I'm new here and this is my first question/post and this may be answered elsewhere (though I've been looking) so my apologies if it is a repeat and also for the length.
I been having all major symptoms of B12 deficiency, including neurological and vision. My PCP sent me to Opthamologist, who referred me to Neurologist as everything in my eyes looked fine. My Neurologist said my symptoms checked off boxes of a lot of potential big scaries (MS, strokes, brain tumor) so MRI, EEG, VEP etc were done all with "normal" results. He referred me to Neuro-Opthamologist and she said eyes look good but referred to even more specialized Neuro-Opthamologist but I said "enough".
I had been asking my Neurologist if it could be a deficiency of some kind the whole time but it wasn't until we ruled everything else out that he finally heard me. He ordered bloodwork (thyroid, cortisol and B12). My thyroid came back "normal," cortisol "meh," and B12 super duper low for USA standards, anyway.
He prescribed 6 /1ml shots, one every other day for a week, then 1x a week for two weeks, then 1x per month "for the rest of my life" unless tests show not necessary anymore...
I took the first 1ml (methylcobalamin - special order as I didn't like the cyano as it had aluminum and parabens as carrier) and within 6 hours I had crazy sinus congestion - so thick I couldn't get it out, which has never been a problem before. What stuff I was able to discharge was white with red specks and super thick and rubbery. I then got a really bad sore throat with the crazy congestion, so painful Advil didn't help.
I went to my PCP thinking it could be strep since it was going around. They got results back that it was neither viral nor bacterial. Within 24ish hours of first B12 dose my sinuses and sore throat cleared up.
I took 2nd dose five days later to test my theory that I might have had a healing reaction to the shot. Bam! Crazy sinus stuffiness and super sore throat and neck (glands). Within 24ish hours, back to normal.
I decided to cut the dosage in half and that is what I've been doing since. The sinus stuffiness is now manageable but I'm feeling the most tired I've felt in 5 years or more. Exhausted. But my sleep is not improved and hot flashes with panic feeling have increased (emergency surgical menopause four years ago).
I'm taking potassium, folate, thiamin, selenium, magnesium, trace minerals, D3, DIM, etc. I practice IF with ketogenic diet with no problem (have had gut issues all my life so have been on paleo/keto diet for years and years though unexplainably only gain, not lose weight).
Is feeling worse during loading shots "normal" and if not, what am I doing wrong? Will I feel better when loading shots are finished?
I know I've got a lot of issues going on and I'm guessing that I've been B12 deficient for years (symptoms (like tremors) started when I was in college 20+ years ago). I guess I was hoping the B12 deficiency was the answer to all my ills and that I would magically feel better instantly, not worse.
Thanks in advance for your "Wisdom of the Crowd" input for this 41 year old American who really appreciates this community! 😊