Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,968 members • 23,109 posts

All posts for November 2015

Support group

In Eastbourne Saturday 21st November 11am. eastbourne.pas@gmail.com

In Eastbourne Saturday 21st November 11am. eastbourne.pas@gmail.com

•8 years ago

Diagnosed with pernicious anaemia then taken off B12 jabs

Hi about 4 years ago I was diagnosed with the above, I had very low blood pressure and was sent for blood tests. Since then I had a serious of injections of...

Hi about 4 years ago I was diagnosed with the above, I had very low blood pressu...

•8 years ago

Cyanocobalamin for injection - where from?

Hi, After reading the FaceBook posting by the PAS about a paper describing a genetic mutation that affects activation of methylcobalamin, but not...

Hi, After reading the FaceBook posting by the PAS about a paper describing a ge...

•8 years ago

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Leigh

I wonder if there is anyone out there who can help....Im 46, have 2 kids (11&12) and 2 years ago started to become very breathless. Two years on and about 18...

I wonder if there is anyone out there who can help....Im 46, have 2 kids (11&12)...

•8 years ago

VitamB12

I'm writing this post as I'm discusted that my doctors who I've been registered with for 15 years.Have struck me off there practice due to one missed...

I'm writing this post as I'm discusted that my doctors who I've been registered...

•8 years ago

MMA and Hcy

I know that if MMA and Hcy are tested and the levels are high it can be an indicator of B12 levels. Is there any point getting these tested if I am taking B12...

I know that if MMA and Hcy are tested and the levels are high it can be an indic...

•8 years ago

Lithium

I read recently that small doses (such as 2mg daily) could help B12 get to cells. Does anyone know anything more about it? Thank you.

I read recently that small doses (such as 2mg daily) could help B12 get to cells...

•8 years ago

Self Injecting begun ..... and .... leg cramps.

Started self injecting 1 ml of cyanocobalamin last Tuesday, my first time. I was going to try an 'every other day' schedule but by the end of Saturday I began...

Started self injecting 1 ml of cyanocobalamin last Tuesday, my first time. I wa...

•8 years ago

Let down by Dr's and "Specialists" in NHS - Where to now ?

I have tried to keep this as brief as possible, however please bear with me as I feel let down by the NHS and I’m at the end of the road. My Grandfather and...

I have tried to keep this as brief as possible, however please bear with me as I...

•8 years ago

B12 level 154 and GP says this is normal!

Does anyone know where i can order B12 injections in the uk. I feel awful my folate is low and GP is dismissive and uninterested . Please help?

Does anyone know where i can order B12 injections in the uk. I feel awful my fol...

•8 years ago

Confused??

I've finished my loading doses 2 weeks ago and had an MRI on brain last week as dr wanted to check on headache I'd had for 6 weeks. Results came back ... Age...

I've finished my loading doses 2 weeks ago and had an MRI on brain last week as...

•8 years ago

Confused

I am terribly confused by B12 deficiency, iron deficiency anaemia and vit d deficiency. The reason being that my haemoglobin has gone up from 103 in June to...

I am terribly confused by B12 deficiency, iron deficiency anaemia and vit d defi...

•8 years ago

Recurrent mouth ulcers

Hi I keep getting mouth ulcers most weeks since i started my b12 spatone iron and b complex vitamins before taking these I rarely got mouth ulcers now its...

Hi I keep getting mouth ulcers most weeks since i started my b12 spatone iron an...

•8 years ago

Recurrent mouth ulcers

Hi I keep getting mouth ulcers most weeks since i started my b12 spatone iron and b complex vitamins before taking these I rarely got mouth ulcers now its...

Hi I keep getting mouth ulcers most weeks since i started my b12 spatone iron an...

•8 years ago

Be the first to reply

How long before B12 injections start to work?

Hi, I'm new to all this and basically just got diagnosed a couple of weeks ago with PA and I've also had iron deficiency anaemia for a good few year too. I'm...

Hi, I'm new to all this and basically just got diagnosed a couple of weeks ago ...

•8 years ago

Medical Second Opinion HDA Charity

Hi, I've mentioned this on a couple of threads but thought I'd post the details separately. So many posters in the PA forum seem to have difficulty getting a...

Hi, I've mentioned this on a couple of threads but thought I'd post the details...

•8 years ago

endocrinology

I wrote to my doctor about symptoms recurring if B 12 injections were less often than every two months, and she has referred me to an endocrinologist Does...

I wrote to my doctor about symptoms recurring if B 12 injections were less often...

•8 years ago

Tecfidera

Does any one know if Tecfidera depletes vitamin b12. I have multiple sclerosis and take 240 mg tab twice a day. I'm also self injecting Hydroxo once a week...

Does any one know if Tecfidera depletes vitamin b12. I have multiple sclerosis ...

•8 years ago

Too much Folate?

I have pernicious anaemia, B12 jabs every 8 weeks. My question is do I need to take 5mg folic acid every day. Also after having injection, I do not always...

I have pernicious anaemia, B12 jabs every 8 weeks. My question is do I need to t...

•8 years ago

B12 injection

Hi. I'm hoping for some advice please on purchasing b12 injections for self-administration. My reading is always at the low end of normal and my Dr is...

Hi. I'm hoping for some advice please on purchasing b12 injections for self-admi...

•8 years ago

B-amazing

Does anyone have any experience of a company called B-amazing. Either at their "Harley St" clinic or through their mail order sites?

Does anyone have any experience of a company called B-amazing. Either at their "...

•8 years ago

Took 5000mcg sublingual before blood test

My serum levels have never been above 600, usually hover around 400 after Dx with deficiency in 1995. I've been noncompliant with shots for a year but have...

My serum levels have never been above 600, usually hover around 400 after Dx wit...

•8 years ago

B12 injections

Hi Just wanted to know if anyone has ever ordered B12 from B-amazing ? How long did your order take to arrive ? Thankyou Shazza

Hi Just wanted to know if anyone has ever ordered B12 from B-amazing ? How l...

•8 years ago

I cant sleep pa problems depression & anxiety

Hi all, I would like some advice, my gp practice doesn't want to give me sleeping pills I have ventapac for , full amount given & amatriptaline 20mg b 4 bed,...

Hi all, I would like some advice, my gp practice doesn't want to give me sleepi...

•8 years ago

METHOTREXATE - New Meds

Hiya, my Rhem Dr has started me on 15mg Methotrexate, once a week, today, in addition to my other drug of Hydroxychloroquine 400mg daily. The...

Hiya, my Rhem Dr has started me on 15mg Methotrexate, once a week, today, in ad...

•8 years ago

Has anyone had experience of having Active b12/MMA test after taking antibiotics please?

Hi, apologies if you've read this on Thyroid site, typed it in earlier thinking I was on B 12 site, so here goes again! I've just finished taking a week of...

Hi, apologies if you've read this on Thyroid site, typed it in earlier thinking ...

•8 years ago

Can any one help me?

Hello ,I will try to make this as short as posible(!?) .. I have multiple autoimune issues ,SLE,Hashi's ,Sjogrens,APS ,fibro,+++++and multiple allergies and...

Hello ,I will try to make this as short as posible(!?) .. I have multiple autoim...

•8 years ago

Auto injector

Can I purchase an auto injector for use with Hydroxocobalamin for sef injecting and what size needles ect. would I need? Thank you.

Can I purchase an auto injector for use with Hydroxocobalamin for sef injecting ...

•8 years ago

Erosive gastritis and PA. Please advise re diet and medication!

Hi All, I have had PA for about 6 years and had a gastroscopy when first diagnosed. Recent barium swallow showed moderate gastric reflux and recent gastroscopy...

Hi All, I have had PA for about 6 years and had a gastroscopy when first diagnos...

•8 years ago

Blood test results - Very high folate, low B12, what does this mean?

Hi everyone, I'm suffering from severe fatigue, depression, insomnia and foggy brain for quite some time. My blood test results came back for my ferritin,...

Hi everyone, I'm suffering from severe fatigue, depression, insomnia and foggy...

•8 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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