Well, as I don't EVER do things by half, I've recently managed to "acquire" Osteoarthritis AND Gout. Neither of which I would wish on my worst enemy!
After 5 weeks of an extremely painful knee I've now started with my (2nd) bout of gout (in my toes). I've been given Colcocine (hopefully I've spelt it correctly) which helps but only slightly. This is the 2 bout of Gout in as many months. I'm now virtually housebound because I can't walk or drive. π’
Does anyone else suffer with these conditions? Are they a common in people with Vasculitis? How do you cope? Along with all my other Vasculitis symptoms, this is really starting to get me down. My very sporadic social life is dwindling further down as I can't join in with outings etc.
I just wanted some (perverse!) reassurance that I'm not on my own!
Sorry for the moaning style of this letter, hopefully it hasn't ruined your Monday! π¬
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HiveMind
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I have had similar complaints, firstly diagnosed as tendonitis (By GP), then as false gout by rheumy consultant while I thought it was more akin to Tenosynovitis which was confirmed by another consultant as Migratory Acute Tenosynovitis.
So together with Rheumatoid vasculitis, mono neuritis multiplex and now Migratory Acute Tenosynovitis I'm having a jolly old time of it too.
It appears to be all connected to the underlying cause of vasculitis per se.
So far, apart from some seriously painful episodes in May/June this year it seems to have passed with no change or additions to my medications apart from a temporary increase of Preds.
So there is always hope that it will get better for you too.
Have you had the diagnosis confirmed by aspiration of joint fluid? Or is it just based on a high blood uric acid level? There are two manifestations of gout - gout is caused by monosodium urate monohydrate crystals; pseudogout is caused by calcium pyrophosphate crystals and is more accurately termed calcium pyrophosphate disease. Without aspiration you don't know which it is.
Chicken and egg here though:
"Patients with gout, particularly women, are at increased risk for vascular disease, according to a retrospective cohort study of 8386 patients with gout and 39,766 matched controls. Multivariate analysis showed that women with gout had a 25% increased risk for any vascular event compared with women without gout (hazard ratio [HR], 1.25) and increased risks for any coronary heart disease (HR, 1.25) and peripheral vascular disease (HR, 1.89)."
Someone else on one of the PMR/GCA forums was saying they had gout but I can't remember who it was now - but there are others BB!!!!
I've only been diagnosed because of an X-ray. No biopsy or Uric acid test.
Everyone just seems to be content to take it as read that the X-ray shows (early stage) osteoarthritis. Should I push for a joint biopsy and/or a Uric acid test?
I already have vascular issues; my heart was damaged by the CSS. π
Allopurinol is to reduce the serum urate level - but they suggest it only makes sense if you get repeated episodes on a frequent basis. There are a few things that can trigger isolated attacks - so they need sorting out.
The article recommends some reading matter and gives links for the gout society and ARC.
Is that with just a single joint affected by gout?
In the early days of PMR when I stood up after sitting for a while my feet felt as if I was walking on a mixture of broken glass and sharp gravel! Quite a few people have mentioned similar experiences.
Yes, just a single joint, my toe (the one next to my big toe). To be perfectly honest I'm completely baffled as to whether it is actually gout and not osteoarthritis (I have osteoarthritis in my knee - same leg). How do I tell the difference?
Joint aspiration and blood urate levels are a good start if they haven't been done. I do get fed up with doctors saying it's this that or the other without using the diagnostic facilities available to them when there are a few things it could be. Darn them - they don't have x-ray eyes even if they think they do.
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