Finger nails and raynauds : Hi ..I have... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Finger nails and raynauds

Tmontana profile image
8 Replies

Hi ..I have raynauds and limited schleroderma and was wondering if anyone has the problem of there finger nails being discoloured and lifting off the nail bed ..I have tried lots of treatments but nothing seems to work and am now worried that I may lose some nails altogether!

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Tmontana
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8 Replies
Deby177 profile image
Deby177

Absolutely same as you tried gp treatments I've found I use tea tree cream or oil direct to nail bed at bedtime and garnier red tube hand cream rest of hands only thing that seems to be working long slow process about a year I'm almost back their. But my hands were an embarrassment

Tmontana profile image
Tmontana in reply toDeby177

Thankyou for replying ! I'll try the tea tree ! I've just been prescribed sildenafil so will see how that goes for the raynauds but so far no meds have worked and have now started to get lots of broken veins on face and neck it's all the different symptoms with schleroderma !

Deby177 profile image
Deby177 in reply toTmontana

Wondering if you got any improvement in nails, I'm totally at a loss absolutely nothing has worked or me in fact getting worse about to loose 4 more just leave nail bed totally certainly annoying real confidence melter

Oaks111 profile image
Oaks111 in reply toDeby177

I am losing two nails. Do they grow back for you?

Deby177 profile image
Deby177 in reply toOaks111

Eventually just when I think I'm getting there it all goes crap again can't win

Oaks111 profile image
Oaks111 in reply toDeby177

So frustrating

RosemerryVenet profile image
RosemerryVenet

My hands are awful. I'm going back to the doctor's. I also have trouble with my nails and occasionally my skin on my hands peels off (gross, I know) and my hands are permanently cold and purple. My rheumatology consultant is aware of some of these problems and I am on a lot of medication. I get very depressed about the whole situation.

Tmontana profile image
Tmontana in reply toRosemerryVenet

It's a nightmare rosemary... so many different symptoms and getting the treatment is a mine field ... and like you I find it all very depressing.

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