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PMRGCAuk

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Stabbing headache.. GCA? Update

Still got pain - now more of a constant burning sensation on the top of my skull. I phoned the surgery and had a call back from the "advanced practitioner"...

Still got pain - now more of a constant burning sensation on the top of my skull...

Clarbeston

•4 hours ago

1 Reply

Working

Is it possible to continue living normally with PMR as before? Work, light sports training? My rheumy says I can continue to work 80% as a clerk and ride my...

Is it possible to continue living normally with PMR as before? Work, light sport...

Swizzly

•7 hours ago

5 Replies

PMR confirmed

No frozen shoulder. The rheumy also gave me an injection in the shoulder bursa. Today I had a red flash on my cheeks like tomatoes 🍅 On 17 June I should be...

No frozen shoulder. The rheumy also gave me an injection in the shoulder bursa. ...

Swizzly

•10 hours ago

10 Replies

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Nearly half of patients with giant cell arteritis achieve remission with upadacitinib

Great news for GCA patients! 😀...

perceptual63

•10 hours ago

2 Replies

Prednisolone and skin thinning

I think I’ve heard that long term use of steroids can cause the skin to get thinner - is this a thing? I’m wondering if it’s a cause of my difficulty shaking...

I think I’ve heard that long term use of steroids can cause the skin to get thin...

calibriel

•10 hours ago

4 Replies

Prolia shots

After 4+ years of Actonel is Prolia a good choice for continued treatment of osteoporosis? I will be asking my rheumatologist the same question next time I...

After 4+ years of Actonel is Prolia a good choice for continued treatment of os...

Alebeau

•10 hours ago

3 Replies

Swollen red cheek andslight jaw pain on one side.

My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on steroids. Yesterday she had slight jaw pain and this morning her face is red and...

My friend was diagnosed 6 weeks ago with PMR and GCA. Great improvement on stero...

BleatingsheepMAA

•11 hours ago

12 Replies

Alendronic Acid

Hi I've had PMR for over 4 years now and am on 3mg pred. as the last time I managed to reduce and come off pred. I had a flare up . I also take Alendronic...

Hi I've had PMR for over 4 years now and am on 3mg pred. as the last time I ma...

Simplewish

•11 hours ago

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Tooth infection - increase prednisolone?

A chronic tooth infection in a failed root canal treated tooth has decided to present with a painful flare. (I am generally fortunate and suffer little pain...

A chronic tooth infection in a failed root canal treated tooth has decided to pr...

liz6620

•15 hours ago

7 Replies

Antibiotic and Actemra

Hello folks, I have an infection in my tooth and need to take an antibiotic for 10 days. If I'm understanding the guidelines for Actemra correctly,...

Hello folks, I have an infection in my tooth and need to take an antibiotic for...

ILbbHpmr

•1 day ago

10 Replies

Tapering after a flare

I posted at the beginning of April saying I had a flare up of my PMR At the time I was on 5/4 mgs and I rang the rheumatology nurses as my rheumatologist was...

I posted at the beginning of April saying I had a flare up of my PMR At the ti...

Magictherabbit

•1 day ago

7 Replies

potassium

I was recently told I had high potassium!! I’m on methotrexate for RA.. also have hyperparathyroidism!!! !!! Anyone else had this???

I was recently told I had high potassium!! I’m on methotrexate for RA.. also hav...

Jakey2020

•1 day ago

1 Reply

update

Not sure what’s going on, I had blood tests because of headaches and temple pain but I’ve just had a call from rheumatologist now making an urgent appointment...

Not sure what’s going on, I had blood tests because of headaches and temple pain...

Numptybrain

•1 day ago

10 Replies

PMR and covid vaccination

I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR,...

I’ve been asked to have a seasonal covid vaccination because of my weakened auto...

Freshairfiend

•1 day ago

25 Replies

Calcium Citrate questions

I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach really doesn’t like it. It makes me gassy and and causes me to have stomach...

I’ve been taking Calcium Carbonate on and off for over 5 years but my stomach re...

Floridafan

•1 day ago

2 Replies

Parkinsons

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my Dr with a few strange symptoms and she thinks I have Parkinsons as well as...

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my...

Booklist

•2 days ago

7 Replies

Benefit of coherent breathing

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with...

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it...

PhilFreeToAsk

•2 days ago

2 Replies

New to PMR

I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my...

I just wanted to introduce myself and to say thank you for the wealth of informa...

Trentside

•2 days ago

26 Replies

GCA or Occipital Neauralgia

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Arteritis . I’ve had a biopsy which came back negative, because previously my...

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Ar...

Qscrabble8

•2 days ago

18 Replies

GCA not sure if I have it or not

I started feeling a heartbeat in my temple. It wasn't very often but also my temple would ache sometimes. I contacted Dr. They sent me to fast track...

I started feeling a heartbeat in my temple. It wasn't very often but also my te...

jls12

•2 days ago

10 Replies

Generic TCZ---is it available in the UK?

My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when...

My friends, Without this forum, my GCA journey would have been entirely differ...

Grammy80

•2 days ago

8 Replies

Hospital stay: expecting too much?

Two weeks ago I had a successful shoulder replacement op. When I was taken to ward from recovery, a nurse stressed that I should not hesitate to use the...

Two weeks ago I had a successful shoulder replacement op. When I was taken to wa...

IlovePorridge

•2 days ago

16 Replies

Biopsy Negative for GCA

The vascular surgeon said the biopsy for GCA was negative. I asked him if the biopsy result depends on where he took the biopsy. He said no and that it’s...

The vascular surgeon said the biopsy for GCA was negative. I asked him if the b...

Moaningxcat

•2 days ago

30 Replies

useful articles and video on PMR by rheumatologists

not sure if these have been noted before, but I recently came across a website called rheumnow. It appears to be for rheumatologists to discuss different...

not sure if these have been noted before, but I recently came across a website c...

Freshairfiend

•2 days ago

4 Replies

GCA/pmr

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced people determine this

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced...

CavalierKC3

•2 days ago

12 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•2 days ago

57 Replies

Synacthen test results

Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131)...

Update on Synacthen test results from 26/4/24. Thought this may be of interest. ...

Bluey-1

•2 days ago

19 Replies

How to handle a “mild” flare

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive side. Started at 20 mg and felt amazing. After a mo th we dropped to 15. All...

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive si...

NCStateLine

•2 days ago

4 Replies

Stabbing headache..GCA?

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine ....

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lo...

Clarbeston

•2 days ago

17 Replies

low carb bread, rolls. Worth trying?

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling tons better. just started VERY slow tapering from 15mg Lots in today’s forum...

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling ton...

Scaredofpred

•2 days ago

5 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Stabbing headache.. GCA? Update

Working

PMR confirmed

Nearly half of patients with giant cell arteritis achieve remission with upadacitinib

Prednisolone and skin thinning

Prolia shots

Swollen red cheek andslight jaw pain on one side.

Alendronic Acid

Tooth infection - increase prednisolone?

Antibiotic and Actemra

Tapering after a flare

potassium

update

PMR and covid vaccination

Calcium Citrate questions

Parkinsons

Benefit of coherent breathing

New to PMR

GCA or Occipital Neauralgia

GCA not sure if I have it or not

Generic TCZ---is it available in the UK?

Hospital stay: expecting too much?

Biopsy Negative for GCA

useful articles and video on PMR by rheumatologists

GCA/pmr

A&E AGAIN!!

Synacthen test results

How to handle a “mild” flare

Stabbing headache..GCA?

low carb bread, rolls. Worth trying?

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