tired, dizzy, brain fog, weird sensations in feet,...

Hi new to forum. I suffer with Hypothyroidism (secondary) Have been feeling rea...

Bexg

•6 years ago

2 Replies

Recently Bloods - advice would be great please.

I have my bloods done recently and I would be grateful for some advice please. B12 serum 297 ng/L (150.0 - 1000) Serum Ferriting 32ug/L (12.0-250) Serum...

I have my bloods done recently and I would be grateful for some advice please. ...

SarahG76

•6 years ago

2 Replies

New to Forum

I am new to the Pernicious Anaemia Forum but have had the condition for 20 years since it was diagnosed along with an Under-active Thyroid. In recent years I...

I am new to the Pernicious Anaemia Forum but have had the condition for 20 years...

JojoDee

•6 years ago

4 Replies

PA and Anemia

Hi all. I have a question. I've had PA for a while now. My levels are staying steady at 600 with weekly injections and daily b12 sublingals. My question is,...

Hi all. I have a question. I've had PA for a while now. My levels are staying st...

Wowo23

•6 years ago

2 Replies

Spotty irritated forehead after B12 Injections

Hi all, Having never had bad skin in my life I was wracking my brains as to why, all of a sudden my forehead has become spotty (More lumpy under the skin), red...

Hi all, Having never had bad skin in my life I was wracking my brains as to why,...

fufu1981

•6 years ago

20 Replies

Floradix

Hey guys I’m still under investigation re: low b12 and other symptoms. Dr doesn’t think it is b12... Anyway I’ve been ill for a few weeks before Christmas...

Hey guys I’m still under investigation re: low b12 and other symptoms. Dr doesn...

BluebellPettle

•6 years ago

10 Replies

B12 results fine, but symptoms persist. Could I still be deficient?

Hi all, Apologies in advance for the length of this post! I am a new poster on the forums looking for some advice. I am 40-year-old male, who suffers from...

Hi all, Apologies in advance for the length of this post! I am a new poster on...

ImperialTotti

•6 years ago

16 Replies

Facing Despair, please give some advice

Hi, I'm new to pernicious anemia, having been diagnosed only in September 2017 but I feel Ive had it for quiet some time. The doctors found my b12 levels at 81...

Hi, I'm new to pernicious anemia, having been diagnosed only in September 2017 b...

donaleire

•6 years ago

9 Replies

PAS Support groups

Hi, https://pernicious-anaemia-society.org/community/member-support-groups/ When I last looked at list of PAS support groups, I noticed there was no longer a...

Hi, https://pernicious-anaemia-society.org/community/member-support-groups/ Wh...

Sleepybunny

•6 years ago

2 Replies

Is this because I'm due my injection

Hi if anyone can help ? I'm due my b12 injection this week . This is my 3 rd 3 month injection and I feel awful . Is it because I'm due my injection . I was...

Hi if anyone can help ? I'm due my b12 injection this week . This is my 3 rd 3 m...

Andypandy30

•6 years ago

19 Replies

Just ordered my B12 to self administer advice for how often i should inject.

So I have just orederd everthing i need for my B12 self administer journey. My last B12 bloods were 420 this was taken 3 months after the loading jabs. Even...

So I have just orederd everthing i need for my B12 self administer journey. My l...

MissD1503

•6 years ago

6 Replies

Combined iron and B12 treatment

Hi everyone, I have finally received a diagnosis of PA after 5 years of recurrent iron deficiency resulting in infusions and low B12 culminating in active...

Hi everyone, I have finally received a diagnosis of PA after 5 years of recurr...

Curious123

•6 years ago

10 Replies

Help

Hi I am new to this site, my symptoms have been tiredness and involuntary muscle twitching (drives me mad)......I have had a blood test and have been advised...

Hi I am new to this site, my symptoms have been tiredness and involuntary muscle...

Natalie99999

•6 years ago

6 Replies

Third Time Lucky with Gastroenterologists !

Went to a gastroenterology appointment yesterday. Tests promised ! This is very positive news as the last 2 did nothing and decided I had IBS. Can anyone tell...

Went to a gastroenterology appointment yesterday. Tests promised ! This is very...

Cherylclaire

Forum Support•6 years ago

1 Reply

B12 self inject advice needed

Hi everyone hope you are all well & had a lovely Xmas. After fighting & failing still to get more b12 jabs being made to wait for the consultant to right her...

Hi everyone hope you are all well & had a lovely Xmas. After fighting & failing ...

MissD1503

•6 years ago

30 Replies

Help on conditions

Hi just a quick question, I have been b12 deficient for the last 6 years with my regular injections every 11 to 12 weeks and my bloods been done every 6 months...

Hi just a quick question, I have been b12 deficient for the last 6 years with my...

41Mike

•6 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

Help needed to interpret son's results

B vits 6 and 12 and increased risk of lung cancer

Feeling hopeless

Needles and self injection

Feeling very weak and fragile

B12 injections

Benefits of adding more probiotic foods into diet

Feeling worse during loading shots, is this normal?

Can B12 deficiency symptoms relapse after ongoing treatment?

New here - waiting 5 months for B12 injection - depressed/hypochondriac?

Cured of PA also cured of osteoporosis!

The power of two words: 'medical' and 'negligence'

Pottasium Levels

Query

Whats going on?

Recently Bloods - advice would be great please.

New to Forum

PA and Anemia

Spotty irritated forehead after B12 Injections

Floradix

B12 results fine, but symptoms persist. Could I still be deficient?

Facing Despair, please give some advice

PAS Support groups

Is this because I'm due my injection

Just ordered my B12 to self administer advice for how often i should inject.

Combined iron and B12 treatment

Help

Third Time Lucky with Gastroenterologists !

B12 self inject advice needed

Help on conditions

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive