Anyone with scoliosis? I just got diagnosed to top everything else

[Emfrenette]

Anyone with scoliosis ?

[Rachmaninov2]

I was diagnosed with scoliosis along with Inflammatory Arthritis.. 🙂

[Mylreaclairelee in reply to Rachmaninov2]

Yes but had it since I was a child. Also have kyphosis but other than being very curved over now at 74 I dont have any real problems with it. Got used to it I guess.

[Rachmaninov2 in reply to Mylreaclairelee]

I have had it since I was a child too. They didn’t seem to do anything about it then. 🙂

[Mylreaclairelee]

Well rods were discussed but I am so glad my parents didnt go for that. I did have a boned bodice I had to wear and also had to spend time with a stick through my arms and across my back.

[honeybug]

Hi Emfrenette 😊🌿🌸🦋

I’ve had scoliosis since age 13 in my thoracic spine I suspect it was caused by a 35 foot fall from a tree.

I’ve had back pain since my teens and it has progressed since then.

I have scoliosis in my neck also.

These weren’t diagnosed until late adulthood.

A series of falls 37 to date the most damaging to my lower spine shortened my leg and my neck scoliosis was diagnosed with my bilateral Ménière’s disease.

I have ankylosing spondylitis Ehlers Danlos Syndrome Bone Spurs MCTD Osteopenia complicating my scoliosis.

No treatment was offered.

Makes for very painful existence and limited mobility.

So sorry you are now adding this to your list of problems.

Best wishes for relief soon

Please take care and stay safe.

EJ 😊🤗♥️🥰🙏🕊🌿🌸🦋

[Hidden]

Yes my rheumatologist picked it up as an incidental finding early last year. I’m told that like most people,I’ve probably had it since I was young. However it seems odd, given I’ve had many chest X-rays and spine MRIs over the years, that this is the first time it’s ever been mentioned!

[Emfrenette in reply to Hidden]

Same here first ive heard of it . My symptoms are mild compares to a lot of others out there but im always worried of my future so i want to know what i can do to prevent future pain

[hatshepsut]

Yes, I have it.......no idea since when. Found on hip xrays

[JennerLayne]

Discovered my slight scoliosis as an adult (late 40s) after it was mentioned from a chest X-ray.

[Emfrenette in reply to JennerLayne]

Its odd thats its so random ! Fustrating does is always progress for everyone i wonder ?

[Hidden in reply to Emfrenette]

I was told that it’s of little significance now since I’ve always lived with it without knowing and wouldn’t progress - it’s a structural abnormality. I believe it’s often found in people with hypermobile Ehlers Danlos Syndrome - which I’m sure I have as part of my other diagnosed connective tissue disease overlap.

[Mememe11 in reply to Hidden]

I found out last year that I have this at aged 33, picked up on an unrelated chest X-ray. Dr said I have probably had it since teenage year but it’s never caused by any problems but just lately I’m getting upper back ache and since being told I have Scoliosis I have become really anxious n

[Hidden in reply to Mememe11]

I only found out last year after my rheumatologist ran a chest x-ray and remarked on it as an incidental finding - likely had it since I was young. I’m 58!

[Mememe11 in reply to Hidden]

Are you having any follow up regarding the scoliosis?

[Hidden in reply to Mememe11]

No. The focus is all on my internal organs just now and my main annoyance is that I’m sure my scoliosis is just one more piece of evidence showing that I have EDS. I literally have every feature a 58 year old woman can have. It doesn’t matter in itself that we have hereditary structural/ musculoskeletal problems as we’ve probably had them since we were young.

But as EDS is the opposite connective tissue disease process to scleroderma and as I am antibody positive for Scleroderma - it annoys me that they don’t take this into consideration when they exclude scleroderma just because my nailfolds are normal and my skin doesn’t show classic tightening.

Scoliosis is one of the many hallmarks of EDS.

[Hidden in reply to Mememe11]

ncbi.nlm.nih.gov/pmc/articl...

“Ehlers-Danlos syndrome is a heterogeneous connective tissue condition characterized by varying degrees of skin hyperextensibility, joint hypermobility, and vascular fragility. Joint dislocations, musculoskeletal pain, atrophic scars, easy bleeding, vessel/viscera rupture, severe scoliosis, and obstetric complications may occur”

[Lo1234]

Yes I do have and the x-ray showed my curvature is twisted upto 65 degree.c Then after I have not done spinal x-ray till now. I have been also suggested surgery for it..