Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,022 members • 39,679 posts

All posts for September 2024

Strelitzia

I have developed a mysterious sore foot. The pad of my foot feels very tender, toes a bit numb…with no apparent reason. I am into my third year of pmr, down to...

I have developed a mysterious sore foot. The pad of my foot feels very tender, t...

Strelitzia

•3 days ago

6 Replies

PMR Relapse with low inflamation tests

About 6 weeks ago, after experiencing more than 3 weeks of early morning stiffness and finally losing the ability to turn over in bed or lift the covers or get...

About 6 weeks ago, after experiencing more than 3 weeks of early morning stiffne...

Rdwr

•3 days ago

15 Replies

A Flare or Osteoarthritis?

I have problems understanding. I did not feel well when reducing from 10 mg to 8.75. The pain came back at night in my knee with osteoarthritis. My blood test...

I have problems understanding. I did not feel well when reducing from 10 mg to 8...

Swizzly

•3 days ago

35 Replies

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Down to half mg pred

After five years and nine months of pmr followed by being diagnosed with GCA in January . I have been taking half a mg for 8 weeks and so far no signs of a...

After five years and nine months of pmr followed by being diagnosed with GCA in...

Rosina1871

•3 days ago

13 Replies

GCA flare and not able to practice what I preach~!

On 9/11, I saw the neuro-ophthalmologist. I've been on 60mg a day since August 11 after three days of 1250 mg infusions. My left eye went dark August 2019...

On 9/11, I saw the neuro-ophthalmologist. I've been on 60mg a day since August ...

Grammy80

•3 days ago

83 Replies

PMR24

Hi I was diagnosed with PMR back in July24 after a long delay and have begun Prednisolone treatment which is helping. Unfortunately I do feel unsupported...

Hi I was diagnosed with PMR back in July24 after a long delay and have begun ...

Mountain25

•4 days ago

42 Replies

Doctor visit

I went back to the rheumatologist for my second visit yesterday. He still seems to think as he did on my first visit, that I don’t have PMR. I had been on...

I went back to the rheumatologist for my second visit yesterday. He still seems...

Aqua47

•4 days ago

14 Replies

is this PMR/or flare up/or something else?

hi I have a call out to my GP and any advice ahead of me speaking to him would be much appreciated. Diagnosed with PMR in May currently on 10mg of...

hi I have a call out to my GP and any advice ahead of me speaking to him would b...

Jakey67

•4 days ago

19 Replies

GCA Training in Scanning at Leeds

I took part in this training yesterday as a volunteer 'patient'. It was interesting seeing how different doctors managed, or had difficulty, practicing...

I took part in this training yesterday as a volunteer 'patient'. It was interest...

PastelsinArt

•4 days ago

26 Replies

I need help with medication

Hi All, My husband has had PMR for 13 years now (he is 73 years old) and I need some advice on a new pain medication he has been given for a trapped nerve in...

Hi All, My husband has had PMR for 13 years now (he is 73 years old) and I need ...

Buenavista

•4 days ago

11 Replies

Update on my post about repeat prescription

Hi Dr rang today after my e- consult request to have my pred reinstated to a repeat script. Good news and bad……. Good news pred back on repeat and she added a...

Hi Dr rang today after my e- consult request to have my pred reinstated to a rep...

Phoebenooby

•5 days ago

29 Replies

Vaccinations and prednisone

I know that there is concern about whether or not to take the COVID-19 vaccine. My experience has been good. Yesterday, having an appointment to get both COVID...

I know that there is concern about whether or not to take the COVID-19 vaccine. ...

papadapadoo

•5 days ago

10 Replies

Tired all the time

Advice needed please I have had GCA since May 2023 so far I have managed to taper from 40mg prednisone until now taking 1mg I did have a flare at xmas but...

Advice needed please I have had GCA since May 2023 so far I have managed to tap...

Rose53

•5 days ago

9 Replies

Steriod reduction/vertigo/adrenals?

Good morning everyone. Looking for advice please. I have been doing a slow taper from 6mg to 5mg and this is the first week i have completed on 5 mg and all...

Good morning everyone. Looking for advice please. I have been doing a slow tape...

Sungolfer

•5 days ago

12 Replies

Pains

Hi I was diagnosed in April 22 and put on 15mg Prednisone. I have managed to taper down to 5mg twice and this time thought it had been successful. Have been on...

Hi I was diagnosed in April 22 and put on 15mg Prednisone. I have managed to tap...

Pusph

•5 days ago

5 Replies

Bursitis and PMR?

I am just over 2 years into my PMR story and am down to 4mg. Prednisone as well as 300mg. Plaquenil. Lots of up’s and downs but trying to stay positive because...

I am just over 2 years into my PMR story and am down to 4mg. Prednisone as well ...

fondofforest

•5 days ago

23 Replies

ESR and Prednisolone

Hi, tried to wheen myself off Pred after 16 years of taking them. Got down to 2mg but have recently found all the old symptoms returning, ie shoulder, hip,...

Hi, tried to wheen myself off Pred after 16 years of taking them. Got down to 2m...

KCRoyals

•5 days ago

10 Replies

adrenal function poor after tests

I’ve been on pred for 9 years now , at 4.5mg I felt there was no way I could reduce anymore , even 0.25 of a mg I couldn’t function , I told the Rheumy and my...

I’ve been on pred for 9 years now , at 4.5mg I felt there was no way I could red...

Gaz227

•6 days ago

41 Replies

Good Rheumy appointment

Saw my rheumy yesterday, a lovely man who spends time explaining your latest tests etc. Even had a laugh when I said about the pain in my neck, turning to my...

Saw my rheumy yesterday, a lovely man who spends time explaining your latest tes...

sampete

•6 days ago

8 Replies

Eczema dermatitis

I was diagnosed with pmr April 24 and put on 15 milligrams of predisolone I have been reducing ever since and and now on 2 mg. I developed eczema and...

I was diagnosed with pmr April 24 and put on 15 milligrams of predisolone I have...

811Yoga

•6 days ago

6 Replies

Cardiff meeting

The next meeting is on Thursday 26th September at 11.30 in the Central Library, Cardiff, 4th floor TP room.

The next meeting is on Thursday 26th September at 11.30 in the Central Library, ...

slewis

•6 days ago

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Confused!

Hi all, I hope this doesn’t sound like a stupid question. I was diagnosed with GCA in May 2021. I am presently trying my best to taper and am doing a very...

Hi all, I hope this doesn’t sound like a stupid question. I was diagnosed with ...

Hoopy1950

•6 days ago

12 Replies

New to group

I am on 20mg prednisolone & my GP wants me to taper down. Very worried as l do not want to be like l was at the start, l could not feed myself as could not...

I am on 20mg prednisolone & my GP wants me to taper down. Very worried as l do n...

59kimmy

•6 days ago

8 Replies

Pred script changed from ‘repeat’ to ‘acute’

I have just read through some similar posts on here….. I have been on Pred since end of January 24 after being undiagnosed for 8 long months…… Started on 15...

I have just read through some similar posts on here….. I have been on Pred since...

Phoebenooby

•6 days ago

17 Replies

Hair Loss

I am 69 years old. A very active person. Diagnosed in April with PMR. Started on 25 mg of Prednisone. Tapering now and on 8 mg. So far so good except now...

I am 69 years old. A very active person. Diagnosed in April with PMR. Started on...

GolfNana

•7 days ago

14 Replies

Remaining on 1mg Pred

Hi, I was diagnosed with PMR 5 years ago and I am now down to 1mg pred as of a month ago.It’s been hard as everyone here knows! My question is should I stay...

Hi, I was diagnosed with PMR 5 years ago and I am now down to 1mg pred as of a ...

Bubble56

•7 days ago

14 Replies

grounding sheets

does anyone use one of these? A friend recommended one for sleeping and I did find one bit of research that supports using them for reducing inflammation:...

does anyone use one of these? A friend recommended one for sleeping and I did fi...

Freshairfiend

•7 days ago

3 Replies

What job do you do? And is it manageable?

Thankyou all so much for your previous help on pmr! You all gave such great information so I thought I'd ask another question.. this time about work. So I'm...

Thankyou all so much for your previous help on pmr! You all gave such great info...

Claremarie83

•7 days ago

13 Replies

GCA concerns.

I saw my rheumatologist for my 6 monthly review on the 29 July. In the 6 months I had managed to reduce my Pred dose to 3mg without any issues and feeling...

I saw my rheumatologist for my 6 monthly review on the 29 July. In the 6 months...

Naibor

•7 days ago

7 Replies

Update on blood work

Last month for some reason my CRP spiked from .6 to 46 which was very surprising as I was and still am feeling fine. Yesterday my blood was re-analysed and I...

Last month for some reason my CRP spiked from .6 to 46 which was very surprising...

Alebeau

•7 days ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2024

Strelitzia

PMR Relapse with low inflamation tests

A Flare or Osteoarthritis?

Down to half mg pred

GCA flare and not able to practice what I preach~!

PMR24

Doctor visit

is this PMR/or flare up/or something else?

GCA Training in Scanning at Leeds

I need help with medication

Update on my post about repeat prescription

Vaccinations and prednisone

Tired all the time

Steriod reduction/vertigo/adrenals?

Pains

Bursitis and PMR?

ESR and Prednisolone

adrenal function poor after tests

Good Rheumy appointment

Eczema dermatitis

Cardiff meeting

Confused!

New to group

Pred script changed from ‘repeat’ to ‘acute’

Hair Loss

Remaining on 1mg Pred

grounding sheets

What job do you do? And is it manageable?

GCA concerns.

Update on blood work

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