nightmare year: Been a year of hell... - Pernicious Anaemi...

Pernicious Anaemia Society

32,319 members23,535 posts

nightmare year

Sarah1679 profile image
4 Replies

Been a year of hell with my aneamia with 15 units of blood since May.

Written by
Sarah1679 profile image
Sarah1679
To view profiles and participate in discussions please or .
4 Replies
Gambit62 profile image
Gambit62Administrator

sorry to hear that. Do you know what is causing the blood loss? Presuming it is a blood loss and you are talking about an iron based anaemia.

Although this forum has the title anaemia in it, that is a bit of a misnomer as PA is actually an auto-immune disorder which leads to problems absorbing a particular vitamin - B12. This can cause a particular type of anaemia but not everyone on here is anaemic and although some also have iron based anaemias, many don't.

If you know what has been causing the iron based anaemia then you might be able to find a forum where people understand your particular condition better and can support you better.

Fennella02 profile image
Fennella02

Gosh. Poor you. I have chronic iron def Anemia - often severe but have managed to get by on just 2 units this year. Current HB is 74 which is manageable but iron is 5 and ferritin is 3. I suspect my B12 is down too as I have been taking iron for the last 6 weeks but it hasn't had much effect. Hope you can get on top of it soon. Clare x

19191919 profile image
19191919

Get well soon x

Sarah1679 profile image
Sarah1679

thank you, im having tests in the new year

Not what you're looking for?

You may also like...

Wheres my delivery

Has anyone had trouble with Apohealth? My order status hadn't changed since I ordered it just says...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them....