Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,920 members • 39,408 posts

All posts for July 2024

High Blood Pressure

I have now been on prednsone for 5 3/4 years and am 75 years old. Down to 9 mg and slowly progressing and hope to have more success as my stress levels are...

I have now been on prednsone for 5 3/4 years and am 75 years old. Down to 9 mg ...

Alebeau

•28 days ago

5 Replies

friend running for PMR/GCA charity

Hi all, for those who’ve read my profile will know that I’ve been very fit leading upto my diagnosis. An athlete friend of mine is running a 50k ultramarathon...

Hi all, for those who’ve read my profile will know that I’ve been very fit leadi...

MalloryMoss

•28 days ago

4 Replies

From zero to back to square one.!

After having PMR for 8 years I finally was elated to have got to zero at the end of January having been on Pred and methotrexate. In May after having blood...

After having PMR for 8 years I finally was elated to have got to zero at the end...

Sorop

•28 days ago

10 Replies

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GCA flare?

I have (biopsy diagnosed) GCA and am currently on 15 mg of hydrocortisone, 2tabs in a one in pm. HCTH test last month shows the adrenal gland is not...

I have (biopsy diagnosed) GCA and am currently on 15 mg of hydrocortisone, 2tab...

pmac22

•28 days ago

7 Replies

UTI and extra prednisone?

Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednisone after reducing from 4 in the last week. I also just had a blood test and...

Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednison...

Fishtacoqueen

•28 days ago

7 Replies

Amlodipine and calcium

Hi, I'm on amlodipine for high blood pressure, have been since 2016. I was diagnosed with osteopenia T score -1.1, in 2021 and put on calcium and vitamin D. I...

Hi, I'm on amlodipine for high blood pressure, have been since 2016. I was diagn...

Broseley

•28 days ago

16 Replies

Update on swollen eye

Ended up at Moorfields eye hospital with deteriorating sight (in one eye) and issues with peripheral vision. After several examinations, a scan, sclerosis is...

Ended up at Moorfields eye hospital with deteriorating sight (in one eye) and is...

Fatsiajaponica

•28 days ago

21 Replies

Anxiety

I have been on 8mg preds for 6 weeks need to reduce to 7mg today. For the last 2 weeks I have had really bad anxiety and feeling really depressed and weepy,...

I have been on 8mg preds for 6 weeks need to reduce to 7mg today. For the last ...

Ambatu

•28 days ago

28 Replies

Private rheumatologist uk

Hi , I have no help from rheumatology now for some time and GP not helpful at all just agrees with me can anybody recommend a private rheumatologist in...

Hi , I have no help from rheumatology now for some time and GP not helpful at a...

Marko666

•28 days ago

8 Replies

Aleve use for pain other than pmr

I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I...

I have found the occasional use of an Aleve helps so much with pain when I am de...

Linny3

•29 days ago

7 Replies

A Newby ..

Hello everyone, I have been reading posts for a short while. After today I feel the need to write a little about myself and hope to receive some advice....

Hello everyone, I have been reading posts for a short while. After today I f...

Ellibeth10

•29 days ago

19 Replies

Calling all GCA patients in the USA....a research study.

Last year I took part in a research study with Pillar Advocates. It felt great to do something to enlighten people about GCA. Any increased exposure and...

Last year I took part in a research study with Pillar Advocates. It felt great ...

Grammy80

•29 days ago

7 Replies

GCA and aneurysms

I had a chest CT scan and read the results on MyChart. They found a 4.6 aneurysmal dilation in my ascending aorta. I sent a message to my doctor yesterday...

I had a chest CT scan and read the results on MyChart. They found a 4.6 aneurys...

luv2read

•29 days ago

10 Replies

has anyone taken Kevzara for PMR

My Dr. wants me to start this medication for PMR and arthritis. I was surprised because I don't think there were any medications for pmr other than...

My Dr. wants me to start this medication for PMR and arthritis. I was surprised...

Linny3

•29 days ago

18 Replies

Adrenal insufficiency & cardiac issues update

Busy times here. Last week met with the endo nurse to discuss slow steroid tapering and left with hydrocortisone injections, leaflets in case of an emergency....

Busy times here. Last week met with the endo nurse to discuss slow steroid taper...

Bluey-1

•29 days ago

13 Replies

Preparation for mammogram

I’ve had an appointment letter for my first mammogram. Always been apprehensive about this as heard it’s painful and know lady who needed physiotherapy on her...

I’ve had an appointment letter for my first mammogram. Always been apprehensive...

Body_bonkers

•29 days ago

31 Replies

Is this GCA

Diagnosed Jan 24 started on 15mg Tapered down to 7.5 7 days ago. A few aches and pains today also have dull headache right side front of right ear and upper...

Diagnosed Jan 24 started on 15mg Tapered down to 7.5 7 days ago. A few aches and...

Shires123

•29 days ago

9 Replies

osteoarthritis & codeine

I was first diagnosed with spinal stenosis back in the mists of time when I was just 19. I now have diagnosed OA in my knees, lower spine, shoulders, hands and...

I was first diagnosed with spinal stenosis back in the mists of time when I was ...

phoebesmum

•29 days ago

1 Reply

Hip Replacement Operation

Hello everyone, I will be going into hospital on 2nd August for a hip replacement op and am not sure about my steroid dose before I go in. They have asked me...

Hello everyone, I will be going into hospital on 2nd August for a hip replaceme...

caftan

•29 days ago

11 Replies

Help please

I was diagnosed in late May year. Since taking Steroids and other meds been getting on OK. Tapered down to 10 mg due to taper to 9 later in August. I...

I was diagnosed in late May year. Since taking Steroids and other meds been get...

Jakey67

•29 days ago

6 Replies

Whoops..Slow DROP

My bad typing!!

diana1998

•29 days ago

3 Replies

Slow Droo

After being on 2mg pred for 14 months I'm now trying to drop Dead Slow to 1.5mg. (unsuccessful 8 months ago as pmr pain came back in wrists so scooted back to...

After being on 2mg pred for 14 months I'm now trying to drop Dead Slow to 1.5mg....

diana1998

•29 days ago

4 Replies

have urgent rheumatology consultation next week

hi all my gp was good. She has upped pred again to 30mg if needed. My hands and ankles still in pain. Im very tired. Shes refered me to rhematologist. Next...

hi all my gp was good. She has upped pred again to 30mg if needed. My hands and...

JessJess21

•29 days ago

1 Reply

GCA query

After my recent posts and your very helpful answers, thank you, I have been reading FAQs and old posts and wondering about a couple of things. On waking I have...

After my recent posts and your very helpful answers, thank you, I have been read...

SanG55

•29 days ago

6 Replies

tapered recently from 3.5mg prednisone to 3. how long should i wait before going to 2.5?

This is going on year five. I've been between 3.5 and 2.5 mg over the past year. The last time I flared I went back up to 3.5 mg. At that level i have felt...

This is going on year five. I've been between 3.5 and 2.5 mg over the past year....

Paperroses

•30 days ago

7 Replies

side effects of tapering

I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a bit further recently. My 6mg was split into 5mg in the morning and 1mg at...

I reduced successfully from 7 to 6mg a year ago and have been trying to reduce a...

Jackie_boy

•30 days ago

10 Replies

root canal work while on zoledronic acid infusions

I have 6 monthly dental checkups, and for years all has been well. I had my first zoledronic acid infusion 28th December 2023. My last dental checkup was in...

I have 6 monthly dental checkups, and for years all has been well. I had my firs...

Angel_doll

•1 month ago

17 Replies

Cystitis

I started with Cystitis recently, after recovering from a cold a few weeks ago..and been diagnosed with umbilical hernia which I was advised by my my Gp not to...

I started with Cystitis recently, after recovering from a cold a few weeks ago.....

Bluemoon2023

•1 month ago

1 Reply

Zero Pred zone

I updated my Bio to show my DSNS taper over last 3 months down to zero. Along the way I was unsure about emerging wrist joint swelling and aches (not pain),...

I updated my Bio to show my DSNS taper over last 3 months down to zero. Along t...

Queenie1901

•1 month ago

28 Replies

struggling

I was diagnosed with PMR in 2020 and felt that I was tapering successfully until I had a full reverse shoulder replacement in February this year. i struggled...

I was diagnosed with PMR in 2020 and felt that I was tapering successfully until...

AnniesRyder5

•1 month ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

High Blood Pressure

friend running for PMR/GCA charity

From zero to back to square one.!

GCA flare?

UTI and extra prednisone?

Amlodipine and calcium

Update on swollen eye

Anxiety

Private rheumatologist uk

Aleve use for pain other than pmr

A Newby ..

Calling all GCA patients in the USA....a research study.

GCA and aneurysms

has anyone taken Kevzara for PMR

Adrenal insufficiency & cardiac issues update

Preparation for mammogram

Is this GCA

osteoarthritis & codeine

Hip Replacement Operation

Help please

Whoops..Slow DROP

Slow Droo

have urgent rheumatology consultation next week

GCA query

tapered recently from 3.5mg prednisone to 3. how long should i wait before going to 2.5?

side effects of tapering

root canal work while on zoledronic acid infusions

Cystitis

Zero Pred zone

struggling

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