update

[Numptybrain]

Not sure what’s going on, I had blood tests because of headaches and temple pain but I’ve just had a call from rheumatologist now making an urgent appointment for this Friday and wanting me to increase prednisone from 10mg back up to 15 until I see him, very strange.

[piglette]

It sounds like you have a raised ESR and/or CRP. Do you feel OK? They can get raised if you have a cold or something else. Mine are permanently raised for no apparent reason.

[Numptybrain in reply to piglette]

No, since they were reduced down from 20 to 15 then to 10 in fortnightly intervals I’ve had extreme headaches and felt a heavy feeling in my head, my ankle has been swelling and in general I just feel like I have a bad cold, run down.

[piglette in reply to Numptybrain]

What does the doctor say? Are they being helpful?

[Numptybrain in reply to piglette]

I think he’s contacted rheumatologist but not sure

[piglette in reply to Numptybrain]

Hope so, good luck.

[DorsetLady PMRGCAuk volunteer]

Don’t know for sure, but would guess you have raised markers hence the reason for increasing Pred. Sounds as if Rheumy is hedging his bets -so see what he says tomorrow.

But bloods really need to be double checked -they can be raised for many reasons -not just PMR.

Let us know what his opinion/plan of action is please.

[Numptybrain in reply to DorsetLady]

I will, it’s all very strange as he was happy to keep me on 10 until June and now this.

[PMRpro Ambassador in reply to Numptybrain]

But did you have headaches at that time? Things change ...

[Numptybrain in reply to PMRpro]

The headaches started when I was reduced to 15 and I’m still having them unfortunately.

[DorsetLady PMRGCAuk volunteer in reply to Numptybrain]

As PMRpro has said ‘things change’ … and although you had the headaches at 15mg as we know it can take some time before the bloods reflect that… which is why we always say symptoms rule!

[Numptybrain in reply to DorsetLady]

I’m trying not to worry but it’s hard when this pain starts. I only have t wait till Friday to find out, they changed it from 12 to 10:15 so they’ve had to do some juggling around.