Sjogrens Syndrome

[Juanburr1950]

Sjogrens, Raynauds, Mixed Connective Tissue Disorder…..

was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .

[Lausanjuk]

Thanks for sharing your experience, Juanburr1950. I've been experiencing very dry eyes for the last couple of years, and I think it might be Sjogrens, since I've had a Scleroderma diagnosis for the last 14 years and I understand that the conditions often overlap.

I wanted to ask you - has the hydroxychloroquine helped with the dry eyes as well as mouth? Also, do you suffer any side effects from the drug?

Thanks

[Juanburr1950 in reply to Lausanjuk]

Yes, I would have to say that the dug is helping with my dry eyes. I have to drink water more because I’m very sensitive to the dry mouth. You have to keep your mouth moist so I chew gum and this really helps.

I definitely haven’t experienced anything negative about the medication. To me it’s like a miracle drug. I occasionally have flare ups when I push myself too much.

Thank you

[StriatedCaracara in reply to Lausanjuk]

I posted this on Dry Eye Disease (DED) in SLE after getting dry eyes after covid and being diagnosed with UCTD.

I have not been diagnosed with Sjogrens but dry eyes are still a real issue.

It is a broad subject and multiple causes. For me post covid autonomic dysfunction seems to be reducing secretions in eyes, mouth and gut.

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