I wonder if there is anyone out there who can help....Im 46, have 2 kids (11&12) and 2 years ago started to become very breathless. Two years on and about 18 months of trying to get to the bottom of things I am still struggling to get better. Its too long a story to write on a phone keypad but my latest development is this:
My GP believes I have iron deficiency anaemia because my Vit B12 level is average and my RDW is high (16.2%). Some of my results are extreme though eg ferritin 5ug/l (normal 22-332) serum iron 3.6umolL (normal 12.5-25). I am a coeliac (since birth) and have suffered from henoch schonlein age 6 (blood disorder). I have ALL the symptoms of pernicious anaemia but my GP says the antibody tests for it are 'difficult to arrange'? I struggle to breathe lately - and its worse when lying down. Does anyone know how I can find a haemotologist and go direct? I would rather pay a fee for all the tests and an expert analyser...otherwise I cant see my heart lasting. My GP wants to :
- put me on the pill to stop my periods
-put me on betablockers to regulate my heartrate
- give me iron sulphate
im allergic to all three so am very worried how this will pan out. The pill made me very ill, betablockers (a vvvv low dose) give me chest tightness and visual disturbances, and iron sulphate I believe gave me ulcers.
Any help would be much appreciated.