Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,058 members • 23,207 posts

All posts for November 2015

It feels like I'm getting sicker

I will probably never have an official PA diagnosis, but I'm a little worried that it means some of the common problems that tend to occur for PA patients...

I will probably never have an official PA diagnosis, but I'm a little worried t...

•9 years ago

Hematologist

I have read that if it is not clear what is causing B12 deficiency symptoms it is best to see a hematologist. What would they do exactly? If my doctor agrees...

I have read that if it is not clear what is causing B12 deficiency symptoms it i...

•9 years ago

B12 & calcium

I've read that too much B12 will deplete calcium levels in the body. If this is true how much is too much?

I've read that too much B12 will deplete calcium levels in the body. If this is ...

•9 years ago

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Daughter being tested

My daughter (27y) is having bloods for B12 next wed. She has classic symptoms. Doctor said she's tired because she has 2 baby boys but that in my opinion has...

My daughter (27y) is having bloods for B12 next wed. She has classic symptoms. ...

•9 years ago

Can Somebody Advise Me on a Safe Painkller with PA?

I'm hoping somebody can help me here. I have avoided painkillers for years due to low stomach acid. However, I now find myself in a position where I'm going to...

I'm hoping somebody can help me here. I have avoided painkillers for years due t...

•9 years ago

Help with results

Hello all, Hope someone can help, I've been ill for a number of years and have a wide range of symptoms including those of PA. Until recently my blood test...

Hello all, Hope someone can help, I've been ill for a number of years and have a...

•9 years ago

Neuropathy

Hi, I have neuropathy of the feet. I have taken most of the pills going for this. I have been having 10ml of morphine in the afternoon when it gets really bad....

Hi, I have neuropathy of the feet. I have taken most of the pills going for this...

•9 years ago

Official documentation to show doctor

Hi, I am looking for official documents to show my doctor to convince her to give me injections. I thought I read somewhere that if a patient has been...

Hi, I am looking for official documents to show my doctor to convince her to giv...

•9 years ago

Gastritis ?

I can only assume I have just suffered my first bout of gastritis. I was squatting whilst weeding in the garden during a couple of hours and began to feel...

I can only assume I have just suffered my first bout of gastritis. I was squatti...

•9 years ago

Methylcobalamin Nasal Spray

Has anyone tried Methylcobalamin nasal spray from B-Amazing? I was diagnosed with b12 deficiency about 10 years ago, unsatisfied with treatment from the NHS I...

Has anyone tried Methylcobalamin nasal spray from B-Amazing? I was diagnosed wi...

AutoimmuneAnnie

•9 years ago

I am new

good morning I am a new in this cite

good morning I am a new in this cite

•9 years ago

Diagnosed wit b12 deficiency and some weird symptoms.

Hello everybody. So, I was diagnosed with b12 deficiency about month ago, some of my symptoms fit quite well with b12 deficiency, for example, tingling,...

Hello everybody. So, I was diagnosed with b12 deficiency about month ago, some o...

•9 years ago

Self-treating with methylcobalamin

Hi. A few weeks ago I started to develop neurological symptoms (nominal aphasia, balance problems, inability to concentrate/focus, short term memory problems...

Hi. A few weeks ago I started to develop neurological symptoms (nominal aphasia,...

•9 years ago

Support Group in Eastbourne

A new support group will be meeting in Eastbourne on Saturday 21/11/15 at 11 am - 1pm. A group to share your experiences, knowledge and to be able to be...

A new support group will be meeting in Eastbourne on Saturday 21/11/15 at 11 am ...

•9 years ago

gp visit

Hi all , my gp apt yesterday with my son (age 22 )was abit of a waste of time she said all his bloods are normal and too try and eat more cereal , his serum...

Hi all , my gp apt yesterday with my son (age 22 )was abit of a waste of time sh...

•9 years ago

Have you read Martyn Hoopers' book? "What you need to know about Pernicious Anaemia and Vitamin B12 deficiency"

This book is undoubtedly the best on the suject of Pernicious Anaemia and Vitamin B12 deficiency! A MUST READ for us all. So clearly written, that lay-people...

This book is undoubtedly the best on the suject of Pernicious Anaemia and Vitami...

•9 years ago

Beginners Questions

Hi everyone, I have just been told today that my b12 levels are low, but I'm looking for some more information. My doctor said the average was between...

Hi everyone, I have just been told today that my b12 levels are low, but I'm l...

laurenbuchan1994

•9 years ago

Self injecting advice please

Hiya is it easy to self inject ? Im lucky so far with my b12 injections its just in case my luck runs out any advice please....

Hiya is it easy to self inject ? Im lucky so far with my b12 injections its jus...

•9 years ago

Shots

Hi Can anyone recommend a site to get b12 shots and needles please

Hi Can anyone recommend a site to get b12 shots and needles please

•9 years ago

b12 and hashimotos

hello everyone my b12 was tested in the summer and it came back as 113 so I had loading injections my parietal cell and intrinsic factor antibodies were...

hello everyone my b12 was tested in the summer and it came back as 113 so I had...

•9 years ago

B12 and Sugar

I was wondering if anyone who has been injecting B12 has run into any issues with blood sugar. My fasting glucose has always been normal but recently it has...

I was wondering if anyone who has been injecting B12 has run into any issues wit...

•9 years ago

No improvement on B12 IM.Am I doing something wrong?

I am taking B12 shots since 3 weeks now.I started with 500mcg IM x4 times a week.Took that for 2 weeks then started taking 1mg everyday,3 days ago.(1mg...

I am taking B12 shots since 3 weeks now.I started with 500mcg IM x4 times a week...

•9 years ago

Still Feeling Horrible - Help Please

I am so frustrated and don't know what to do. I was diagnosed as B12 deficient about 10 years ago, earlier this year with the help of this forum I started to...

I am so frustrated and don't know what to do. I was diagnosed as B12 deficient a...

AutoimmuneAnnie

•9 years ago

Need help

Can anyone help me to understand my blood results. Serum ferritin level 14.4ug/L (30.0-400.0 serum vitamin b12 level 314ngL (190.0-910.0) and serum folate...

Can anyone help me to understand my blood results. Serum ferritin level 14.4ug/L...

•9 years ago

First week of loading doses...M

Morning everyone ☺ Due to the support gained from my first post, here I am again... This site is more informative than my GP surgery. So here I am one week...

Morning everyone ☺ Due to the support gained from my first post, here I am agai...

•9 years ago

Government Petition for PA

Hi all - have started a Petition to ask for restrictions on B12 jabs to be removed I need 5 signatures for this to go live, could you all take a moment to cut...

Hi all - have started a Petition to ask for restrictions on B12 jabs to be remov...

•9 years ago

23andMe

Had the 23andMe test done. Does anyone who can interpret the results?

Had the 23andMe test done. Does anyone who can interpret the results?

•9 years ago

Wanted - B12 Specialist

My GP has finally told me to see a NHS specialist. I've seen specialists before (Neurologist / Biochemists), but no one recently. He would like to refer me,...

My GP has finally told me to see a NHS specialist. I've seen specialists before ...

•9 years ago

Is this plausible?

I have been slightly iron deficient anemic all my life. Recently i have got sick with a chest infection and was bed bound for about a week. However, after i...

I have been slightly iron deficient anemic all my life. Recently i have got sick...

•9 years ago

Where can I buy

Hi fellow sufferies, Looking for some information as to finding a reliable supply of B12 for self injection . Feel so worn out . My doctor says one...

Hi fellow sufferies, Looking for some information as to finding a reliable sup...

•9 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(76)

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