Pernicious Anaemia Society
15,074 members10,663 posts

Can You Believe I Got Lucky?

I saw my GP this week, armed with documents re difficulties in diagnosing and treating B12 deficiency. I marched into his room, put the file down on his desk and immediately told him I had been so ill with the symptoms of B12 deficiency that I'd had no choice other than to self-inject with hydroxocobalamin. I was expecting an argument, but he just asked me if this had worked and had the symptoms gone and when I said they had, he replied that if I could manage this myself he was all in favour of me carrying on and I wouldn't have to go to his rooms for a monthly injection. I could hardly believe my luck! As I got up to go, he asked me if he could keep the document I had printed out. I must say he is a very clued up doctor, so I was more than impressed that he wanted the document to see if there was anything in there he might no actually know. I know not everybody gets this lucky and I have found that self-treating can be hugely expensive, but at least I'm alive and feel so much better now.

7 Replies

Yeah! That's great.

Any chance your doc could prescribe the HydroxoCB to help with the costs?


That's a good question, fbirder! I will ask next time I see him.


Hey, that is such wonderful news! Well done. Isn't it such a relief to find someone who is at least mildly supportive. You give us all encouragement to hear this story.


they sure don't mate. and well done you. when my serum levels came back 'normal' my GP said ''well we can count that one out' (i had classic symptoms). when i mentioned that may have lots of b12 in my blood stream, but not enough in my cells/tissues, she commented ''i'v never heard of that''. i was too exhausted and brain fogged to explain.


Agreed, hidihi. I've been suffering from B12 deficiency symptoms for the best part of 4 years. I changed doctors, but that didn't help much. Both ignored the symptoms and went by the blood test results instead. Seems to me that they just can't think outside the square.


Can anyone tell me where it's best and safest to buy the HydroxoBC


So lovely to hear about your treatment and hope this is the start of better health for you!


You may also like...