PMR confirmed: No frozen shoulder. The rheumy also... - PMRGCAuk

PMRGCAuk

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PMR confirmed

Swizzly profile image
12 Replies

No frozen shoulder. The rheumy also gave me an injection in the shoulder bursa. Today I had a red flash on my cheeks like tomatoes 🍅

On 17 June I should be on 12.5 mg pred, currently 20 mg.

Let's see how it goes...🍀

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Swizzly profile image
Swizzly
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12 Replies
piglette profile image
piglette

I am sorry to hear you have PMR, but steroids are a wonder drug. You should have a Dexa Scan and also be offered vitamin D with calcium. You may like to join our gardening group as PMR can affect your life. facebook.com/groups/6288051...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

20mg to 12.5mg within a month is very quick…. I know the 20mg was trial - but you probably need to go to 15mg first…

PMRpro profile image
PMRproAmbassador in reply to DorsetLady

Bet he's counting on that injection to allow the faster reduction ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to PMRpro

Probably…

PMRpro profile image
PMRproAmbassador

All the best - hope he's right you can go that fast!!!!

Swizzly profile image
Swizzly in reply to PMRpro

Thank you very much for your support.

Sorry, I may have spelt it wrong:

20 mg until 12 May

17.5 mg until 26 May

15 mg until 16 June

12.5 mg from 17 June

On 1 July I have a D

xa scan. I also take calcium and D3/K2.

PMRpro profile image
PMRproAmbassador in reply to Swizzly

2 weeks at 17,5, 3 weeks at 15, just about doable. But it can take over 2 weeks before you realise a dose is no longer enough. Fingers crossed!!! Or do you squeeze thumbs? :)

Swizzly profile image
Swizzly in reply to PMRpro

Thats why i found your support 🍀 We squeeze thumbs 😄

PMRpro profile image
PMRproAmbassador in reply to Swizzly

Are you in German-speaking Switzerland? Here I tend to say fingers crossed and promptly squeeze my thumbs!!!!

Swizzly profile image
Swizzly in reply to PMRpro

Yes, i live near to Lake Constance.

diana1998 profile image
diana1998 in reply to Swizzly

Lovely. My brother's lady friend is German and lives in Bankholzen!

Iamfedup profile image
Iamfedup

Steroid injections do that to me too

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