Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for November 2017

Pernious Anemia

Hi all. Thanks to Stayfocussed, I looked up more info regarding PA, MTHFR and anxiety. I had an appt with primary this morning and talked about what I learned....

Hi all. Thanks to Stayfocussed, I looked up more info regarding PA, MTHFR and an...

Wowo23

•7 years ago

3 Replies

MS or ALS or really B12 Deficiency

hello everyone.. I hope you're doing well and as usual you'll clear my doubts. Diagnosed with b12 deficiency (level 227) in June.. 8 injections shotd given...

hello everyone.. I hope you're doing well and as usual you'll clear my doubts. ...

Rat007

•7 years ago

9 Replies

MS misdiagnosis

Are there any people out there that have been diagnosed with multiple sclerosis and looked at literature that basically disproves the diagnosis. It is my...

Are there any people out there that have been diagnosed with multiple sclerosis ...

toph

•7 years ago

4 Replies

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B12

I have had weight loss surgery and am supposed to have b12 injection every 12 weeks. But I'm not able to get them and was told to take tablets but now I'm...

I have had weight loss surgery and am supposed to have b12 injection every 12 we...

Jw123

•7 years ago

3 Replies

Hydroxocobalamin or methylcobalamin

I have been injecting hydroxocobalamin and taking hydrocortisone. I'm feeling really good. I've read that methylcobalamin is better to inject than...

I have been injecting hydroxocobalamin and taking hydrocortisone. I'm feeling re...

toph

•7 years ago

1 Reply

Vague nerve performance

I have had B12 deficiency for a while. Non specific a possibly linked to significant emergency antibiotics over the last 10 years interfering with gut biome....

I have had B12 deficiency for a while. Non specific a possibly linked to signifi...

GGourmet

•7 years ago

15 Replies

PPI's and Nitrous Oxide....can anyone help!?

Hi There, I have an appointment tomorrow with my GP who is actually pretty helpful but as seems to be the norm....doesn't seem too ofay with B12 issues, so I...

Hi There, I have an appointment tomorrow with my GP who is actually pretty helpf...

Drumstix

•7 years ago

16 Replies

Supplements for damaged nerves. Need a recommendation!

I am wondering what can I do to help to cure my nerves. Of course, B12 will be the main drug but are there any other drugs? I know that Alpha Lipoic Acid is...

I am wondering what can I do to help to cure my nerves. Of course, B12 will be t...

Kosakosia

•7 years ago

2 Replies

Doctor Dave's story.

Yutube..... diagnosing and treating b12 deficiency.

Mthfr

•7 years ago

8 Replies

Hemochromatosis and PA

Hi all, earlier on this year I watched an episode of Doctor in the house, where a young man had been suffering from various problems and was never in I think,...

Hi all, earlier on this year I watched an episode of Doctor in the house, where ...

jointpain

•7 years ago

5 Replies

Prescription exemption certificates

Has the PA society campaigned for prescription exemption certificates to be made available to all patients suffering from B12 deficiency? If not why not? It...

Has the PA society campaigned for prescription exemption certificates to be made...

Dewbuc

•7 years ago

13 Replies

Supplies from Germany have arrived.

Hi everyone, I now have my supply of ampoules and needles as I'm sick of trying to explain to my numpty GP that every 8 weeks is not enough. It is 4 weeks...

Hi everyone, I now have my supply of ampoules and needles as I'm sick of trying ...

Cali25

•7 years ago

5 Replies

A strange Question

I cannot get diagnosed as I have been supplimenting B12! could not wait any longer for 3 month waiting lists to see a specialist (I am on the ground and my...

I cannot get diagnosed as I have been supplimenting B12! could not wait any lon...

Katherine1234

•7 years ago

18 Replies

After 14 B12 injections - results

1. More energy (extreme fatigue before - now perfect level - cannot believe). 2. Tinnitus was very strong now much less! 3. Thyroid - had to decrease...

1. More energy (extreme fatigue before - now perfect level - cannot believe). 2...

Kosakosia

•7 years ago

5 Replies

Interesting read

I don’t know if this has been circulated before but I found it very interesting. https://www.drmcdougall.com/forums/viewtopic.php?f=1&t=48860

I don’t know if this has been circulated before but I found it very interesting....

Bluedragon

•7 years ago

5 Replies

Electromyogram Test

I was diagnosed with a B12 deficiency approx. 18 months ago, at that time I also developed neuro symptoms in my feet, A simple test with an instrument similar...

I was diagnosed with a B12 deficiency approx. 18 months ago, at that time I also...

scadman

•7 years ago

1 Reply

Has anyone tried the gene test to help with b12/folate/MTHFR issues please, just been sent an offer!

Hi, I've recently had a homocysteine home test of which the results suggest taking supplements as its just over-range. I'm wondering now if I need to...

Hi, I've recently had a homocysteine home test of which the results suggest taki...

Jo5454

•7 years ago

22 Replies

12 Year Old Daughter Iron Defiency Anemia could be Crohns disease.

Where do I begin? My 12 year old daughter hasn't been right in herself for months. Very tired? Always cold, mouth ulcers that don't go away. Back in August...

Where do I begin? My 12 year old daughter hasn't been right in herself for mont...

egardiner

•7 years ago

13 Replies

Negative Intrinsic Factor & Parietal Cells

Sorry for yet another post! Just found out that the parietal cells blood test that I was waiting for and thought would get me the treatment and recognition...

Sorry for yet another post! Just found out that the parietal cells blood test th...

Eoperez

•7 years ago

6 Replies

LowB12 and iron

Hi I was diagnosed with low B12 in July 175 and low haemoglobin 10 and ferritin 7 then 4 week later 2nd blood test B12 was 152. Had loading injections and iron...

Hi I was diagnosed with low B12 in July 175 and low haemoglobin 10 and ferritin ...

mesadies

•7 years ago

16 Replies

B 12 deficiency

Hello,my doctor has given me 5 injections of methycobalmin 1500 mcg on alternate days. Now within 1week got relief from burning sensation and tingling.but...

Hello,my doctor has given me 5 injections of methycobalmin 1500 mcg on alternate...

kimbprash

•7 years ago

15 Replies

B12 testing advise please

Hi I am wondering if it is worth getting my active b12 checked with medichecks and if my gp will even listen if the results are low. My first gp tested my...

Hi I am wondering if it is worth getting my active b12 checked with medichecks a...

jjwren

•7 years ago

1 Reply

Low folate even while supplementing, suggestions?

Hi All, I am doing much better and am on fortnightly injections with B12. However on a recent check of my Folate levels indicates they are low. I've been...

Hi All, I am doing much better and am on fortnightly injections with B12. Howeve...

0SK780

•7 years ago

3 Replies

Refused Folate Blood Level

Hi Everyone, I went to my GP today and asked to have my folate levels checked and was refused. My B12 was checked in June and my iron was check recently. I...

Hi Everyone, I went to my GP today and asked to have my folate levels checked an...

terrybraden

•7 years ago

7 Replies

Extremely low folate and B12, I'm struggling and need help.

I'm looking for advice as I'm overwhelmed and confused about what my blood tests mean. I'm a coeliac sufferer, I suffer dreadful with restless legs syndrome...

I'm looking for advice as I'm overwhelmed and confused about what my blood tests...

HellsBells75

•7 years ago

12 Replies

Sending Blood tests on a Friday?

Hi everyone, I bit the bullet and ordered a home test for Vit B12 yesterday, it arrived today My question is, I’m guessing I shouldn’t do the test and send it...

Hi everyone, I bit the bullet and ordered a home test for Vit B12 yesterday, it ...

HappyKatieA

•7 years ago

2 Replies

PA stomach cancer worries

Hi, Iv read that pa is s high Risk to stomach cancer and I'm so unwell on my tummy. Have been for a long time!! I have an endoscopy next week that I'm...

Hi, Iv read that pa is s high Risk to stomach cancer and I'm so unwell on my tum...

Dani82

•7 years ago

8 Replies

Vitamin B12 fasciculation

Hello. I have some walking problems from 2 years( clumsy walking, wide based gait,high lifting of legs). I also had tingling and numbness sometimes.Now Im...

Hello. I have some walking problems from 2 years( clumsy walking, wide based gai...

Rhoads

•7 years ago

12 Replies

Private Blood tests - where to go?

Hi All, looking for suggestions of where to go for private blood tests. My husband has symptoms of fatigue, low motivation, fall asleep all the time, low...

Hi All, looking for suggestions of where to go for private blood tests. My husb...

Galadriel1

•7 years ago

1 Reply

Smoking

Has anyone had any experience quitting smoking? I've smoked for 20 years and haven't had a cigarette for 8 days (was a light smoker - about 7 a day) and all my...

Has anyone had any experience quitting smoking? I've smoked for 20 years and hav...

Katys1981zzz

•7 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2017

Pernious Anemia

MS or ALS or really B12 Deficiency

MS misdiagnosis

B12

Hydroxocobalamin or methylcobalamin

Vague nerve performance

PPI's and Nitrous Oxide....can anyone help!?

Supplements for damaged nerves. Need a recommendation!

Doctor Dave's story.

Hemochromatosis and PA

Prescription exemption certificates

Supplies from Germany have arrived.

A strange Question

After 14 B12 injections - results

Interesting read

Electromyogram Test

Has anyone tried the gene test to help with b12/folate/MTHFR issues please, just been sent an offer!

12 Year Old Daughter Iron Defiency Anemia could be Crohns disease.

Negative Intrinsic Factor & Parietal Cells

LowB12 and iron

B 12 deficiency

B12 testing advise please

Low folate even while supplementing, suggestions?

Refused Folate Blood Level

Extremely low folate and B12, I'm struggling and need help.

Sending Blood tests on a Friday?

PA stomach cancer worries

Vitamin B12 fasciculation

Private Blood tests - where to go?

Smoking

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