How often do you get your vit b12 inj... - Pernicious Anaemi...

Pernicious Anaemia Society

32,628 members23,990 posts

How often do you get your vit b12 injections?

diamck profile image
23 Replies

just wondering how often you get your vitb12 injections. I have just started getting mine and I have a prescription for 3 monthly. My friend only needs them every year.

Written by
diamck profile image
diamck
To view profiles and participate in discussions please or .
Read more about...
23 Replies
Vicki-s profile image
Vicki-s

After the initial loading dose of 6 injections over 2 weeks I'm then having mine every 3 months for ever. I'm only on my 2nd loading injection so not sure how I'm going to feel waiting 3 months.

Hypopotamus profile image
Hypopotamus

It varies considerably. Some need them almost every day, others, like your friend have a 'top up' once a year.

As ever, the best advice is to 'listen' to your body which will tell you when you need another injection If that is more frequently than the doctors will let you have them, self-injection is an option.

sweetnessandlight profile image
sweetnessandlight in reply toHypopotamus

I have never heard of anyone only needing them once a year. This is contrary to NICE guidelines. If your friend remains well on an annual top up this is good. But do monitor her symptoms and persuade her to go back and ask for at least 3 monthly if her symptoms-especially neurological ones-return as the damage caused by low b12 can be irreversible.

MariLiz profile image
MariLiz

I am currently on a "trial" of having mine every six weeks, rather than waiting the full twelve weeks. I am due back to see my GP tomorrow to discuss how I'm feeling. On the whole I think it's been very helpful, I've had more energy, the tinnitus has been less noticeable, less numbness in my feet and hands and less mental confusion. MariLiz

diamck profile image
diamck

Thank you for your replies. I suppose we are all individuals and what works for one will not suit another! I will wait and see how I go and will certainly return to Dr if I feel I need them more often

Margo profile image
Margo

I get mine once a month.

diamck profile image
diamck in reply toMargo

you look like a famous actress?

rustylee75 profile image
rustylee75

Had my loading doses two months ago, never felt better, however in desperate need of another dose and have 4 weeks to go :(

diamck profile image
diamck in reply torustylee75

what kind of symptoms are you having? I'm 6 weeks after my loading dose and so far so good apart from the tingling!

rustylee75 profile image
rustylee75 in reply todiamck

Hi,

Ive never had the tingling. However just general tiredness, very bad neck aches and general muscle aches. My sleep is fitfull again. I actually woke up for the first time in years feeling refreshed after my loading doses, but that's gone. My mental clarity and memory is going down hill again. My heart ectopic beats have returned(extra beat) which can lead to SVT`s. Everything was fantastic for around 6-8 weeks. :(

Lee

diamck profile image
diamck in reply torustylee75

That was my first improvement after my loading injections - waking up refreshed I cant remember when I ever did that! I'm just a bit anxious after being on this forum and reading other peoples experiences that 3 monthly injections isnt enough.. This morning I felt a little groggy which did pass but made me think if this was the start of me going downhill again!

rustylee75 profile image
rustylee75 in reply todiamck

Well fingers crossed it isnt.

I managed to get my next injection two weeks early(in next week). I spoke to my Doc who wants to take more bloods but from what I'm reading that wont do much good.

Im 40 and had this since my early 20`s. When diagnosed with underactive thyroid(as my family has) I thought that was the fix, but didnt help that much. I had a schilling test about 10 years ago and my absorption was low so was given 3 monthly injections(no loading), they helped but not for long so stopped taking them. Recently when on a holiday and came back tired, My b12 and b6 was low(low b6 after a sunny holiday!) and was this time given the loading (6) injections. Felt great, best in two decades but feel it slowly slipping away again. I hate feeling like this with what seems little help :(

But, if my doc declines monthly or two monthly injections, im going to have to find a way to self inject!

Oh, Im also Gluten intolerant, so suspect that's why I cannot absorb B12 because of the damage that has done.

Im so sure all these autoimmune issues such as Thyroid, Gluten and thus the B12 are all linked.

Lee.

sweetnessandlight profile image
sweetnessandlight in reply torustylee75

Guidelines say doctor shouldn't retest b12 once jabs have started but testing your folates is good. Your b12 is bound to be high. Just gives docs excuse to reduce or stop jabs!

JayPer profile image
JayPer

Hi,

I have a prescription of B12 which started off every three months, but the nurse told me laat time I could actually have them every 8 weeks. So worth asking if like me you need them more often. I can always tell when it's coming up to jab time!

Jean

diamck profile image
diamck in reply toJayPer

what kind of symptoms do you have when your jabs are due

JayPer profile image
JayPer in reply todiamck

More fatigue, brain fog, unable to concentrate, more dizziness. I don't get tingling etc. I use sublingual methylcobalamin in the last couple of weeks before the jab and that seems to help.

LucyG82 profile image
LucyG82

I was moved from 12 weeks to 8 weeks by my doc because I had neurological symptoms, but I inject myself weekly and use a patch once per week too.

rustylee75 profile image
rustylee75 in reply toLucyG82

Hi,

How do you find the patches? Do they work and if they do can you recommend any?

Lee.

LucyG82 profile image
LucyG82 in reply torustylee75

I've only been using the patches for a few weeks but they seem to be helping.

I've been using the Living Nutritionals methylcobalamin patches from Amazon and they seem quite good. Oral B12 supplements don't seem to work for me at all, so I use a patch once a week along with weekly injections.

rustylee75 profile image
rustylee75 in reply toLucyG82

Thanks Lucy.

Found them on Amazon and ordered. Fingers crossed.

Mind you have a blood test next Monday so may hold off.

Lee.

Rosiered profile image
Rosiered

All depends on how you absorb it. I found three months was too long and got them done on a 6 weekly basis. I have friends who are fine on three months but never heard of someone only having one a year?? Are you sure your friend has PA?

See how you feel and if you start getting tired and fortgetful just go back!

diamck profile image
diamck in reply toRosiered

Friend doesnt have Pa , I know she gets blood taken on a regular basis for other health issues.

Im in my 6th week after loading injections , still feeling good fingers crossed!

ackalove profile image
ackalove

what dose do you take?

Not what you're looking for?

You may also like...

How frequently do you get B12 injections?

Hi everyone, I've been reading around on here and it got me wondering how often people get their...
LauraF1 profile image

Vit B12 Injections

Hello I am a newbie here. My vitB12 is 1100 but I have peripheral neuropathy and iron def anaemia...
floraldaisy profile image

where do you get your b12?

So I finally seen a private doctor, it was a great result :) I am starting on injections on friday...
nichola79 profile image

Starting B12 injections, how often?

Hello everybody, I will be receiving my first B12 injection next week. My blood test results were...
Sotired3 profile image

How often do you inject?

Hi folks, I’ve been SI since May last year and was trying to reduce the amount. Just to see if I...
AmyG6500 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.