Questions

[kel87]

Hey me again but I`ve got questions and just wondering if anyone can help I`m not back at the hospital till the end of May,

Does anyone:

Have blackouts during the day while out and about without knowing you do it till you come back around??

After Epoprostenol (Folan) infusions you still experience the same symptoms as before and if so what were you given to help?

Any tips on numb hands, I`ve tried using gloves to keep my hands warm but they don't work hands are just as cold without.

Know if there is a link between Raynaud's/ scleroderma and Hip Dysplasia I suffer with all 3?

Thanks

Kelsey

[zenabb]

I have had one time when I didn't know what happened till I came round - a few seconds.

[kel87 in reply to zenabb]

thanks mine are happening on a daily basis.

[Hidden]

The cold hands are best kept warm by keeping your core warm so lots of layers around the torso and a hat etc xx

[kel87 in reply to Hidden]

Thanks I`m constantly layering up to try and stay warm it don't work very well cant seem to keep warm...

[frillyhilly]

Hi - your question about "blackouts" - my husband says it's as though I have been switched off. I simply stop what I am doing (including mid-sentence) and then, after a brief period, just carry on as though nothing has happened - then I notice the time slip. The other type I have is that I suddenly find myself elsewhere in the room with no idea of how I got there. All my life I've tended to do "the switch off" thing. Since I was diagnosed with Primary Raynaud's it has got worse and it is on our "how to identify and treat a Raynaud's attack" info for Care Workers as being an indication that I am at risk of/am starting a Raynaud's attack. The second type of blackout happens if I have not been sleeping properly for a few days, it started a few years ago, only happens occasionally -thankfully - and I think is probably to do with hormonal changes as it has not happened now for some months (and neither have my periods). Hope you get things on a more even footing soon, N

[kel87]

Hey Thanks,,, yeah my blackouts can be mid sentence its awful,, its started to happen when I`m out and about. It`s getting worse as has all my symptom's since last July time,, its awful that no matter what you can go out like a light most of all its scary. xx K

[treesie]

I use handwarmers for my hands and feet when they feel numb, it really helps me.

[kel87 in reply to treesie]

Thanks ive tried them for my hands not my feet.. xx

[Suzyannayoung]

Hi there, I alway use those 8 hour hand warmers in my mittens, it does help but you can't doing anything with them on lol. If you you other gloves it doesn't warm your fingers . Best put gloves under mittens with hand warmer. Doesn't stop attacks but I find it helps with the pain.