Epoprostenol Infusions: Hey I have just... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,116 members5,640 posts

Epoprostenol Infusions

kel87 profile image
1 Reply

Hey

I have just had my first 3 sessions of Epoprostenol infusions last week I know the side effects while your getting the infusion,, but the question is has anyone had Sickly feeling, Headaches, Drowsy, just generally urgh for a couple of days afterwards, has anyone else had this??

Also were the effects of the infusion straight away or does it take awhile??

Did anyone`s other symptoms e.g fatigue or being cold all of the time get better?

I`m due to start Sildenafil 20 or 25mg to help, I have taken this before but only 5mg twice a day with no help.

Any reply`s would be great as I don`t really know it`s like walking in a black tunnel.

Many Thanks

Kelsey

Written by
kel87 profile image
kel87
To view profiles and participate in discussions please or .
Read more about...
1 Reply
zenabb profile image
zenabb

The effect is that it dilates the all blood vessels so you get the symptoms, As it allows more blood than usual to circulate to the extremities it allows some healing to take place and that takes its time. The result cannot be immediate. I feel ugh afterwards for a few days.

I now have sildenafil 150 mgs a day.

Best wishes.

Not what you're looking for?

You may also like...

Iloprost infusions

Hi everyone Was just wondering if anyone has had their iloprost infusion go ahead as scheduled?...
1Stella profile image

Are iloprost infusions beneficial?

After my latest rheumatologist telephone appointment, he suggested that I had an iloprost infusion...
MoominMomma profile image

I have just had my check up at the Royal Free and my consultant has arranged for me to have pamidromate infusions for my calcinosis. Has

anyone had this infusion and, if so, has it helped and were there any side effects. Thanks a lot
Monika profile image

Does anyone have Iron deficiency anaemia and had to have iron infusions ?

Hi, I have had iron deficiency anaemia for sometime. I have taken iron supplements in the past but,...
wartsandall profile image

Iloprost infusions

Hey all just thought I would pop in and give you an update on my experience with iloprost...
Jaq1971 profile image

Moderation team

AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator
SRUKadmin profile image
SRUKadminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.