How often do you get your vit b12 inj... - Pernicious Anaemi...

Pernicious Anaemia Society
22,828 members16,081 posts

How often do you get your vit b12 injections?

diamck
diamck

just wondering how often you get your vitb12 injections. I have just started getting mine and I have a prescription for 3 monthly. My friend only needs them every year.

24 Replies
oldestnewest

After the initial loading dose of 6 injections over 2 weeks I'm then having mine every 3 months for ever. I'm only on my 2nd loading injection so not sure how I'm going to feel waiting 3 months.

It varies considerably. Some need them almost every day, others, like your friend have a 'top up' once a year.

As ever, the best advice is to 'listen' to your body which will tell you when you need another injection If that is more frequently than the doctors will let you have them, self-injection is an option.

I have never heard of anyone only needing them once a year. This is contrary to NICE guidelines. If your friend remains well on an annual top up this is good. But do monitor her symptoms and persuade her to go back and ask for at least 3 monthly if her symptoms-especially neurological ones-return as the damage caused by low b12 can be irreversible.

I am currently on a "trial" of having mine every six weeks, rather than waiting the full twelve weeks. I am due back to see my GP tomorrow to discuss how I'm feeling. On the whole I think it's been very helpful, I've had more energy, the tinnitus has been less noticeable, less numbness in my feet and hands and less mental confusion. MariLiz

Thank you for your replies. I suppose we are all individuals and what works for one will not suit another! I will wait and see how I go and will certainly return to Dr if I feel I need them more often

I get mine once a month.

diamck
diamck in reply to Margo

you look like a famous actress?

Had my loading doses two months ago, never felt better, however in desperate need of another dose and have 4 weeks to go :(

diamck
diamck in reply to rustylee75

what kind of symptoms are you having? I'm 6 weeks after my loading dose and so far so good apart from the tingling!

rustylee75
rustylee75 in reply to diamck

Hi,

Ive never had the tingling. However just general tiredness, very bad neck aches and general muscle aches. My sleep is fitfull again. I actually woke up for the first time in years feeling refreshed after my loading doses, but that's gone. My mental clarity and memory is going down hill again. My heart ectopic beats have returned(extra beat) which can lead to SVT`s. Everything was fantastic for around 6-8 weeks. :(

Lee

diamck
diamck in reply to rustylee75

That was my first improvement after my loading injections - waking up refreshed I cant remember when I ever did that! I'm just a bit anxious after being on this forum and reading other peoples experiences that 3 monthly injections isnt enough.. This morning I felt a little groggy which did pass but made me think if this was the start of me going downhill again!

rustylee75
rustylee75 in reply to diamck

Well fingers crossed it isnt.

I managed to get my next injection two weeks early(in next week). I spoke to my Doc who wants to take more bloods but from what I'm reading that wont do much good.

Im 40 and had this since my early 20`s. When diagnosed with underactive thyroid(as my family has) I thought that was the fix, but didnt help that much. I had a schilling test about 10 years ago and my absorption was low so was given 3 monthly injections(no loading), they helped but not for long so stopped taking them. Recently when on a holiday and came back tired, My b12 and b6 was low(low b6 after a sunny holiday!) and was this time given the loading (6) injections. Felt great, best in two decades but feel it slowly slipping away again. I hate feeling like this with what seems little help :(

But, if my doc declines monthly or two monthly injections, im going to have to find a way to self inject!

Oh, Im also Gluten intolerant, so suspect that's why I cannot absorb B12 because of the damage that has done.

Im so sure all these autoimmune issues such as Thyroid, Gluten and thus the B12 are all linked.

Lee.

Guidelines say doctor shouldn't retest b12 once jabs have started but testing your folates is good. Your b12 is bound to be high. Just gives docs excuse to reduce or stop jabs!

Hi,

I have a prescription of B12 which started off every three months, but the nurse told me laat time I could actually have them every 8 weeks. So worth asking if like me you need them more often. I can always tell when it's coming up to jab time!

Jean

diamck
diamck in reply to JayPer

what kind of symptoms do you have when your jabs are due

JayPer
JayPer in reply to diamck

More fatigue, brain fog, unable to concentrate, more dizziness. I don't get tingling etc. I use sublingual methylcobalamin in the last couple of weeks before the jab and that seems to help.

I was moved from 12 weeks to 8 weeks by my doc because I had neurological symptoms, but I inject myself weekly and use a patch once per week too.

rustylee75
rustylee75 in reply to LucyG82

Hi,

How do you find the patches? Do they work and if they do can you recommend any?

Lee.

LucyG82
LucyG82 in reply to rustylee75

I've only been using the patches for a few weeks but they seem to be helping.

I've been using the Living Nutritionals methylcobalamin patches from Amazon and they seem quite good. Oral B12 supplements don't seem to work for me at all, so I use a patch once a week along with weekly injections.

rustylee75
rustylee75 in reply to LucyG82

Thanks Lucy.

Found them on Amazon and ordered. Fingers crossed.

Mind you have a blood test next Monday so may hold off.

Lee.

All depends on how you absorb it. I found three months was too long and got them done on a 6 weekly basis. I have friends who are fine on three months but never heard of someone only having one a year?? Are you sure your friend has PA?

See how you feel and if you start getting tired and fortgetful just go back!

diamck
diamck in reply to Rosiered

Friend doesnt have Pa , I know she gets blood taken on a regular basis for other health issues.

Im in my 6th week after loading injections , still feeling good fingers crossed!

what dose do you take?

You may also like...