Scleroderma and ulcers

[77lindy]

Hi all. I have recently started to suffer really bad mouth ulcers at the moment I have 4 very large ones. I have just had iloprost infusions and started taking mycofenolate. Could they be the cause or even scleroderma. I have never had mouth ulcers before and can't understand why now. Lindy

[dianekjs]

Yes, Cellcept is known to cause this complication in some people. You need to let your doctor know asap. Hope you get relief soon.

[MEW53]

Hi, when I was first diagnosed with Scleroderma in September 2014, while I was in hospital I was given a soluble aspirin in a small amount of water to use as a mouth wash to help relieve the mouth ulcers. You mustn't swallow it but it did help, but only do this with medical advice. I get mouth ulcers occasionally and I take Prednisolone and mycophenolate mofetil (Cellcept) and if I get an ulcer I put a small amount of table salt in a cup with some boiling water, let it cool and use as a mouth wash, DO NOT SWALLOW, this has helped.

Good luck

[cowhide]

Also - possible B12 or iron deficiency, maybe worth getting a blood test? I've had occasional mouth ulcers nothing to do with medication and find that marmite helps - if you like it! Hope they heal soon

[LucyJean]

Hello there, I am sure it will be the mycophenolate. Tell your consultant, and/or specialist nurse. You might need some folic acid supplementation. There are some mouthwashes that your GP can prescribe to help you...for example, Difflam, or a steroid mouthwash. The other tips about salt washes and aspirin are good too. Take care xxx