I was diagnosed with PMR in 2020 and felt that I was tapering successfully until I had a full reverse shoulder replacement in February this year.
i struggled with an immense lethargy so my GP organised various tests. These showed I was anaemic which I couldn’t understand as I eat quite well . After a dodgy ECG I had a cardio MRI which came up with “subendocardial perfusion consistent with microvascular dysfunction “!
The nightmare didn’t stop there because I went to develop horrendous symptoms consistent with rheumatoid arthritis- the pain every morning is unbearable.
I went back to rheumatology who told me my symptoms were down to my age!
So just in the last 7 days my GP has referred me back to rheumatology as an urgent case , the outcome is that I am to be prescribed methotrexate later today having had a battery of tests with no contra indications.
I am not in a good place at the moment- I can’t get out out of bed in the morning without assistance- even brushing my hair first thing is a bridge too far.
All of this in just a matter of months.
The moral of this story is that I feel the MRI exacerbated my symptoms and could trigger similar in other people.
I’ve read up other people’s experience with methotrexate and it doesn’t appear to be the golden bullet does it?
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AnniesRyder5
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To be honest - my immediate question is why aren't they considering this as a relapse of PMR? Have they increased your dose of pred in the short term at least to relieve the pain. And what is consistent with RA and not with PMR?
I’ve found Methotrexate to be very subtle and it does take a few months to work. I don’t think it deals with acute phase pain so hope they give you something for that as well(ideally Pred if your heart allows).
As per PMRpros point I’m not sure how they can say it’s RA versus PMR and if you’re not able to brush your hair you’d probably need 15mg plus a day of Pred to settle that.
I wonder if there is a private GP practice anywhere near that might prescribe Pred? Not saying it would be the right thing, and I wouldn't want you to take any risks as your situation seems delicate. Just an idea.
As others have mentioned what you’ve described does sound like a PMR flare. As part of your bloodwork did they test for RF (rheumatoid factor)? I’ve been tested twice for it in the last 6 years, both times negative and no RA symptoms.
I have been on MTX for a couple of years as a steroid sparer and it is working along with pred, to address the inflammation for the PMR, but I doubt MTX alone would be effective.
Hoping you get some relief sooner than later, and perhaps seeing another rheumatologist for a second opinion is in order (if possible). Patients should not have to suffer with such debilitating symptoms. Sometimes we must advocate for our health.
Very much depends - MTX can have some really nasty adverse effects too. You cannot say that pred is more harmful than MTX as a blanket statement - it must be qualified with sometimes at least.
It was a cardiac MRI the purpose of which is to put your body/heart under stress - it was quite unpleasant but a knee MRi is totally different- please don’t worry you’ll be fine .
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PMR Tapering
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Feeling a bit down and lonely today so logged on here to connect with 'my (PMR) tribe'even though I should be doing other things
Is it PMR pain if only right side
hallo
