Big thank you

[Choc73]

Hi to all those that gave me advice prior to my week of infusion I survived it - just! It was hard going with side effects and many cannula issues.

Not noticed any improvement as yet.

Thanks again

[Deby177]

Well done you

[OldTed60]

well done! It doesn’t usually reveal whether it’s worked immediately I’ve found although it did sort out nasty painful little blisters I was suffering on fingertips first time I had it almost by day 2 so that I could type and use hands again. Never really had these since but have had broader relief in general pain from it. I saw my rheumatologist yesterday and she’s arranging for me to have a portacath put in as, after 3 years of 3 monthly Iloprost, I’m finding the cannula thing too stressful now. X

[Choc73 in reply to OldTed60]

That sounds a bit nasty to have in you but I hope it works.

[OldTed60 in reply to Choc73]

thanks yes I admit I’m terrified! But after 3 years of 3 monthly Iloprost my veins are very hard and disobliging so I guess it’s the obvious next step 😬🥹