Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for April 2017

GAP reducing methotrexate

I have had this disease for over 9 years and thankfully been in remission for a number of years. My consultant suggested that I should try and reduced my...

I have had this disease for over 9 years and thankfully been in remission for a ...

•7 years ago

Hippy issues

I have hip problems, one more than the other, I'm being referred to a consultant with, I think, the inevitable hip replacement, because it's having a big...

I have hip problems, one more than the other, I'm being referred to a consultant...

•7 years ago

Don't forget to order any prescriptions before the Easter bank holiday.

Don't forget to order any prescriptions before the Easter bank holiday.

Don't forget to order any prescriptions before the Easter bank holiday.

Moderator•7 years ago

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Churg Strauss syndrome that caused Mononeuritis multiplex

Last year November , I was diagnosed to have Churg Strauss syndrome . I have been on Prednisone since then, from 45mg to now 10mg. I was given Gabapentin since...

Last year November , I was diagnosed to have Churg Strauss syndrome . I have bee...

•7 years ago

ANCA POSITIVE

I FIRST HAD A RASH I WENT TO A DERMATOLOGIST AND SAID THAT IT WAS URTICARIA HAD A SKIN BIOPSY AND MORE BLOOD WORK AND CAME OUT IN BIOPSY THAT IT WAS VASCULITIS...

I FIRST HAD A RASH I WENT TO A DERMATOLOGIST AND SAID THAT IT WAS URTICARIA HAD ...

•7 years ago

Long awaited First rheumatology Appointment 9.30am Elaine Smith- Cheltenham General Hospital

Hi everyone, can't believe it's been 4months to see this lady consultant. I'm not nervous as I've been made aware she's ever so compassionate:) Im not sure...

Hi everyone, can't believe it's been 4months to see this lady consultant. I'm no...

•7 years ago

Care stopped by consultant without reason

Anyone ever been removed by a consultant without any notification? I've been chasing them for weeks and been ignored. Turns out they told my GP 3 months ago...

Anyone ever been removed by a consultant without any notification? I've been ch...

•7 years ago

New to all of this....

Hi everyone. I still feel relatively new to the Vasculitus world but I am hoping this group will help me understand it just that bit more. I was diagnosed...

Hi everyone. I still feel relatively new to the Vasculitus world but I am hoping...

•7 years ago

Vocal cord and airway

Hi does anyone have GPA until now only affecting Vocal cords and swelling to airway with Rasping voice ....It's a Recent diagnosis and wondering if anyone has...

Hi does anyone have GPA until now only affecting Vocal cords and swelling to air...

•7 years ago

Hospital Time

lfu2, 71 year old male with Wegener's Time... We have all heard of time... Summertime, Greenwich Mean Time, local time, international time, sidereal...

lfu2, 71 year old male with Wegener's Time... We have all heard of time... Summ...

•7 years ago

New to this Community

I am new to this group but have been on other groups regarding vasculitis for a few years helping others with advice and support..... I am 54 years, I had PAN...

I am new to this group but have been on other groups regarding vasculitis for a ...

•7 years ago

Steroid shots suck even just one. I feel so bloated even 4 day's later. I'm miserable

I was looking for information on steroid shots and the after affects. My stomach hurts and is so bloated after one shot in my hip. Don't know the dosage but...

I was looking for information on steroid shots and the after affects. My stomac...

lauraoneillsteele

•7 years ago

Pan vasculitis

Hi ... does anyone have pan vasculitis?? Whats your symptoms ?? How many years do u have it? Please help

Hi ... does anyone have pan vasculitis?? Whats your symptoms ?? How many years d...

•7 years ago

EGPA/Churg-Strauss? New Member, recent Diagnosis

Hi All- I'm new to the community. is there anyone else here diagnosed with Eosinophilic Granulomatosis Polyangiitis (EGPA)/Churg-Strauss? I received my...

Hi All- I'm new to the community. is there anyone else here diagnosed with Eosin...

•7 years ago

Nose bleed this A.M?

I have been told Wegeners has been mis diagnosed but the fear is here. My nose has gotten elastic feeling at the tip and sides of nares. The inside of my nose...

I have been told Wegeners has been mis diagnosed but the fear is here. My nose h...

•7 years ago

Folic acid

Hi, just wondering if anyone has been prescribed folic acid, I had blood tests on Wednesday and received a phone call from surgery to ask me to pick...

Hi, just wondering if anyone has been prescribed folic acid, I had blood tests o...

•7 years ago

Google Annalytics Vasculitis UK website March 1st - March 31st 2017

Google Analytics Vasculitis website March 1st - March 31st 2017 for those with an interest 26,167 users 66,634 pages viewed Average time 2 mins 4 seconds...

Google Analytics Vasculitis website March 1st - March 31st 2017 for those with a...

Moderator•7 years ago

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Totally frustrated!!!!!!

Well four years down the line, I'm still battling to understand my condition. Totally fed up with people telling me what I can see and hear, they don't seem to...

Well four years down the line, I'm still battling to understand my condition. To...

•7 years ago

A Reflective View - Vasculitis Patient Symposium March 2017

A reflective view in photographs just follow this link to see a selection of photos taken at the recent Vasculitis Patient Symposium...

A reflective view in photographs just follow this link to see a selection of pho...

Moderator•7 years ago

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Male osteoporosis sufferer aged 75

Diagnosed after two spinal fractures and loss of height. Now on Denosumab injections and have been for about 4 years. I have lost about 4" in height and the...

Diagnosed after two spinal fractures and loss of height. Now on Denosumab inject...

•7 years ago

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