Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2017

Any way to find NHS Consultant who diagnoses PA/B12 def, please?

I'd like to ask my GP for a referral re what I think is likely to be B12 deficiency. Needless to say, GP totally disregards my probably symptoms and won't...

I'd like to ask my GP for a referral re what I think is likely to be B12 deficie...

JMN2017

•7 years ago

2 Replies

2nd lot of b/tests

Hi fellow sufferers hope u are as good as can be here goes 2nd lot of blood tests as follows 13/4 Serum folate 2.1ug/L-----3.9-26.8ug/L Serum vitamin...

Hi fellow sufferers hope u are as good as can be here goes 2nd lot of blood test...

Chance15

•7 years ago

6 Replies

Returning symptoms

I've been having b12 injections every 6 weeks since sept last year, I also started taking vit D . It took around 4 months to feel a little better, but since...

I've been having b12 injections every 6 weeks since sept last year, I also start...

Tehmeena

•7 years ago

5 Replies

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Which way, now?

I don't honestly know how to approach my problems(of which there are many). I have been diagnosed with under- active thyroid for some time and have b12...

I don't honestly know how to approach my problems(of which there are many). I h...

Doubleblank

•7 years ago

8 Replies

Low B12 & Folic Acid

Hi I have just been diagnosed by my doctor as having low b12 and low folic acid. She said i need to get my folic acid levels up before she can treat my b12 and...

Hi I have just been diagnosed by my doctor as having low b12 and low folic acid....

Nobby

•7 years ago

5 Replies

Update: picture of sons results

18yr old son stomach bloating, breatlless(sigh) recurrent mouth ulcers, fatigue, poor memory. Bloods: June b12 142 June rechecked b12 174. Latest bloods for...

18yr old son stomach bloating, breatlless(sigh) recurrent mouth ulcers, fatigue,...

SarahFerguson

•7 years ago

15 Replies

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 27 April 2017

Grab a drink from the counter and come and join our friendly, informal group on the sofas at the front of the café this Thursday from 7pm to 9pm at Waitrose, 2...

Grab a drink from the counter and come and join our friendly, informal group on ...

SailingBy

•7 years ago

1 Reply

Some difficulties with s/c hydroxycobalamin injections

Hello all, I have been doing my own injections s/c for some months now, but increasingly am having difficuties when trying to get the needle to initially...

Hello all, I have been doing my own injections s/c for some months now, but incr...

MALP

•7 years ago

11 Replies

What else should I be taking with my B12 injections other than Folic acid ?

Could someone give me a link to some advice about Co factors please ? Many thanks. I have just started SI alternate days. I have my folic acid 5mg and...

Could someone give me a link to some advice about Co factors please ? Many thank...

Jesswoozer1

•7 years ago

16 Replies

Diagnosis of PA advice please.

Hi everyone, I posted here recently asking for advice about being diagnosed with PA/B12 deficiency sorry I did not reply to that post but wasn't feeling very...

Hi everyone, I posted here recently asking for advice about being diagnosed with...

Cn13

•7 years ago

9 Replies

Exercise

Does anyone exercise? I just got diagnosed and my legs are affected badly - to the point where I use a walker! I want to strengthen my legs. I finished...

Does anyone exercise? I just got diagnosed and my legs are affected badly - to ...

Blinkysmom

•7 years ago

2 Replies

Feeling lost...but finding my way thanks to this group.

I have a confession to make😳 I dident mention it in my first post as I am so tired of explaining myself. But with all your kind words and advice I feel able...

I have a confession to make😳 I dident mention it in my first post as I am so ti...

Sharnbarwick28

•7 years ago

17 Replies

Ordered 1ml ampoules, got 0.5 ml ones??

Self-injecting newbie here - a million thanks for all the very helpful advice on this forum which I have been reading near religiously in recent times before...

Self-injecting newbie here - a million thanks for all the very helpful advice on...

SlimCat

•7 years ago

5 Replies

Effect of antibiotics???

Hi Just wondering if anyone else feels exhausted on antibiotics? If so do we know if it depletes b12 or folate? I have 12 weekly b12 for absorbtion issues...

Hi Just wondering if anyone else feels exhausted on antibiotics? If so do we kn...

Clare184

•7 years ago

3 Replies

Post laparoscopy for adhesions

I had a laparoscopy 3 days ago for investigations and during the procedure I had adhesions removed, I came home from hospital yesterday and am in immense pain,...

I had a laparoscopy 3 days ago for investigations and during the procedure I had...

dmacker

•7 years ago

6 Replies

Further tests

Hi. Me again. I've had a phone call from the hospital asking me to come in for further tests tomorrow, my little boy was crying at the time so all I got from...

Hi. Me again. I've had a phone call from the hospital asking me to come in for ...

KJP723

•7 years ago

5 Replies

Just when you think it can't get worse, guess what?

Went to get my first injection in a month on Friday, after being on 2 a week since October 2016, so was in a bad way by then. Had a row with the nurse, when...

Went to get my first injection in a month on Friday, after being on 2 a week sin...

Cherylclaire

Forum Support•7 years ago

15 Replies

Question

I managed to get my B12 levels up to 522 ng/l 191-663 ng/l by the tablets and felt better I have been on folate acid for a week and i feel rubbish, my folate...

I managed to get my B12 levels up to 522 ng/l 191-663 ng/l by the tablets and fe...

Cazzie91

•7 years ago

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Hi! day 5 of loading dose

I'm on day five of my once a day for a week loading dose...then I switch to once a week for three weeks and then once a month. Had a rough go of it the first...

I'm on day five of my once a day for a week loading dose...then I switch to once...

TenilleMarie

•7 years ago

1 Reply

Activity & exercise

Hi, I'm still waiting on test results so not sure yet whether it is b12 deficiency but wanted to ask a question about exercise. Do you find that the more you...

Hi, I'm still waiting on test results so not sure yet whether it is b12 deficien...

KJP723

•7 years ago

15 Replies

Question about type of B12 to inject

I recently noticed that the B12 I am getting for injections is cyanacobalamin. Isn't it better to use methylcobalamin?

I recently noticed that the B12 I am getting for injections is cyanacobalamin. ...

108181

•7 years ago

6 Replies

How effective is sublingual B12?

Hi, Does anyone know of studies showing what percentage of sublingual b12 is actually absorbed and utilized? Thanks!

Hi, Does anyone know of studies showing what percentage of sublingual b12 is act...

pslmt

•7 years ago

13 Replies

Self injecting Pens

Have just read on the forum about self injecting pens, that sounds so much easier and better. Does anybody have any information on this. I am not good with...

Have just read on the forum about self injecting pens, that sounds so much easie...

SusanMargaret47

•7 years ago

6 Replies

Versandapo - choosing the right B12

Have been on the versandapo site and there are so many boxes of B12 being displayed can anybody advise me which is the best one. I am looking for...

Have been on the versandapo site and there are so many boxes of B12 being displa...

SusanMargaret47

•7 years ago

43 Replies

Private Healthcare

Hi all, I was just wondering if anyone had gone to a private health clinic in the UK for their PA? Thinking of the best route to go down if my Dr refuses to...

Hi all, I was just wondering if anyone had gone to a private health clinic in t...

ah1234

•7 years ago

6 Replies

NHS injecting and self administration

I had my last injection on 13 April with the nurse in the surgery. This injection is in my upper arm and always hurts. My prescription says hydroxocobalamin....

I had my last injection on 13 April with the nurse in the surgery. This injecti...

butterflyEi

•7 years ago

10 Replies

Time it takes to recover

I was diagnosed 4/10. Had 2 weeks of loading shots. Now receiving one a week. I take folate and D3 with K. When will the symptoms let up? One symptom that...

I was diagnosed 4/10. Had 2 weeks of loading shots. Now receiving one a week. ...

Blinkysmom

•7 years ago

4 Replies

Symptoms of taking b12

What will I expect after b12 starts to go up?

Dredre112

•7 years ago

1 Reply

Another story about oral b12 treatment

Hi, Another story about GPs trying tablets rather than injections https://www.martynhooper.com/2017/04/16/the-tablets-that-didnt-work/ I don't understand why...

Hi, Another story about GPs trying tablets rather than injections https://www.ma...

Sleepybunny

•7 years ago

1 Reply

B12 sublinguals 5000mcg alternative

I will run out of my Solgar B12 before my next order arrives in mid May from USA. Unfortunately as I posted previously i can't find a UK supplier at the...

I will run out of my Solgar B12 before my next order arrives in mid May from USA...

carer999

•7 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2017

Any way to find NHS Consultant who diagnoses PA/B12 def, please?

2nd lot of b/tests

Returning symptoms

Which way, now?

Low B12 & Folic Acid

Update: picture of sons results

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 27 April 2017

Some difficulties with s/c hydroxycobalamin injections

What else should I be taking with my B12 injections other than Folic acid ?

Diagnosis of PA advice please.

Exercise

Feeling lost...but finding my way thanks to this group.

Ordered 1ml ampoules, got 0.5 ml ones??

Effect of antibiotics???

Post laparoscopy for adhesions

Further tests

Just when you think it can't get worse, guess what?

Question

Hi! day 5 of loading dose

Activity & exercise

Question about type of B12 to inject

How effective is sublingual B12?

Self injecting Pens

Versandapo - choosing the right B12

Private Healthcare

NHS injecting and self administration

Time it takes to recover

Symptoms of taking b12

Another story about oral b12 treatment

B12 sublinguals 5000mcg alternative

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