Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for December 2016

Subcut or intramuscular

Hi guys I've been self injecting every other day now for a month, using Hydro. I inject into my stomach using the 1/2 inch diabetic needles , I've just...

Hi guys I've been self injecting every other day now for a month, using Hydro. I...

Ndobins

•8 years ago

5 Replies

Need Info/Support for U.S. Appeal

Please help me with facts for making an appeal to have the U.S. Medicare system (for older citizens) cover the costs of methylcobalamin for self-injections. I...

Please help me with facts for making an appeal to have the U.S. Medicare system ...

bquoss

•8 years ago

10 Replies

Lab Results - Need Advice

I just got my labs back and need advice on how to proceed: Serum Folate - October - 10.8 ug/l December - 2.6 ug/l!! (3.90-20.00ug/l) Serum B12 -- October 437...

I just got my labs back and need advice on how to proceed: Serum Folate - Octobe...

whatevs

•8 years ago

5 Replies

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B12

Hi, I had blood tests and it came back that I was seriously low on my b12... I've had 2 injections, I have another 2 this week then one after Christmas.. just...

Hi, I had blood tests and it came back that I was seriously low on my b12... I'v...

matildaaaax

•8 years ago

6 Replies

Vitamin b12

Hi I currently suffer from an underactive thyroid and feel I have mirroring symptoms of being B12 deficient (no engery, shocking memory etc) I had my vitamin...

Hi I currently suffer from an underactive thyroid and feel I have mirroring symp...

carrn4

•8 years ago

3 Replies

Being passed from pillar to post - any ideas for expediting diagnosis and treatment?

Hello - this is my first post here so I'm not sure if anyone can help. Around 4 months ago I went to my doctor as I was feeling tired all the time, and - most...

Hello - this is my first post here so I'm not sure if anyone can help. Around 4 ...

Hidden

•8 years ago

5 Replies

Watch the conference as if you were there :)

All videos from the conference are now online so the full day can be viewed. If you are a member, just log in and go to the Member Homepage where you'll find...

All videos from the conference are now online so the full day can be viewed. If...

PAS-admin

Partner•8 years ago

Be the first to reply

Low b12

Iv been feeling very ill and extremely weak tired for a very long time I also get bad night sweats and can only sleep for 2/3 hrs a night if I'm lucky Iv just...

Iv been feeling very ill and extremely weak tired for a very long time I also ge...

Newberryk

•8 years ago

3 Replies

Painful Nails

Good Afternoon everyone, Does anyone else have issues with your fingernails with PA? I have found that almost on a daily basis, my nails go blue/purple, really...

Good Afternoon everyone, Does anyone else have issues with your fingernails with...

Moosey

•8 years ago

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tracking symptoms?.

just wondering if there is a PE/B12 symptom diary/tracker you can buy as instead of having to constantly rewrite the symptoms out each day to track/record. if...

just wondering if there is a PE/B12 symptom diary/tracker you can buy as instead...

blondie2505

•8 years ago

1 Reply

Blood test results please advise

ferritin 320 (12-300) ! folate 5.8 ug/l no range given vitimin B12 299 (200-900) FBC! total white cell count 9.05 (4.00-11.00) haemoglobin estimate 142...

ferritin 320 (12-300) ! folate 5.8 ug/l no range given vitimin B12 299 (200-900)...

speckles70

•8 years ago

3 Replies

Help is this normal to feel dreed of heart attack

I have been diagnosed with vitamin b12 deficiency and i am convinced i am going to have a heart attack or having one.i have no chest pain just achey twinge in...

I have been diagnosed with vitamin b12 deficiency and i am convinced i am going ...

Kalimeders

•8 years ago

19 Replies

B12 injection

Please help i have been diagnosed with vitamin b12 deficiency.i have had ine injection but now experiencing strange feeling.i feel i am having a heart attack...

Please help i have been diagnosed with vitamin b12 deficiency.i have had ine inj...

Kalimeders

•8 years ago

Be the first to reply

Advice needed

Hi all, think I could do with someone who knows better than me having a look please....... All advice gratefully recieved. FBC Haemoglobin concentration 127...

Hi all, think I could do with someone who knows better than me having a look ple...

Galadriel1

•8 years ago

12 Replies

GP stopped my injections and referred me to the neurologist. How long before I can have another B12 test?

After thinking that my GP was great to acknowledge the fact that I need B12 shots every other day till no further improvement of my neurological symptoms, he...

After thinking that my GP was great to acknowledge the fact that I need B12 shot...

VickyB12

•8 years ago

18 Replies

Can't get more than 6 days between injections.

Hi, everyone. Great improvement since I started self injecting in August, but I can't get to more than 6 days between injections. Starts with a night of...

Hi, everyone. Great improvement since I started self injecting in August, but I ...

Hidden

•8 years ago

6 Replies

How right you are!

Just had my second loading dose of six, and starting to feel a little better, at last. Having been to see the new doctor, my fears, from people on here, were...

Just had my second loading dose of six, and starting to feel a little better, at...

greenbexy

•8 years ago

17 Replies

Anyone else have low B12 in pregnancy?

I'm in the last few weeks of pregnancy and i have just had my second b12 loading injection after blood tests revealed both low b12 and folate levels. My...

I'm in the last few weeks of pregnancy and i have just had my second b12 loading...

Cynicalunicorn

•8 years ago

27 Replies

Headaches and exhaustion after B12 jabs.

Goodness, I feel like a right whinger today ;) Basically, I've just finished loading doses, and about 4-6 hours after each jab I get a really bad headache and...

Goodness, I feel like a right whinger today ;) Basically, I've just finished loa...

topazrat

•8 years ago

20 Replies

Feeling worse

Hi I've been taking HydroxB12 nasal spray for about a week now and feel really dreadful So much so that I am considering stopping them . My neurological...

Hi I've been taking HydroxB12 nasal spray for about a week now and feel really d...

mully

•8 years ago

5 Replies

Getting Nowhere

Attended TIA on tuesday after nearly drowning in bath.Got a brain of a young person and a very strong heart and it wasnt a stroke But i do have spondylosis....

Attended TIA on tuesday after nearly drowning in bath.Got a brain of a young per...

may61

•8 years ago

4 Replies

Ear and tooth pain

I've had pain in my ear and teeth for years, along with numbness in the side of my face. I've had scans, ENT appointments, dentist check ups, antibiotics 'just...

I've had pain in my ear and teeth for years, along with numbness in the side of ...

topazrat

•8 years ago

3 Replies

Does anyone know anything about Myasthenia gravis and how it's treated

My uncle has just been diagnosed with Myasthenia gravis and I wondered if vitamins would help. Any information will be grateful. T I a

My uncle has just been diagnosed with Myasthenia gravis and I wondered if vitami...

TAB100

•8 years ago

4 Replies

How to mix a pure methylcobalamin powder.

Wanting to buy a pure methylcobalamin powder, but not sure of the process of how to mix it and use it, or where to source needles for a reasonable price. New...

Wanting to buy a pure methylcobalamin powder, but not sure of the process of how...

jbirder

•8 years ago

1 Reply

I'm New Here...

Good Morning, I was diagnosed with PA a few weeks ago (after years of hospitals thinking I had Colitis, then Crohns, then Cancer, then Depression etc). I had...

Good Morning, I was diagnosed with PA a few weeks ago (after years of hospitals ...

Moosey

•8 years ago

4 Replies

B12 new range evidence

I am currently seeing a hematologist and other medical experts to diagnose why I feel so ill. Non of them seem to recognise that B12 deficiency occurs until a...

I am currently seeing a hematologist and other medical experts to diagnose why I...

Alison-Thomas

•8 years ago

1 Reply

The video's (and some photo's) from the conference are now online!

Just follow this link and read the info on how to watch them:...

PAS-admin

Partner•8 years ago

4 Replies

nightmare year

Been a year of hell with my aneamia with 15 units of blood since May.

Sarah1679

•8 years ago

4 Replies

Going down the self injection route

On boxing day my cousins wife, a nurse in London, will show me how to do self injections. Do I ask for instruction re sub-cut or intramuscular please? I have...

On boxing day my cousins wife, a nurse in London, will show me how to do self in...

sharonmac99

•8 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2016

Subcut or intramuscular

Need Info/Support for U.S. Appeal

Lab Results - Need Advice

B12

Vitamin b12

Being passed from pillar to post - any ideas for expediting diagnosis and treatment?

Watch the conference as if you were there :)

Low b12

Painful Nails

tracking symptoms?.

Blood test results please advise

Help is this normal to feel dreed of heart attack

B12 injection

Advice needed

GP stopped my injections and referred me to the neurologist. How long before I can have another B12 test?

More videos from the conference are now online!

Can't get more than 6 days between injections.

How right you are!

Anyone else have low B12 in pregnancy?

Headaches and exhaustion after B12 jabs.

Feeling worse

Getting Nowhere

Ear and tooth pain

Does anyone know anything about Myasthenia gravis and how it's treated

How to mix a pure methylcobalamin powder.

I'm New Here...

B12 new range evidence

The video's (and some photo's) from the conference are now online!

nightmare year

Going down the self injection route

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