I am waiting for my next Rheumatologist appointment and have recently been suffering with issues , I have been on antibiotics 3 times in the last months due to high protein levels being found in my urine ,no blood present,on Reagent strip dip sticks. Once at the hospital ,then two at my Dr .The urine was then sent to lab and comes back negative. However,I have symptoms,stinging when I urinate and side pain both right sided lower abdomen and upper near my ribs, I also have some left sided pressure feeling in my chest.
the Dr did also query gallstones due to pain under ribs and prescribed Buscopan which did seem to help a little.I had a ultrasound on Thursday the radiologist said all my organs look structurally okay and to go back to Dr for result and peruse it further to get functional test carried out. I am now on antibiotics again as I had a smear test yesterday and asked the nurse to check my sample to because of symptoms and it came back high for protein, it actually changed the dipstick for proteins an orange colour that wasn’t even a colour on the comparison on the tub.
This is worrying me and I am wondering if anyone else as had this problem and does in prelude kidney disease or hypertension.
my antinuclear antibodies for centromere were >8. But a few other test have come back negative so haven’t been officially diagnosed for limited systemic sclerosis yet.
Any information or similarity with other people symptoms and advice would be welcomed.
Thanks 🙏
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Buttsy
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hey there I also suffer with this alongside all my other issues my urologist had put me on bladder instillation once a month which help to stop the bacteria sticking in my bladder and also I take Trospium chloride 60 mg slow release this helps me I cannot drink any carbonated drinks as this triggers it and sometimes I use sachets from pharmacy when really bad but on the whole it has helped xx
sorry is it due to systemic sclerosis, do you know? I am seeing a urologist in about a months time, by Doing hasn’t suggested anything yet , only had an ultrasound last week so see him again this week . Thanks xx
so it’s where you pop a catheter in and use above to insert into your bladder best way to describe is this condition affects all organs and bladder also so it means all of us get ecoli in bladder but a healthy bladder is like a non stick pan so the bacteria flushes through in a bladder like ours we have lost all the non stick so to speak and bacteria ecoli builds up in there causing inflammation irritation and sometimes infection what this does is resurface the bladder so the bugs don’t stick xx hope this explains it ask to be seen by urology and request instillations . General population have about 6 to 12 of these and it’s sorts the issue sadly for me because of the sclerosis I have been doing this for 3 years every month but it does help x alongside the prolonged release medication I have an overactive bladder also which they think is caused by sclerosis hope this helps
Great explanation, my Dr doesn’t seem to have a clue, but have Rheumatologist next week and urologist in a month so hopefully something will get looked at. I also have urine frequency and get up usually at least 3 times at night. I also have stomach issues and struggle with constipation and have a rectocele/ prolapse,it all more symptoms,I guess but still no diagnosis, as Nailfold test was negative,I think I need further test but don’t know what will give a definite diagnosis.
So you don’t have any symptoms on renal hypertension?
As I was worried about that.
Ecology in the bladder I will look into this further. 👍
surprisingly my kidneys are good at the minute I do have hypertension but controlled with medication my liver function not great but not surprising with constant fighting of inflammation you have to keep pushing for answers it took me to have a stroke and make a complaint to get anywhere it’s so frustrating but you k ow your body write everything down so when you see them you have it all documented xx
Hi, I have had similar symptoms for about 2yrs now, sometimes there's been an infection sometimes not, lots of antibiotics given which have only alleviated some of the symptoms. I have Raynauds and got discharged from rheumatology 2017 after tests only showed a slight positive. I'm due to have a small operation soon to widen the urethra and a bladder stretch to hopefully stop other symptoms like having to squeeze urine out sometimes and it's painful before I pass urine, easing slightly at the moment and urine flow is better than before Christmas, however, I'm hoping to be more enlightened after the op. The thing with auto immune disease is that it can all be such a slow process and everything happens at different times, so I never know when symptoms are connected or not. Hope you get things sorted soon, it can take over your life when you've having problems.
Thank you for your response, yes I keep getting additional symptoms and am unsure if they are connected or not and wether it’s the Systemic sclerosis causing them. I feel I am constantly at the Dr with new things and the receptionist can be a bit condescending saying things like aren’t you drinking enough or wiping properly,like I am daft or an making it up. The antibiotics don’t seems to be very effective ,it goes away for a week or so then seems to be back again. I am going to keep on pushing as you have to be persistent to get anything sorted. Good Luck with your operation.
Thank you, forgot to mention also that I seem to have developed high blood pressure too so on tablets for that. Yes, keep pushing for answers, I've been spot on with personal hygiene and forever drinking water, it's a puzzle and a nuisance but perseverance and patience seems to be the name of the game!
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