I am new to this group but have been on other groups regarding vasculitis for a few years helping others with advice and support.....
I am 54 years, I had PAN when I was 21 years and went into complete remission after 5 years. In 2013 I was diagnosed with GPA. I relapsed again in 2016 and struggled to get it back under control. 7 months later I am now back under control, but I think it may have attacked my lungs again. I go for lung scan in June 2017 and bone density checks.
I'm currently on prednisolone, imuran, crestol, fosavance, Vit D and calicum. I've had rituximab x3 which helped to reduce my steriods.
Symptoms for both PAN and GPA were similar, but the only difference being that PAN affected my kidneys and GPA is affecting my lungs and respiratory system. Main symptoms were joint pains in fingers and feet gradually affecting my knees and made it painful to get out of bed and down the stairs. I also had painful and weeping nodules on my elbows, loss of appetite and weight loss.