Covid 19 vaccine and systemic sclerosis - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Covid 19 vaccine and systemic sclerosis

Lo1234 profile image
6 Replies

I have been diagnosed with limited cutaneous of systemic sclerosis and I took immunisuppresive drugs called injection cyclophosphamide and injection mythyprednisolone before 3 months so should I take covid 19 vaccine? Please kindly share your experiences regarding vaccine as well as..

Thank you

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Lo1234
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6 Replies
pinkcat26 profile image
pinkcat26

I also have limited cutaneous systemic sclerosis and take immunosuppresants. I have had both my vaccines, with no side effects at all. I was told by my rheumatologist that it was very important to be vaccinated as i was so immunosuppressed and that everyone over 16 who lives with me should also be vaccinated. If you are worried, talk o the rheumatologist. He assured me it wasnt a live vaccine, whichare the vaccines which can cause problems

wednesday profile image
wednesday

I have had both covid injections, I had astra zeneca one but there are others you could have if you are worried. I didn't have any problems but some have mild side effects like sore arm, aches and feverishness.

dordle profile image
dordle

I have limited SS too and take Mycophenylate Mofetil immune suppressant. Have had both my Pfizer vaccinations with no problems. Just the usual sore, heavy arm for a couple of days. Important to have it.

Lorrainej profile image
LorrainejVolunteer

Hi Lo1234

I have diffuse Ssc, with lung, heart and kidney involvement.

I personally had both vaccines (Pfizer) as I felt it was the best way to protect myself against the severe symptoms of Coronavirus.

SRUK have a great article and facts about the vaccines. This is a link and I hope you get the answer you are looking for

sruk.co.uk/find-support/cor...

Best wishes

Lorraine x

myxfabxfour profile image
myxfabxfour in reply toLorrainej

I being denied any treatment xx

myxfabxfour profile image
myxfabxfour

no one will treat me its heart breaking xx

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