PAS Support groups

[Sleepybunny]

Hi,

pernicious-anaemia-society....

When I last looked at list of PAS support groups, I noticed there was no longer a North Wales group, a group in USA or a group in Australia. Have all these groups folded?

[Gambit62 Administrator]

Sleepybunny - although this group is sponsored by the PAS it isn't formally run by them - suggest that you contact PAS, though possible that PAS-admin may be able to answer.

[1915]

I was involved in setting up the anglesey group in summer 2016. Several people showed interest to begin with and we had a few meeting and i contacted everyone who emailed me . However apart one one person who i have become friends with and keep regular contact with little interest has continued. I have to admit I was not proactive in pursuing the group last year as there were some serious health issues in my family. I also hear from the B12 support group via Facebook but am not actively involved.One person who I met thro pas is very involved in B12 and appears to have done some training with local health staff. I have really valued the knowledge Ive gained thro Pas but -selfishly - my condition is being managed by monthly injections at my surgery . The neuropathy I have to accept is not going to disappear but Ive had to learn to cope with that. I am aware that a lot of pa patients seem reluctant to accept help with anxiety and depression episodes with medication, how ever with the injections and lowest dose of citalopram started last September I am coping better than I have for considerable time.

I think the society does a brilliant job and I am sorry I am unable to continue to be a contact person.