Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for January 2018

How long before b12 deficiency nerve symptoms become permanent?

hi Im 23 years old, new here ... i for long time suffered from many conditions ( probably since i was born ) ... that i just recently realised that it matchs...

hi Im 23 years old, new here ... i for long time suffered from many conditions (...

anas_pipo

•7 years ago

5 Replies

Malabsorption problem, digestive issues

Hi everyone, I haven't posted here for quite some time as my PA is under control with Regular injections. My biggest problem Is malabsorption syndrome which...

Hi everyone, I haven't posted here for quite some time as my PA is under control...

expatkerry

•7 years ago

6 Replies

Epilepsy?

Hi all. I have been told by the GP that I do not have Pernicious Anaemia, but despite 3 monthly B12 injections my b12 is still low by the end of the 3 months....

Hi all. I have been told by the GP that I do not have Pernicious Anaemia, but d...

Dee215

•7 years ago

6 Replies

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PA is for life

I have PA and have been SI for over a year now, religiously sticking to a once/week schedule. Slept 10+ hours last night but it was a struggle just to get off...

I have PA and have been SI for over a year now, religiously sticking to a once/w...

etreas

•7 years ago

2 Replies

I sometimes forget to take my daily Folic Acid ?

Hi I self inject B12 every 2 weeks for the past year. Whilst my Folate is within good range I sometimes forget to take Folic Acid 400ug. So I might take it...

Hi I self inject B12 every 2 weeks for the past year. Whilst my Folate is withi...

Ryaan

•7 years ago

4 Replies

Skin problems with b12 injections

Looking for some advice on my skin if anyone can help.. following my loading infections 2 & a half years ago my skin broke out badly. It’s been on & off...

Looking for some advice on my skin if anyone can help.. following my loading in...

Lynsey24782

•7 years ago

15 Replies

Funny turns

I keep getting funny turns as I call them, my legs turn to jelly, I go immense hot and sweating, I shake and I have numb hands and feet I haven’t had a B12...

I keep getting funny turns as I call them, my legs turn to jelly, I go immense h...

jomorgan1605

•7 years ago

5 Replies

Autoject 2 Syringes

Hi all, Does anyone have a link of the syringe to buy with this? The medisupplies website isn't that clear on which one to buy. Thanks Petra

Hi all, Does anyone have a link of the syringe to buy with this? The medisupplie...

Petrak45

•7 years ago

2 Replies

B-Complex Plus or Methyl B12?

Can someone help with this decision? i have seen posts recommending Methylcobalamin (Methyl B12) and B-Complex Plus for B12 deficiency. Can someone confirm...

Can someone help with this decision? i have seen posts recommending Methylcoba...

Jamie6747

•7 years ago

1 Reply

Help!

Hi This is the 1st time I have posted here and would love some advice. I have B12 deficiency and have an injection every 3 months. This I feel is not frequent...

Hi This is the 1st time I have posted here and would love some advice. I have B...

Jojo197

•7 years ago

23 Replies

Changes to the HU Top-bar

Dear all, it would appear that the top bar has undergone a significant revamp This post on TUK gives a guide as to where things have moved to...

Dear all, it would appear that the top bar has undergone a significant revamp Th...

Gambit62

Administrator•7 years ago

5 Replies

Can you have too much B12 and Folic Acid

I have just been diagnosed with very low B12 and have been booked in for 3 Injections next week. I do take oral vitamins which say they contain B12 and Folic...

I have just been diagnosed with very low B12 and have been booked in for 3 Injec...

FedupVON

•7 years ago

11 Replies

New GP has stopped my prescriptions for Hydroxocobalamin

Hi, I just wondered if anyone else has had a problem with prescriptions for Hydroxocobalamin being stopped? I self inject once per week, I changed GP's two...

Hi, I just wondered if anyone else has had a problem with prescriptions for Hydr...

HKAnne

•7 years ago

15 Replies

Relationship between Thyroid levels and B12

I have been on levothyroxine for many years, at one time up to 125 mg, but after losing a significant amount of weight this was reduced to 75 mg. approx. 2...

I have been on levothyroxine for many years, at one time up to 125 mg, but after...

scadman

•7 years ago

8 Replies

Low Ferritin, low normal iron, significant hair loss, no one seems to be concerned

My Ferritin level is 7, iron 12.6, I have significant hair loss (which is why my iron was tested by the dermatologist).. my pcp is not concerned... after a...

My Ferritin level is 7, iron 12.6, I have significant hair loss (which is why my...

Nicki35

•7 years ago

19 Replies

Spam adverts on HU.

I've just accessed HU and got a pop-up ad for that bunch of slime balls Pharmacy2U. Their secondary aim is to put small pharmacies out of business. Many of...

I've just accessed HU and got a pop-up ad for that bunch of slime balls Pharmacy...

fbirder

•7 years ago

7 Replies

PA and Liver issue

I have PA (jabs every 2 months, and occasional si. (once a month maybe) Just had bloods done as think I have Hashimoto's TSH level is 5.24 (.035-5.mu/l)...

I have PA (jabs every 2 months, and occasional si. (once a month maybe) Just ha...

SarahFerguson

•7 years ago

6 Replies

Cobalt Supply & Demand

Is anyone else worried about this trend (see graph mid-way down the column)? https://www.bloomberg.com/graphics/2018-cobalt-batteries/

Is anyone else worried about this trend (see graph mid-way down the column)? htt...

alamagpa

•7 years ago

1 Reply

Really concerned for my husband bloods reveal really low vitamin B12 and D3

Hi everyone I'm very worried about my husband who has been suffering with muscle joint pain numbness in his hands and swollen joints. my question is regarding...

Hi everyone I'm very worried about my husband who has been suffering with muscle...

GillyGangGong

•7 years ago

29 Replies

Results back, I am a medium methylator (C677 tested), any advice appreciated on trying methylated folate please (have homocysteine 11 too)

Hi, thanks for your previous help regarding folate/folic acid and the MTHFR gene tests. My results says I am a medium methylator so am presuming I have one...

Hi, thanks for your previous help regarding folate/folic acid and the MTHFR gene...

Jo5454

•7 years ago

4 Replies

B12 and mind out of kilter

went to my GP today in response to nerve conduction results which he said were OK and any problems were to do with vasculitis?! Said my pins and needles and...

went to my GP today in response to nerve conduction results which he said were O...

wobblw

•7 years ago

5 Replies

Latest blood test

Hi everyone, uploading pic of folate and potassium test results. Feeling very awful even after 4 shots. Very worse symptoms came up. Right now burning back...

Hi everyone, uploading pic of folate and potassium test results. Feeling very aw...

Jotk9

•7 years ago

7 Replies

Relieved from symptoms of b12

I got relieved from symptoms but having severe headaches some times.can any one please help me on this. Does lack of b12 cause migraines? I had 464 b12 when I...

I got relieved from symptoms but having severe headaches some times.can any one ...

RaJender9666

•7 years ago

1 Reply

Serum Folate level 3.4 ug/l

My Serum Folate level is 3.4 ug/l Can anyone advise if this is low? My GP signed off as satisfactory Thanks in advance Megan

My Serum Folate level is 3.4 ug/l Can anyone advise if this is low? My GP si...

mc88

•7 years ago

3 Replies

Some new problems and some new questions : can anyone help?

A couple of issues I'd like to ask about, which may or may not relate to each other: This morning's problems: 1) Waking up suddenly in early hours with heart...

A couple of issues I'd like to ask about, which may or may not relate to each ot...

Cherylclaire

Forum Support•7 years ago

8 Replies

Alcohol and B12

Hi, I have autoimmune autrophic gastritis. I had my first B12 injection before Christmas. I have no symptoms other than numb hands on occasion and I have a...

Hi, I have autoimmune autrophic gastritis. I had my first B12 injection before C...

CarrieD2018

•7 years ago

8 Replies

Is intense whole arm pain normal after b12 loading shot?

Hey everyone! I’m new to pas having only just been diagnosed the week before xmas. I got my first loading dose on Monday and boy did it hurt going in! But...

Hey everyone! I’m new to pas having only just been diagnosed the week before xma...

FinalHeaven26

•7 years ago

7 Replies

B12 defiency?

Hi, My recent B-12 level was 170 ng/l ( range 120-900) My ferritin is 11 ng/ml (15-300)and folate is also 11 ug/L (2.9-9999) For the past year my MCH level has...

Hi, My recent B-12 level was 170 ng/l ( range 120-900) My ferritin is 11 ng/ml (...

Hidden

•7 years ago

4 Replies

B12 hormone related?

So I've been a member for this community for quite a long time. Recently, I went to a new doctor because I didn't trust my old GP anymore. My TSH has always...

So I've been a member for this community for quite a long time. Recently, I went...

Laura221

•7 years ago

1 Reply

Newest results?!

Newest bloods: it seems ok?!? Haemoglobin 13.9 (12-16) Total white count 8.5 10^9/L (4-11) Platelet count 369 10^9/L (150-400) Red cell count 4.82 10^12/L...

Newest bloods: it seems ok?!? Haemoglobin 13.9 (12-16) Total white count 8.5 10^...

MrsO2510

•7 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

How long before b12 deficiency nerve symptoms become permanent?

Malabsorption problem, digestive issues

Epilepsy?

PA is for life

I sometimes forget to take my daily Folic Acid ?

Skin problems with b12 injections

Funny turns

Autoject 2 Syringes

B-Complex Plus or Methyl B12?

Help!

Changes to the HU Top-bar

Can you have too much B12 and Folic Acid

New GP has stopped my prescriptions for Hydroxocobalamin

Relationship between Thyroid levels and B12

Low Ferritin, low normal iron, significant hair loss, no one seems to be concerned

Spam adverts on HU.

PA and Liver issue

Cobalt Supply & Demand

Really concerned for my husband bloods reveal really low vitamin B12 and D3

Results back, I am a medium methylator (C677 tested), any advice appreciated on trying methylated folate please (have homocysteine 11 too)

B12 and mind out of kilter

Latest blood test

Relieved from symptoms of b12

Serum Folate level 3.4 ug/l

Some new problems and some new questions : can anyone help?

Alcohol and B12

Is intense whole arm pain normal after b12 loading shot?

B12 defiency?

B12 hormone related?

Newest results?!

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