I'd love some advice....
I suffer with my sinuses and have sjorgrens as well as GPA/Wegeners and my throat is so very dry. I make sure I drink plenty throughout the day, and night.
I went to my GP about a month ago and said my sinuses were painful and the top of my nose, inside, and that I was having trouble swallowing as it is very painful, in fact I had almost died twice when eating a sandwich and it got stuck at the back of my throat and I couldn't breath (no exageration) also my jaw joints are very painful especially if I eat anything crunchy.
He told me that my dentist could do me a referral to a specialist next time I saw him and I am to mention the jaw pain to him, and that sinuses 'can't be painful unless there is an infection' which I don't have. He arranged a blood test and his secretary rang me a couple of days later to say they are fine.
It's hard to explain but I'll try... the roof of my mouth at the back (soft palate?) is slightly puffy on my right side and the whole of this area hurts alot when I swallow and aches the rest of the time and the roof of my mouth feels hot to me. When I swallow my neck hurts inside/throat and a clunking occurs - I can't describe it any other way - around the adam's apple area on my left side. This keeps me awake at night as every time I swallow I wake up with the pain.
I also notice that my muscles are cramping up and painful if I sit then start to move around, they settle quickly it lasts only a few seconds but is very cruel and some of my joints especially in my arms and hands and neck are painful and the muscles in my lower arms are painful.
I am taking thyroxin, plaquenil, anti-inflammatories and paracetamol.
I'm going back to see a different GP next week if I can (he also has rheumy interest) and am due to see the specialist (Dr Davidson) in October any questions, advise or thoughts would be welcome.