Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for September 2015

The Wellcome Trust is exploring what patients, families and carers think about different organisations accessing health data.

This meeting will be held in Sheffield in October, just follow the link below for more details...

This meeting will be held in Sheffield in October, just follow the link below fo...

Moderator•9 years ago

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Prednisolone

I have just had / having a flare and as it is affecting my sinuses have been prescibed antibiotics by my Rhuemy who I rang for advice, I was taking these for...

I have just had / having a flare and as it is affecting my sinuses have been pre...

•9 years ago

Tooth extractions

Hi would just like some advice, I have WG taking Pred,Methotrexate, Rituximab and lots of other medications. I have not got very good teeth and the whole of...

Hi would just like some advice, I have WG taking Pred,Methotrexate, Rituximab an...

•9 years ago

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Advice on pain & difficulties when swallowing

I'd love some advice.... I suffer with my sinuses and have sjorgrens as well as GPA/Wegeners and my throat is so very dry. I make sure I drink plenty...

I'd love some advice.... I suffer with my sinuses and have sjorgrens as well as...

•9 years ago

Takayasu or GCA.

Hi. I have been diagnosed with GCA of the Aorta. Can anyone tell me the difference between this and Takayasu? The signs, symptoms and treatment sound the...

Hi. I have been diagnosed with GCA of the Aorta. Can anyone tell me the differe...

•9 years ago

Difficulty obtaining Methotrexate?

Hi, I'm posting on behalf of my sister who has been prescribed Methotrexate for what was initially thought to be PMR but which has now been classified as RA....

Hi, I'm posting on behalf of my sister who has been prescribed Methotrexate for ...

•9 years ago

dust exposure and wegeners

Hello everyone i am very much interested in gathering as much imformation of people with wegeners / renal failure that might have been exposed to any form of...

Hello everyone i am very much interested in gathering as much imformation of peo...

•9 years ago

Doctors have found checklists are the best method to avoid missing serious illness. I'm suffering the effects of misdiagnosed Giant Cell Art

ertitis due to lack of sufficient prednisolone to protect my arteries from damage, even though I had correctly diagnosed myself. I looked up the British...

ertitis due to lack of sufficient prednisolone to protect my arteries from damag...

•9 years ago

Flu Vaccination Time

Hi folks, it's that time of year when we have to start thinking about flu jabs and the government have issued their vaccination advice (see the links below)....

Hi folks, it's that time of year when we have to start thinking about flu jabs a...

Volunteer•9 years ago

Update for the Rare Disease Network for Wales Meeting October 20th.

The rare disease network has been formed to engage patients, families and patient organisation representatives in the work that Rare Disease UK is undertaking...

The rare disease network has been formed to engage patients, families and patien...

Moderator•9 years ago

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The Next New Carer's Support Group Meeting - Meriden, near Coventry, November 28th 2015

The next new "Carers" group in Meriden, Coventry, is having its inaugural meeting on 28th November, 2015. This informal meeting, with food, will take place at...

The next new "Carers" group in Meriden, Coventry, is having its inaugural meetin...

Moderator•9 years ago

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Osteoarthritis and Gout

Hello All, Well, as I don't EVER do things by half, I've recently managed to "acquire" Osteoarthritis AND Gout. Neither of which I would wish on my worst...

Hello All, Well, as I don't EVER do things by half, I've recently managed to "a...

•9 years ago

Waiting on diagnose ..

Hi. I'm a newbie to your forum and this is my first post . For the last 4 months I have been breaking out into urticaria welts on legs and few on arms when I...

Hi. I'm a newbie to your forum and this is my first post . For the last 4 months...

•9 years ago

help.

I was diagnosed with microscopic polangitis, Anca positive in 2007. I have been in remission on a low dose of steroids and azathioprine since. I had a relapse...

I was diagnosed with microscopic polangitis, Anca positive in 2007. I have been ...

•9 years ago

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