Prolia shots: After 4+ years of Actonel is Prolia a... - PMRGCAuk

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Prolia shots

Alebeau profile image
10 Replies

After 4+ years of Actonel is Prolia a good choice for continued treatment of osteoporosis?

I will be asking my rheumatologist the same question next time I see her. I am due for another bone scan so she will most likely want to see that first but based on the first 2 tests I am going downhill bone-wise.

Any feedback is welcome.

Thanks

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Alebeau profile image
Alebeau
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10 Replies
Rose54 profile image
Rose54

l had my first injection of Prola 2 weeks Ago no side effects so far.

Will be seen in clinic every six months and bone scans done to monitor

Rose

Alebeau profile image
Alebeau in reply toRose54

Thank you and the others who gave feedback on Prolia

I will be agreeable to receiving shots if my rheumatologist recommends it.

Will post the results after May 9

PMRpro profile image
PMRproAmbassador

In that it is more likely to improve bone density over a period of a few years and risendronate appears to not even maintain yours. However - either you remain on Prolia/denosumab indefinitely or you use it for a few years and then switch back to the bisphosphonate to maintain the improved bone density. You can't take it for a time and then stop without switching to something else or you risk a speedy rebound loss of bone density after stopping.

Alebeau profile image
Alebeau in reply toPMRpro

Thanks that is good to know

Sharitone profile image
Sharitone

I had biphosphonates for a year, then was switched to Prolia because it is not rough on the stomach. I have had it for 3 years now, with no problems. However, I have had some spinal compression fractures, so I'm just glad to have the help for my bones. I know that I will not be able to come off them just like that, but I think that is a small price to pay for the benefit I hope I am getting.

PMRpro profile image
PMRproAmbassador in reply toSharitone

That's interesting - compression fractures despite Prolia?

Sharitone profile image
Sharitone in reply toPMRpro

Yes, at least 3.

Interesting??? I can think of another word for it!

PMRpro profile image
PMRproAmbassador in reply toSharitone

I was assured that a bisphosponate or Prolia would reduce the risk of another compression fracture - if that is what they could see, To be fair, since the infusion the low back pain I was really struggling with has steadily improved, but that had been going on a long time so I doubt it was due to the ?fracture, in which case, it didn;t cause pain.

dphu profile image
dphu

I have been on Prolia (Denosumab) for about 14 years now and, although I have not been able to tolerate other Osteo treatments, I have had no problems with Prolia and it seems to be very effective.

Alebeau profile image
Alebeau in reply todphu

Thanks for the encouraging news

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