Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,757 posts

All posts for March 2012

The Spoon Theory written by Christine Miserandino

This has popped up on another Vasculits support group wall, (from Jim, helpful as always) it has appeared on the Vasculitis-uk fb wall before too but I thought...

This has popped up on another Vasculits support group wall, (from Jim, helpful a...

John_Mills

Volunteer•12 years ago

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Vasculitis and work

I've recently been diagnosed with vasculitis WG and I'm in sick leave since then .iv been discharged but I still feel unwell ( fatigue and pain ) . I just...

I've recently been diagnosed with vasculitis WG and I'm in sick leave since then...

Abdul

•12 years ago

3 Replies

This is a thank you blog for Barry and Jayne Coulson

This morning we have received a 2 cheques from Barry and Jayne Coulson to the value of £1000. They raised this in sponsorship on the Mary Coulson Memorial Walk...

This morning we have received a 2 cheques from Barry and Jayne Coulson to the va...

John_Mills

Volunteer•12 years ago

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Candy is running the 28th Hastings Half Marathon on Sun 25th March 2012 and also running the Ashford District 10K on Sun 18th March 2012

Candy is running for the Hastings half marathon 13.1 miles to raise money for Vasculitis UK in the memory of Clare Grossman, a former Ashford AC sadly passed...

Candy is running for the Hastings half marathon 13.1 miles to raise money for Va...

John_Mills

Volunteer•12 years ago

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Vasculitis

Iv just been diognosed with vasculitis . Doctor Put me on 3000 mg mycophenolate to be taken 3 tablets at morning and 3 at night and 80 mg prednisolone . I...

Iv just been diognosed with vasculitis . Doctor Put me on 3000 mg mycophenolate ...

Abdul

•12 years ago

12 Replies

do i have wg

was told i had wg 2 years ago no treatment was given since then i have constant headach neck pain and weeks when im really tierd im con fused as to weather i...

was told i had wg 2 years ago no treatment was given since then i have constant...

carole1960

•12 years ago

5 Replies

swellings on my arm with burning feeling, pain and numbness

I am having problems mostly with my left arm from my neck to my fingers. It started with weird sort of semi hard swellings firstly on the top of my wrist about...

I am having problems mostly with my left arm from my neck to my fingers. It star...

sanromar

•12 years ago

1 Reply

Marathon Blog 5

My name is Jamie Flanagan. This year I'm going to be running in the Rome, Dundee and Berlin Marathon's raising money for Vasculitis UK. I am a Wegener's...

My name is Jamie Flanagan. This year I'm going to be running in the Rome, Dundee...

jimdrum

•12 years ago

2 Replies

After an appeal I was re awarded DLA at the highest rate for mobility but my care component has been reduced to the lowest rate.

Greatfull as I am to be able to get another car, my last one was repossed because there was a gap of 3 months between the end of the last award and the...

Greatfull as I am to be able to get another car, my last one was repossed becaus...

Mumito66

•12 years ago

4 Replies

Vasculitis UK Annual General Meeting Sunday May 13th at 12.15pm Novotel, Long Eaton. Guest speaker Dr Mike Venning.

Guest Speaker Dr Mike Venning Consultant Renal Physician at Manchester Royal Topic:- Coming Together:- patients, clinicians and researchers. Light buffet...

Guest Speaker Dr Mike Venning Consultant Renal Physician at Manchester Royal Top...

John_Mills

Volunteer•12 years ago

5 Replies

Latest Newsletter from the Benefits and Work website March 2012

DLA high rate care and high rate mobility on initial claim “This award really has changed my life. I can't believe it happened so fast, either - I thought...

DLA high rate care and high rate mobility on initial claim “This award reall...

John_Mills

Volunteer•12 years ago

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stopping azathrioprine

just wondering if anyone else who has been on azathrioprine been told to stop taking it due to raised bilirubin levels? Got taken off it last week due to...

just wondering if anyone else who has been on azathrioprine been told to stop ta...

haze93

•12 years ago

10 Replies

Newly diagnosed with leukocytoclastic vasculitis

Not really sure what questions I want to ask. Feeling pretty calm after finally being diagnosed and knowing it wasn't all in my head. After having a...

Not really sure what questions I want to ask. Feeling pretty calm after finally ...

Fresita

•12 years ago

10 Replies

Living with HUVs Sarah's blog Sarah has Hypocomplementic Urticarial Vasculitis

http://sarahjh2004-livingwithhuvs.blogspot.com/#!/

John_Mills

Volunteer•12 years ago

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rhituximab

can anyone answer me this. i was diagnosed with wg last year my kidneys went to 14 per cent,had cyclo and they improved to 60 per cent ,i was then put on...

can anyone answer me this. i was diagnosed with wg last year my kidneys went to ...

quinnster

•12 years ago

2 Replies

Changes to contribution-based Employment and Support Allowance

http://www.direct.gov.uk/en/Nl1/Newsroom/DG_201237

John_Mills

Volunteer•12 years ago

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Vasculitis-uk would like to wish Jamie Good luck for his Marathon in Rome on the 18th of this month.

http://www.justgiving.com/jamie-flanagan

John_Mills

Volunteer•12 years ago

1 Reply

Vasculitis uk just wanted to say thank you to "Team Clare" for all the fundraising and marathons/walks completed this last year.

Also good luck to Janine who is running in the London Marathon in April http://www.justgiving.com/JANINE-EMMA-BROWN0...

Also good luck to Janine who is running in the London Marathon in April http:...

John_Mills

Volunteer•12 years ago

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Vasculitis-UK just want to say Good luck and Thank you to "Team Dickinson" running in the Reading Marathon in 3 weeks!!

http://www.justgiving.com/Felix-Dickinson http://www.justgiving.com/Ben-Winston http://www.justgiving.com/AtalantaDickinson...

http://www.justgiving.com/Felix-Dickinson http://www.justgiving.com/Ben-Winston...

John_Mills

Volunteer•12 years ago

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When the company you had worked for, nine years plus, decide to "Terminate" your employment on the grounds of capability. What to do next?

They have seen letters from GP and Specialist. But have taken the word of an Occupational Health Specialist Doctor instead following two meetings with them.

They have seen letters from GP and Specialist. But have taken the word of an Occ...

MrSteve

•12 years ago

8 Replies

Follicular lymphoma NH. WBCs ~56 . Acceptable range 4-11.post Rituxin(R) First cycle WBCs ~4.5. Post second cycle (R) WBCs 35. What's wrong?

Ijaz

•12 years ago

2 Replies

Anyone else here with Vasculitis related heart conditions ?

Hi everyone, I had a heart attack just over two years ago and luckily the heart consultant had the foresight to drag in a whole raft of other specialists to...

Hi everyone, I had a heart attack just over two years ago and luckily the hea...

RichardE

Volunteer•12 years ago

14 Replies

My MPA Story

I have just read the Question what kind of Vasculitis have I? It sounded a lot like my own experience but I would not like to say it is the same diagnosis as...

I have just read the Question what kind of Vasculitis have I? It sounded a lot l...

LynneJ

Vasculitis UK•12 years ago

10 Replies

Vasculitis...what type do I have?

Firstly, I didnt realize there was people that I could relate to and talk to as my mother came by this site and showed it to me and I think its fantastic....

Firstly, I didnt realize there was people that I could relate to and talk to as ...

chemicoil

•12 years ago

7 Replies

Overcoming reading problems due to cerebral vasculitis

Inspired by a question that came through via Twitter today I thought I'd blog about the reading problems I've had due to my cerebral vasculitis, and how I am...

Inspired by a question that came through via Twitter today I thought I'd blog ab...

vivdunstan

Volunteer•12 years ago

11 Replies

Lincolnshire Vasculitis Support Group meeting

The second informal meeting of the Lincolnshire VSG is to be held at Digby on Sunday 15th April 2012 at 2.00pm. Coffee/tea and cakes and plenty of opportunity...

The second informal meeting of the Lincolnshire VSG is to be held at Digby on Su...

Ayla

Volunteer•12 years ago

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Three new fundraisers have opened a Just Giving page. Tom and Francesca .....and Michelle

Please read their stories and support them if you feel you can. We wish all three all the best and thank them very much for supporting Vasculitis-UK...

Please read their stories and support them if you feel you can. We wish all thre...

John_Mills

Volunteer•12 years ago

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West Country Support Group Summer Meet June 2012

West Country Support Group The next meet up for the West Country group will be for a BBQ on Saturday 16 June at 1.00pm. email the.stoners@talktalk.net. for...

West Country Support Group The next meet up for the West Country group will be...

John_Mills

Volunteer•12 years ago

1 Reply

i have wg ,a close relative has just got infected with shingles.how long should i stay away from my relative

quinnster

•12 years ago

3 Replies

Central Nervous System Vasculitis: All That Glitters Is Not Gold

http://www.jrheum.org/content/39/3/662.full?ct=ct

John_Mills

Volunteer•12 years ago

4 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for March 2012

The Spoon Theory written by Christine Miserandino

Vasculitis and work

This is a thank you blog for Barry and Jayne Coulson

Candy is running the 28th Hastings Half Marathon on Sun 25th March 2012 and also running the Ashford District 10K on Sun 18th March 2012

Vasculitis

do i have wg

swellings on my arm with burning feeling, pain and numbness

Marathon Blog 5

After an appeal I was re awarded DLA at the highest rate for mobility but my care component has been reduced to the lowest rate.

Vasculitis UK Annual General Meeting Sunday May 13th at 12.15pm Novotel, Long Eaton. Guest speaker Dr Mike Venning.

Latest Newsletter from the Benefits and Work website March 2012

stopping azathrioprine

Newly diagnosed with leukocytoclastic vasculitis

Living with HUVs Sarah's blog Sarah has Hypocomplementic Urticarial Vasculitis

rhituximab

Changes to contribution-based Employment and Support Allowance

Vasculitis-uk would like to wish Jamie Good luck for his Marathon in Rome on the 18th of this month.

Vasculitis uk just wanted to say thank you to "Team Clare" for all the fundraising and marathons/walks completed this last year.

Vasculitis-UK just want to say Good luck and Thank you to "Team Dickinson" running in the Reading Marathon in 3 weeks!!

When the company you had worked for, nine years plus, decide to "Terminate" your employment on the grounds of capability. What to do next?

Follicular lymphoma NH. WBCs ~56 . Acceptable range 4-11.post Rituxin(R) First cycle WBCs ~4.5. Post second cycle (R) WBCs 35. What's wrong?

Anyone else here with Vasculitis related heart conditions ?

My MPA Story

Vasculitis...what type do I have?

Overcoming reading problems due to cerebral vasculitis

Lincolnshire Vasculitis Support Group meeting

Three new fundraisers have opened a Just Giving page. Tom and Francesca .....and Michelle

West Country Support Group Summer Meet June 2012

i have wg ,a close relative has just got infected with shingles.how long should i stay away from my relative

Central Nervous System Vasculitis: All That Glitters Is Not Gold

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