Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for May 2017

Trigeminal neuralgia

Does anyone with systemic sclerosis and overlap conditions suffer from trigeminal neuralgia or neuropathy?

Does anyone with systemic sclerosis and overlap conditions suffer from trigemina...

•7 years ago

Will I get travel insurance?

Hi, have a diagnosis of generalised morphoea. On methotrexate. Am I going to be able to get travel insurance for Europe? I live in the Uk?

Hi, have a diagnosis of generalised morphoea. On methotrexate. Am I going to be ...

•7 years ago

CT Scan

Hi, I've been booked in for a CT scan of chest abdomen. I have generalised morphoea with a couple of linear plaques on my arms. What are they looking for does...

Hi, I've been booked in for a CT scan of chest abdomen. I have generalised morph...

•7 years ago

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MCTD questions

Hello all i was diagnosed with MCTD a few days ago. Im just wondering if anyone knows if this condition can affect seasonal allergies. Or if since my immune...

Hello all i was diagnosed with MCTD a few days ago. Im just wondering if anyone ...

•7 years ago

There is no priority and humanity for Desable with scleroderma or any other Madical condition ! Who don't have they ignore us ! But every1👁

Hi all my Frand scleroderma sclerosis with rynoud with Kidny transplant all this problam since morthern 12 years Kidny transplant last 8 years any way I...

Hi all my Frand scleroderma sclerosis with rynoud with Kidny transplant all this...

•7 years ago

Blood pressure

My husband takes Lasix nephidine and labatlol for high blood pressure. He has terrible bouts of dizziness. Almost to the point of passing out

My husband takes Lasix nephidine and labatlol for high blood pressure. He has ...

•7 years ago

Vitamin Supplements - Diffuse Scleroderma

Hi, Just wondering if any one is taking any Vitamins and do they help. I have been advised to take Omega 3 and Glucosamine.

Hi, Just wondering if any one is taking any Vitamins and do they help. I have be...

•7 years ago

Nifedipine

I take 30mg of nifedipine for high blood pressure. I want to change it from morning to night. Because of dizziness How can I do it safely

I take 30mg of nifedipine for high blood pressure. I want to change it from morn...

•7 years ago

Swallowing problems

I'm new here, and have really enjoyed reading everyone's posts. I've never spoken to anyone with scleroderma, and it's really reassuring to know that there are...

I'm new here, and have really enjoyed reading everyone's posts. I've never spoke...

•7 years ago

scleroderma - diffuse

Hi, Just wondering if any one here has tried DMSO or MSO for the skin tightening? If yes how did you find it?

Hi, Just wondering if any one here has tried DMSO or MSO for the skin tightening...

•7 years ago

Bemer and Raynaud's

Has anyone used the Bemer (electromagnetic therapy) for the treatment of Raynaud's?

Has anyone used the Bemer (electromagnetic therapy) for the treatment of Raynaud...

•7 years ago

does anyone here have diffuse scleroderma triggered by chemotherapy

my scleroderma was triggered by the chemotherapy given to me for triple negative breast cancer ,has anyone else here had the same,before diagnosis i had no...

my scleroderma was triggered by the chemotherapy given to me for triple negative...

•7 years ago

Electric shock / static

I have Crest Syndrome 😒 And over the last few weeks I've noticed that when I touch certain things like metal I get like an electric shock , I was in M&S today...

I have Crest Syndrome 😒 And over the last few weeks I've noticed that when I to...

•7 years ago

Low blood pressure

Hello all - hope you are all doing well? Quick question; has anyone with Scleroderma and/or Raynaud's suffering with low blood pressure? Is there a link meds...

Hello all - hope you are all doing well? Quick question; has anyone with Sclerod...

•7 years ago

Low blood oressure

Hello all - hope you are all doing well? Quick question; has anyone with Scleroderma and/or Raynaud's suffering with low blood pressure? Is there a link meds...

Hello all - hope you are all doing well? Quick question; has anyone with Sclerod...

•7 years ago

Neck and head

Hi all, I am experiencing problems holding my head up. It's hard to explain, but I believe it's my neck and back. Has anyone had to deal with that and if so,...

Hi all, I am experiencing problems holding my head up. It's hard to explain, but...

•7 years ago

Questions

Hey me again but I`ve got questions and just wondering if anyone can help I`m not back at the hospital till the end of May, Does anyone: Have blackouts during...

Hey me again but I`ve got questions and just wondering if anyone can help I`m no...

•7 years ago

Amitriptyline

Hi Everybody, On top of the many other drugs I take, my Rheumatologist has now put me on Amitriptyline. I have seen quite a few people here mention this so can...

Hi Everybody, On top of the many other drugs I take, my Rheumatologist has now p...

•7 years ago

Diagnosed with Diffuse Systematic Schelerderma

Hi everyone, Finally decided to join the online community :) I was diagnosed in December 2016 and still having various tests. At the moment and i hope it...

Hi everyone, Finally decided to join the online community :) I was diagnosed in...

•7 years ago

New Raynauds Treatment

I wondered if this would be helpful to anyone who suffers Raynauds badly and Scleroderma. I went to see my consultant last week and I have a new doctor. I...

I wondered if this would be helpful to anyone who suffers Raynauds badly and Scl...

•7 years ago

Acute Blue Finger

Hi all, I would like to ask if anyone had any experience with an 'accute blue finger syndrome'? The effect is very much like that of Raynauds (spasm of the...

Hi all, I would like to ask if anyone had any experience with an 'accute blue fi...

•7 years ago

Epoprostenol Infusions

Hey I have just had my first 3 sessions of Epoprostenol infusions last week I know the side effects while your getting the infusion,, but the question is has...

Hey I have just had my first 3 sessions of Epoprostenol infusions last week I kn...

•7 years ago

Raynaud's Concern

Hi all. I was dx with Primary Raynauds a few years back by my PCP. She did no further testing due to having no other symptoms. She advised me to take aspirin...

Hi all. I was dx with Primary Raynauds a few years back by my PCP. She did no fu...

•7 years ago

Face veins

Hello I'm looking for a subtle makeup to cover up veins on my forehead and face and don't know where to look. And has anyone else tried it. By the way I'm a 41...

Hello I'm looking for a subtle makeup to cover up veins on my forehead and face ...

•7 years ago

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