Not sure if this is something anyone has experienced but looking for any advice.
I went to the doctors in 2014 on the advice of my boss who thought I had the same symptoms as her extreme fatigue, pale skin, dizziness and faintness. She was b12 deficent and getting b12 injections. Long story short they found that I actually extremely high b12 blood results around 1800ng with the normal for the lab being max of 660ng. None of the doctors i seen in the practice had come across this before and I was referred to a specialist at the hospital who put me through a number of tests, more for the fatigue and dizziness. The only thing they found was a small liesion on my liver that they said was probably there from birth. There were no other blood tests or much talk of the high b12 and still 3 years later my b12 is still around 1700ng. Now though the dizziness has mostly subsided but I know have gastric issues like bloating and a feeling of fullness after a normal meal. I have moved home and at a new doctors and they too have said they haven't seen anything like it and don't know why it is so high but don't seem too fazed about it even though I don't feel very well. Seems nobody knows and nobody really cares why my body isn't absorbing or getting rid of the excess b12.
I have only the last 3 months stopped eating meat and occasionally eat fish and at first I started to feel better but now back to having stomach issues.
I have seen some literature about false readings etc and wondering what tests should I ask to be done. Has anyone came across this before or had a high reading? I am constantly asked if I take supplements which I never have. Very frustrating and my stomch bloating and pains are becoming a daily occurrence so I will be making another app with my GP soon as it is effecting my daily life.
Hi Dmcn85 Do you know what your serum Folate level is?
Symptoms of a folate deficiency can include:
symptoms related to anaemia
reduced sense of taste
diarrhoea
numbness and tingling in the feet and hands
muscle weakness
depression
Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body. A deficiency of one may be "masked" by excess of another so the three must always be in balance.
I'm not a medically trained person but there are others on here who will be able to give you good advice
Hi thanks for replying. I don't know what it is currently but the results I have from a few year back my folate was 8.1 with the range for the lab being 4.6-18.7 stomach issues at the minute are the killer for me, and I could sleep 24/7 and still be tired. I'm only 32 and would say im not an athlete but I do a few fitness classes a week and try to eat sensibly.
There was a haematology presentation which was posted here recently which mentioned high B12, I'm not sure how to post it here though, it was by a Dr. Simona Deplano of Hammersmith Hospital. You might find it in a Google search? It was called Diagnosis and Management of Vitamin B12 Disorders.