Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,969 members • 23,110 posts

All posts for January 2018

Frustrating!

I had an appointment with a haematologist yesterday, I had MMA and homocysteine tests in November. Homocysteine came back normal but MMA came back abnormally...

I had an appointment with a haematologist yesterday, I had MMA and homocysteine ...

greenbexy

•6 years ago

11 Replies

'NO BIOLOGICAL EXPLANATION'

'It seems reasonable to offer B12 injections here but I have nothing to add re the frequency, beyond that there are not infrequent patients who get symptoms...

'It seems reasonable to offer B12 injections here but I have nothing to add re t...

Panpal

•6 years ago

2 Replies

GP appointment

Yet again I feel in limbo! I am yet to have a diagnosis but am awaiting homocysteine and MMA test results from the haematologist. I was self injecting twice a...

Yet again I feel in limbo! I am yet to have a diagnosis but am awaiting homocyst...

Rheadster72

•6 years ago

7 Replies

Want to take advantage of all our features? Just log in!

High Homocysteine levels

Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbladder out in 2013 before that I thought I was eating not to bad but obviously I...

Hello Mine is a bit of a long story so hope this is ok. I am 58 I had my gallbl...

Jan87

•6 years ago

42 Replies

Test results, please advice, GP appoiment tomorrow!

Hi all, I have a print from all my blood test and are like this: 8 Sep 2017 B12 serum 196 (191-663) Ferritin 73 (10-150) No folate the GP tought no need for...

Hi all, I have a print from all my blood test and are like this: 8 Sep 2017 B12 ...

Ioana_17

•6 years ago

14 Replies

Hi these are my results

Having symptoms off thyroid but results have said borderline can any one help me please as I don’t understand them I’m also on iron tablets twice a day and...

Having symptoms off thyroid but results have said borderline can any one help me...

Shariece

•6 years ago

9 Replies

Magnesium supplements

I have read in several places that magnesium supplements are helpful for leg pain associated with b12d. Can anyone advise what type of magnesium is best to...

I have read in several places that magnesium supplements are helpful for leg pai...

sweetnessandlight

•6 years ago

9 Replies

Saw this and thought may be useful

I had advised someone to get their MMA (methylmalonic acid) and HCY (homocysteine) done at St Thomas's. Not having done it myself for ages I looked online and...

I had advised someone to get their MMA (methylmalonic acid) and HCY (homocystein...

Bluedragon

•6 years ago

3 Replies

High Folate and high B12

I have been diagnosed with pernicious anemia. I have been on b12 injections for about 5 years now and am taking 1 per month. At last check, my b12 serum was...

I have been diagnosed with pernicious anemia. I have been on b12 injections for ...

deborahd2350

•6 years ago

9 Replies

The Sally Pacholok Video

Yesterday my wife and I watched the Sally Pacholok video which tells how she battered at the portals of the medical profession to get Vitamin B12 deficiency...

Yesterday my wife and I watched the Sally Pacholok video which tells how she bat...

clivealive

Forum Support•6 years ago

12 Replies

Advice before testing for serum Folate

Hello, Am due to have a test for Folate, should I take special precaution before doing so? Am on B12 injections (3 times/week), take iron fumarate 322mg, 2...

Hello, Am due to have a test for Folate, should I take special precaution befor...

JGBH

•6 years ago

2 Replies

Ferritin / Iron supplement advice

Hi all, Just had my blood test results back and my folate has increased from 3.2 ng/L to 16 ng/L as been taking 5mg folic acid per day. My ferritin has...

Hi all, Just had my blood test results back and my folate has increased from 3.2...

Eoperez

•6 years ago

Be the first to reply

Oops not B12 but B1

I recently Ordered some "B12" and when it arrived put it in the fridge. Went to use it and noticed it was clear not the usual reddish brown. Double checked the...

I recently Ordered some "B12" and when it arrived put it in the fridge. Went to ...

Pixielula

•6 years ago

7 Replies

Diagnosis

Hi, I’m after some advice as I’m totally confused! Symptoms are extreme fatigue, low mood, emotional, depression, brain fog, confusion, lack of energy, balance...

Hi, I’m after some advice as I’m totally confused! Symptoms are extreme fatigue,...

Turnerpie

•6 years ago

19 Replies

Is it Pernicious Anaemia or not.

Hello, my first post here. I hope you will be able to help me somehow, as my GP said there is no need to come back to the surgery as NHS cannot do anything...

Hello, my first post here. I hope you will be able to help me somehow, as my GP ...

Cherrieagn

•6 years ago

13 Replies

Understanding blood test results!

Hi! I am 21 years old , and I am constantly tired which isnt like me. I struggle to stay awake, headaches all the time, dizzy, heart palputations and...

Hi! I am 21 years old , and I am constantly tired which isnt like me. I struggle...

Dancingruby

•6 years ago

4 Replies

Should I try a B12 spray?

Hello everyone. I have been bobbing around on different forums in an attempt to figure out what is going on. I went to my GP about back pain, joint pain and a...

Hello everyone. I have been bobbing around on different forums in an attempt to ...

KittyB52

•6 years ago

3 Replies

Symptoms after 10 yrs

Hi , iv had pa for ten years now , have injections every 8 weeks, but this last year been getting loads of symptoms,, light headed , jitters , aches and pains...

Hi , iv had pa for ten years now , have injections every 8 weeks, but this last ...

Psf1

•6 years ago

16 Replies

Could B12 deficiency/PA or thyroid?

Hello everyone...I need some advice please. I suffer form July with serious heart palpitation...insomina and other symptoms posted below. In my teens i had...

Hello everyone...I need some advice please. I suffer form July with serious hear...

Ioana_17

•6 years ago

6 Replies

Keepon keeping on..

During the long long time I was fighting for more frequent B12 injections I used to log onto this site sometimes twice a day.......I never felt alone during my...

During the long long time I was fighting for more frequent B12 injections I used...

jillc39

•6 years ago

12 Replies

Ridiculous over reaction to alcohol

Happy New Year to all! I have read that other b12 deficient folks have issues with alcohol so i thought i might post requesting info. I have never been...

Happy New Year to all! I have read that other b12 deficient folks have issues ...

KimberinUS

•6 years ago

24 Replies

first post on healthunlocked - some low thyroid symptoms as well?

hi how often does b12 need to be injected if suffering symptoms of b12 deficiency. I tested positive for intrinsic factor antibodies and my haematologist has...

hi how often does b12 need to be injected if suffering symptoms of b12 deficienc...

LVO51

•6 years ago

7 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

Frustrating!

'NO BIOLOGICAL EXPLANATION'

GP appointment

High Homocysteine levels

Test results, please advice, GP appoiment tomorrow!

Hi these are my results

Magnesium supplements

Saw this and thought may be useful

High Folate and high B12

The Sally Pacholok Video

Advice before testing for serum Folate

Ferritin / Iron supplement advice

Oops not B12 but B1

Diagnosis

Is it Pernicious Anaemia or not.

Understanding blood test results!

Should I try a B12 spray?

Symptoms after 10 yrs

Could B12 deficiency/PA or thyroid?

Keepon keeping on..

Ridiculous over reaction to alcohol

first post on healthunlocked - some low thyroid symptoms as well?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive