B12 spray: Hi all , I know many of you... - Pernicious Anaemi...

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B12 spray

Av42 profile image
Av42
16 Replies

Hi all , I know many of you on here have to self inject due to poor gp help , but I was wondering how effective you have found spray ? As I have mentioned although I feel fairly great at moment I'm only half way through between loading doses and three monthly jab and know lots of you start to need next jab before it is due so am hoping to arm myself if need arises .

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Cherylclaire profile image
CherylclaireForum Support

Personally, not sure that it does much for me. I have been using Boost, as a supplement between injections, every other day lately for about a week (since signed off from Haematology) - so perhaps too early to say- but also used it as a top-up before for a while and gave up. Perhaps it has made my hair less witchey........ but not my main concern!

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Av42 in reply toCherylclaire

Ok thanks for reply. You saying about your hair made me smile 😊 As I don't go a day without a massive spot somewhere on my face now and couldn't give a toss ! You have the hair I have the warts !! But oh for a completely fog free mind !

Cherylclaire profile image
CherylclaireForum Support in reply toAv42

Don't even mind the spots.... except when they are down your ears ! Ever had that ? Nightmare.

Slow brain , tinnitus, dizziness, inability to concentrate, mood swings, irritability and impatience- these are the things I could really do without.

People are starting to cross the road...

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Av42 in reply toCherylclaire

I totally agree about spots in ears ! Had totally forgotten about those . Kept getting a pain like I'd been stabbed in ear and about a week later realised just spots !! 🤡

Cherylclaire profile image
CherylclaireForum Support in reply toAv42

Never get any sympathy for those ones and they are the real worst. Good luck with the supplementing. [Really means that your "maintenance" dose is not maintaining anything!]

GGourmet profile image
GGourmet

I find it an expensive alternative to sublinguals. I was often spraying 10-20 times a day, for relief.

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Av42 in reply toGGourmet

Did it get you through tough times though?

GGourmet profile image
GGourmet in reply toAv42

It certainly did, but at a time when I really didn't appreciate how ill I was and couldn't understand why I had to take so much just to get relief. I think that if you need this whilst on loading doses, you might just need to supplement even after loading doses, as I do. In this case your GP might prescribe sublinguals but I doubt it. I therefore suspect you might end up needing this long term so going for the lower cost sublingual might be the best way forward. I took 6000 microgrammes a day in the early days, after loading doses, now down to 2000 a day after 4 months on the higher dose.

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Av42 in reply toGGourmet

Thanks so much for your help.

Jennylind profile image
Jennylind

The spray did not work for me, nor did sublinguals, though that doesn't mean they won't work for you. What I'm learning is that it takes time to figure out what works for you, and then it may change, and you need to figure out what works now!

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Av42 in reply toJennylind

Thanks, it's good to hear varied opinions so I know to keep options open .

kristianjones profile image
kristianjones

I use the b12 boost.

It seemed to take the edge off for sure when i was feeling really low.

Again ill echo what people are saying, it seems to be a case of finding what works for you

Av42 profile image
Av42 in reply tokristianjones

Thanks

pitney profile image
pitney

I find it takes the edge off some symptoms and helps me when I get breathless

All the best

Gambit62 profile image
Gambit62Administrator

I find nasal sprays really work quite well for me.

Sublingual spray wasn't really that effective.

Av42 profile image
Av42 in reply toGambit62

Thanks will keep all helpful advice in mind and prepare just in case .

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