I had a gastric bypass three years ago, lost over 10 stone and have taken multi vitamins and minerals ever since. I have never had any follow up from either the bariatric team and my GP, and until now did not realise the damage defeciencies can cause!
I have had a very sore tongue and mouth, to the point of not wanting to eat or drink, numb tingling fingers, whole body very cold to touch, look like a ghost, nausea and vomiting, muscle spasms, extreme fatigue and muscle pain, very breathless, forgetfulness, dry skin and now feel the muscles in the tops of my legs are wasting as I have no strength in them
I am now having to get a wheelchair as I can barely walk without passing out from lack of breath, shaky legs and spinning head. I also have very low blood pressure and hypo's, neither which I have ever suffered before. I shake nearly all day. Blood pressure has dropped to 60/40 and glucose levels are 3 to 4 (even after eating).
My B12 level is 300, my hormone levels are abnormal and one thyroid test has come back low. I too suffer from endo (last 12 years) and have severly low Vit D levels.
I was admitted to hospital with dehydration, exhaustion and a kidney infection. After explaining my symptoms, the Dr told me all my bloods were normal and they would send a pyhscy to see me !! He believed it was all in my head and nothing to do with my body (since the bypass) not being able use B12 very well. I was sent home in a wheelchair, holding a sick bowl and have now found out my kidney and white blood cells actually got worse while I was in there as I was only given one days antibiotics.
Luckily my GP visited me at home on Friday and listened to my concerns regarding B12, a nurse came soon after to take blood. My GP has agreed to start weekly B12 injections which a District Nurse will come to my home to do, and I have been referred to a biologist.
Does anyone know if a biologist would know about active B12, rather than reading a normal blood test ? My GP said he is very good at diagnosing rare problems.
I am very happy that my GP is open minded in trying B12 jabs as if I do not need them I believe you wee the excess out. But I am petrified that I have now lost the use of my legs as they are not improving, they sadly feel worse. Has anyone else suffered with muscle damage/not being able to walk and did the strength come back? I am preying the strength will come back as I have 3 boys to look after and at the moment am bedridden. My poor husband is run ragged, works full time in London and is trying to look after the children, house and cooking. My parents also help, but I am feeling increasingly guilty at not being able to do anything. This has lasted for at least two months and I really hope any damage is reversible!!
Thanks in advance for any help or replies xx