Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2017

Feeling lost

Hi everybody. I need some help. Feeling a little lost as what to do for the best.after weeks of going to my doctor he finally diagnosed pernicious anemia after...

Hi everybody. I need some help. Feeling a little lost as what to do for the best...

Sharnbarwick28

•7 years ago

52 Replies

Low B12

Hello. I've been sent for a few blood tests and my iron and zinc are low (however I've always suffered with my iron). But my main concern was my B12 results,it...

Hello. I've been sent for a few blood tests and my iron and zinc are low (howeve...

Sarah1996

•7 years ago

6 Replies

PA, vitiligo and vit d def

Hi folks, I'm worried! Been to see dermatologist today re vitiligo, Routine apt. I spoke to him about PA/vitiligo and recent diagnosis of vit d. He's given me...

Hi folks, I'm worried! Been to see dermatologist today re vitiligo, Routine apt....

SarahFerguson

•7 years ago

2 Replies

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Difference between Neo-Cytamen Hydroxocobalamin Chloride and Mercury pharma Hydroxocobalamin Acetate

Hello... Went to collect my B12 ampoules from chemist this afternoon and realised instead of being given my usual brand Neo-Cytamen they have given me the...

Hello... Went to collect my B12 ampoules from chemist this afternoon and realise...

JGBH

•7 years ago

12 Replies

Pregnancy

Hi all, when you're pregnant and receive a diagnosis of pernicious anaemia, does this go after the birth or is it likely to be a lifelong condition do you...

Hi all, when you're pregnant and receive a diagnosis of pernicious anaemia, does...

Daisy_

•7 years ago

4 Replies

PA, vit D def and Vitilgo.

Yes, I've got the lot. Just had my yearly appt with dermatologist re Vitiligo, also mentioned recent diagnosis of VitD def. Consultant has given me a script...

Yes, I've got the lot. Just had my yearly appt with dermatologist re Vitiligo, ...

SarahFerguson

•7 years ago

7 Replies

Subcutaneous B12 Ampoules

Hi All. I'm new here. I was diagnosed with an underactive thyroid a few months ago and now suspect I have a deficiency of B12 and possibly folate. I have many...

Hi All. I'm new here. I was diagnosed with an underactive thyroid a few months ...

hypo_guy

•7 years ago

4 Replies

Today is a bad day

After my post the other day, I thought I was coming over these bad days....I woke up feeling shattered today. I am completely drained, my body aches...

After my post the other day, I thought I was coming over these bad days....I wok...

Cazzie91

•7 years ago

4 Replies

Would iron tablets help?

In the light of the blood results below, can I call upon your expertise and ask; is it worth going back to GP to request iron tablets? I'm feeling weakness and...

In the light of the blood results below, can I call upon your expertise and ask;...

megan17

•7 years ago

1 Reply

? Intradermal B12 injection

Hi all, I have hypothyroidism and seem to have mucin everywhere so that the only places I can 'pinch an inch' i.e. Pinch up skin is on the top of my hands and...

Hi all, I have hypothyroidism and seem to have mucin everywhere so that the only...

Tills62

•7 years ago

6 Replies

Very nervous

I have been diagnosed with Polyglandular auto immune syndrome as in the past three years I have developed Hashimoto's thyroiditis, Type 1 diabetes and PA. I...

I have been diagnosed with Polyglandular auto immune syndrome as in the past thr...

Siouxiesue

•7 years ago

6 Replies

Muddle

I am in a muddle - just got locked out of the forum.... tried to get in and had to fill in a form with a different address??? I love this forum and use it a...

I am in a muddle - just got locked out of the forum.... tried to get in and had ...

jillcur39

•7 years ago

3 Replies

Advice needed please - docs tomorrow following supplementing but still have symptoms

Looking for advice before I meet my doctor tomorrow please - I had a blood test 7 months ago due to dizziness and discovered B12 at 182. The doctor told me to...

Looking for advice before I meet my doctor tomorrow please - I had a blood test ...

SBunyan

•7 years ago

14 Replies

What to expect?

Hi folks, well thanks to this forum and Martyn Hooper, I found a private doctor who is happy to do a therapeutic trial of B12. He wants to see me weekly for...

Hi folks, well thanks to this forum and Martyn Hooper, I found a private doctor ...

AmyG6500

•7 years ago

7 Replies

PAS regional meetings (UK)

Regional get togethers planned in London, Leeds and Edinburgh https://pernicious-anaemia-society.org/request/lets-get-together/

Regional get togethers planned in London, Leeds and Edinburgh https://perniciou...

Sleepybunny

•7 years ago

4 Replies

New - help with bloods and advice please

My husband has recently had his blood results back and I'm looking for some advice regarding his GPs suggested treatment regime. He has a lot of symptoms which...

My husband has recently had his blood results back and I'm looking for some advi...

PashaW

•7 years ago

4 Replies

Need to vent....

So, it has been nearly 3 months since my last injection, due on Friday. The past month or so, have been hell. I have fainted, sat down in the middle of the...

So, it has been nearly 3 months since my last injection, due on Friday. The past...

ah1234

•7 years ago

32 Replies

To all my very supportive friends: Just back from haematologist

Well, not as bad as I expected but nevertheless, very tiring. Clock ticks so much faster than I can think. Had 4 blood tests - FBC , Active B12, MMA retest,...

Well, not as bad as I expected but nevertheless, very tiring. Clock ticks so mu...

Cherylclaire

Forum Support•7 years ago

22 Replies

New blood results after supplmenting

After a horrible time with doctors trying to listen to me (see previous posts), the doctor put me on : Cyanocobalamin 50tabletsmicrogram tablets (twice daily)...

After a horrible time with doctors trying to listen to me (see previous posts), ...

Cazzie91

•7 years ago

11 Replies

B12 injections

How do I get B12 injections and needles online.

Ballinaglough138

•7 years ago

5 Replies

Another sad story on Martyn Hooper's blog

This one made me feel sad and exasperated. https://www.martynhooper.com/2017/04/18/avril/

This one made me feel sad and exasperated. https://www.martynhooper.com/2017/04/...

Sleepybunny

•7 years ago

3 Replies

Blood test results - advice pls

Hi We have just received the results of a Medichecks health check blood test on my husband. I wanted him to get it done (bear with me it is relevant!) because...

Hi We have just received the results of a Medichecks health check blood test on...

MiniMum97

•7 years ago

25 Replies

Recent B12 and folate deficiency diagnosis

Hi i recently had blood tests as my heart rate kept going very high when running (230 BPM and over) plus tired all the time and was told B12 and folate low....

Hi i recently had blood tests as my heart rate kept going very high when running...

Gissele

•7 years ago

6 Replies

folic acid and b12

My daughter is 23 and at uni in england we live in ireland. She is at the end of her course and recentley she has been feeling very unwell. Hair falling out...

My daughter is 23 and at uni in england we live in ireland. She is at the end of...

anka1918

•7 years ago

28 Replies

Blood test results back

I would say definitely I have p.a. However all my bloods came back in normal range, but had already started loading b12 injections and sublingual, b12 was...

I would say definitely I have p.a. However all my bloods came back in normal ran...

Lizreds1

•7 years ago

4 Replies

First SI

Well after a decent week following my first b12 injection on the 6th of April at the GP surgery I've had two pretty awful days so i bit the bullet at did my...

Well after a decent week following my first b12 injection on the 6th of April at...

Steap

•7 years ago

2 Replies

Advice please, just told got H.Pylori by Gastro, but don`t have P.A. even with positive I.F.A and P.C.A

Hi all, just back from Gastro follow up, told I have H.Pylori and mild Gastric Atrophy, BUT, do not have Pernicious Anaemia even with positive Intrinsic Factor...

Hi all, just back from Gastro follow up, told I have H.Pylori and mild Gastric A...

Barry1955

•7 years ago

6 Replies

MMA and Homocysteine testing B12 whilst on injections...

I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have had two iron infusions in the last couple of months. However, my most recent...

I am 30 weeks pregnant. I am on monthly B12 injections, vitamin D pills and have...

jw44

•7 years ago

4 Replies

To everyone who replied to my latest post about haematology appointment and their letter to my GP

Computers down at local library, so have gone elsewhere and I am massively relieved to find so much support waiting for me to log on. Got it wrong:...

Computers down at local library, so have gone elsewhere and I am massively relie...

Cherylclaire

Forum Support•7 years ago

9 Replies

BLOOD TEST RESULTS PICTURE TWO

2nd photograph of results. I appreciate comments. Thank you.

SusanMargaret47

•7 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2017

Feeling lost

Low B12

PA, vitiligo and vit d def

Difference between Neo-Cytamen Hydroxocobalamin Chloride and Mercury pharma Hydroxocobalamin Acetate

Pregnancy

PA, vit D def and Vitilgo.

Subcutaneous B12 Ampoules

Today is a bad day

Would iron tablets help?

? Intradermal B12 injection

Very nervous

Muddle

Advice needed please - docs tomorrow following supplementing but still have symptoms

What to expect?

PAS regional meetings (UK)

New - help with bloods and advice please

Need to vent....

To all my very supportive friends: Just back from haematologist

New blood results after supplmenting

B12 injections

Another sad story on Martyn Hooper's blog

Blood test results - advice pls

Recent B12 and folate deficiency diagnosis

folic acid and b12

Blood test results back

First SI

Advice please, just told got H.Pylori by Gastro, but don`t have P.A. even with positive I.F.A and P.C.A

MMA and Homocysteine testing B12 whilst on injections...

To everyone who replied to my latest post about haematology appointment and their letter to my GP

BLOOD TEST RESULTS PICTURE TWO

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