Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,227 members • 23,397 posts

All posts for November 2017

Hospitalfinance

This is the first time I have written to Pas. I am an avid reader for several years now . My husband 70 years has been self injecting for many years ( doctor...

This is the first time I have written to Pas. I am an avid reader for several ye...

Hospitalfinance

•7 years ago

6 Replies

Private blood test results - GP app booked, what can I say?

Hi everyone, I was going add onto my previous post, but I can’t seem to find it. I recently had a B12 test at the GP’s, it was low but still in the ‘normal...

Hi everyone, I was going add onto my previous post, but I can’t seem to find it...

HappyKatieA

•7 years ago

50 Replies

Hi new here

I have pernicious anaemia and I have injections of hydroxycobalamin every 3 months. I had my first injection in August 17 and these symptoms - swollen throat,...

I have pernicious anaemia and I have injections of hydroxycobalamin every 3 mont...

Donnae

•7 years ago

11 Replies

Want to take advantage of all our features? Just log in!

HELP...want to self inject B12

Sorry cannot find what I am looking for!! Looking for a highly recommended website/pharmacy to purchase B12 Injections. Want to use Hydroxocobalamin. This is 3...

Sorry cannot find what I am looking for!! Looking for a highly recommended websi...

maypole66

•7 years ago

19 Replies

Allergic Reaction?

Hi Again, So tomorrow I am going to the Dr as it looks like I have PA. He will send me for more bloods etc etc. My concern is when I take magnesium, in any...

Hi Again, So tomorrow I am going to the Dr as it looks like I have PA. He will ...

Zuzka1

•7 years ago

6 Replies

Advice please

Hi I have just come over from the thyroid community I have UAT & Hasimotos diagnosed in April this year currently taking 75mcg levothyroxine Latest blood...

Hi I have just come over from the thyroid community I have UAT & Hasimotos diagn...

sarahstevo1974

•7 years ago

6 Replies

Pernious Anemia, weightloss and Stomach issues

Hi all. It has been beyond upsetting especially lately. PA, MTHFR, weightloss (130 to now 96) early saiety and sideache. I've been battling low rbc and now...

Hi all. It has been beyond upsetting especially lately. PA, MTHFR, weightloss (1...

Wowo23

•7 years ago

7 Replies

Would you say I have PA?

Hi Everyone, I have hashimotos and the last few weeks I've been feeling really rough. Very tired, cannot loose weight, kind of weird dizzy eye things, head...

Hi Everyone, I have hashimotos and the last few weeks I've been feeling really r...

Zuzka1

•7 years ago

6 Replies

Feeling deflated!

After finally getting to see the haematologist this morning (five months of waiting) I felt great that she was lovely, took my symptoms seriously and had MMA...

After finally getting to see the haematologist this morning (five months of wait...

greenbexy

•7 years ago

3 Replies

Buying Hydroxocobalamin on line

Hi I need a source to buy online. From Germany. Would be grateful for your advice.

Hi I need a source to buy online. From Germany. Would be grateful for your advic...

raelenejones

•7 years ago

2 Replies

MTHFR gene Over/Undermethylation

Hi Everyone, I had a follow-up interview with the GP (not in Canada) who says he doesn't see any signs of the MTHFR gene. He does, however, feel that I have...

Hi Everyone, I had a follow-up interview with the GP (not in Canada) who says he...

terrybraden

•7 years ago

6 Replies

Folate and B12

What do I do about results please Folate 3.5 (4.6 - 18.7) Vitamin B12 163 (180 - 900) Thanks in advance

What do I do about results please Folate 3.5 (4.6 - 18.7) Vitamin B12 163 (180 -...

Colagirl86

•7 years ago

2 Replies

MCV 95.3 fL and MCH level 32.2 pg (27-32) but gp refusing trial of b12 injections

Hi, Would very much appreciate any advice and links about high MCV and MCH to take to gp. Have experienced fatigue, swimming head, severe balance problems and...

Hi, Would very much appreciate any advice and links about high MCV and MCH to ta...

Highland49

•7 years ago

17 Replies

Would you continue b12 injections if you didn't feel they were helping?

so after multiple tests (neg intrinsic, neg parietal, mri, ncs, lumbar puncture etc etc.) I still do not have any type of diagnosis for my peripheral...

so after multiple tests (neg intrinsic, neg parietal, mri, ncs, lumbar puncture ...

lunez22

•7 years ago

4 Replies

Just completed initial course of b12

Hi everyone, Just wanted to get everyone views on having your b12 injections every 3months. Is this enough? Today is the first day I've not had an injection...

Hi everyone, Just wanted to get everyone views on having your b12 injections eve...

Mrs_

•7 years ago

4 Replies

Blog post on B12 breathing and mental health problems

Hi, Saw this recent post on B12 Deficiency Info website. http://www.b12deficiency.info/blog/

Hi, Saw this recent post on B12 Deficiency Info website. http://www.b12deficienc...

Sleepybunny

•7 years ago

5 Replies

Short bowel syndrome, b12 > 2000

Hi, my husband recently just got surgery in his small intestine where the doctor need to cut his small intestine until it is very short around 80-85cm....

Hi, my husband recently just got surgery in his small intestine where the doctor...

LusiNg

•7 years ago

2 Replies

What have I got?

Hi I’m Anne and at my wits end, I have been having b12 injection for almost 2.5 years, for the past 12 months I have been so forgetful, I could sleep on a...

Hi I’m Anne and at my wits end, I have been having b12 injection for almost 2.5 ...

Amth

•7 years ago

19 Replies

Exhausted With GP's

Hi all. I have been pushed to my limit this morning with ignorant Dr"s... In Sept my Dr agreed ' reluctantly " to a trial ' loading B12Injections... 6 in 2...

Hi all. I have been pushed to my limit this morning with ignorant Dr"s... In Sep...

maypole66

•7 years ago

9 Replies

GP says 'B12 blood test unmeasurable >2000' therefore reducing injections frequency from 4 weeks to three monthly.

I was diagnosed with Pernicious anaemia in 2002. I also have under-active thyroid. I started with the three-month injections but my quality of life and my...

I was diagnosed with Pernicious anaemia in 2002. I also have under-active thyr...

apn1179

•7 years ago

13 Replies

Blood test: PTFRNS, What is it testing?

Hello, This morning I requested a TIBC test (total iron binding capacity) from my GP along with other tests. On my return I checked the test form and did not...

Hello, This morning I requested a TIBC test (total iron binding capacity) from m...

JGBH

•7 years ago

11 Replies

Hydroxocobalamin and Chloramphenicol

I had to take my 90 year old, frail and very deaf cousin for a cataract operation yesterday morning. Apart from having to turn up before 7:30am, which was a...

I had to take my 90 year old, frail and very deaf cousin for a cataract operatio...

Hidden

•7 years ago

5 Replies

B12 injection

Hello all :) Just looking to find out how often I should be injecting b12 for a trial period? Done 1 last night IM in arm and I’ve got 9 vials left. Thanks...

Hello all :) Just looking to find out how often I should be injecting b12 for a...

Hidden

•7 years ago

5 Replies

B12 availability in Ireland?

I live in the U.S. but am considering a move to Ireland. Can anyone tell me what the protocol is for B12 injections there? I currently have my husband give me...

I live in the U.S. but am considering a move to Ireland. Can anyone tell me what...

cdragin

•7 years ago

6 Replies

Half moons returning!!

I have been taking pictures of my fingernails since April 2017 due to the ridges, beading and lack of half moons. I have no idea how long they have been...

I have been taking pictures of my fingernails since April 2017 due to the ridges...

KimberinUS

•7 years ago

10 Replies

Correct B12 dosing

I was lucky to be diagnosed with B12 deficiency quite quickly after seeing the doctor for my non-specific symptoms and having a blood test. I had two B12...

I was lucky to be diagnosed with B12 deficiency quite quickly after seeing the d...

Hologram

•7 years ago

5 Replies

B12 results and further tests?

Hello, I’m after some advise for my dad who recently had results back for his thyroid and b12 came in at 223, are there any tests he can ask for which covers...

Hello, I’m after some advise for my dad who recently had results back for his th...

Pinky3

•7 years ago

1 Reply

Can I purchase hydroxocobalamin in pathos Cyprus????

Hi everyone... Hope all is well with you guys ☺.... I'm going on holiday tomorrow to pathos in South West Cyprus and was wondering if anyone has ever bought...

Hi everyone... Hope all is well with you guys ☺.... I'm going on holiday tomorro...

Frances55

•7 years ago

2 Replies

Blood Test Results

My doctor phoned me yesterday to give me an overview of my test results. I'm still B12 deficient even though levels improved slightly. B6 levels dropped, I...

My doctor phoned me yesterday to give me an overview of my test results. I'm sti...

loomis

•7 years ago

7 Replies

Mixing Methylcobalamin

Hello..I was hoping someone could answer a question for me. I found where B12(methylcobalamin form) could be purchased from Oxford Biosciences. I am just...

Hello..I was hoping someone could answer a question for me. I found where B12(me...

Sunny560

•7 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2017

Hospitalfinance

Private blood test results - GP app booked, what can I say?

Hi new here

HELP...want to self inject B12

Allergic Reaction?

Advice please

Pernious Anemia, weightloss and Stomach issues

Would you say I have PA?

Feeling deflated!

Buying Hydroxocobalamin on line

MTHFR gene Over/Undermethylation

Folate and B12

MCV 95.3 fL and MCH level 32.2 pg (27-32) but gp refusing trial of b12 injections

Would you continue b12 injections if you didn't feel they were helping?

Just completed initial course of b12

Blog post on B12 breathing and mental health problems

Short bowel syndrome, b12 > 2000

What have I got?

Exhausted With GP's

GP says 'B12 blood test unmeasurable >2000' therefore reducing injections frequency from 4 weeks to three monthly.

Blood test: PTFRNS, What is it testing?

Hydroxocobalamin and Chloramphenicol

B12 injection

B12 availability in Ireland?

Half moons returning!!

Correct B12 dosing

B12 results and further tests?

Can I purchase hydroxocobalamin in pathos Cyprus????

Blood Test Results

Mixing Methylcobalamin

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