Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2024

Update on Tooth Extraction

Well!...... the remains of the tooth have gone and the whole experience has had some positives and some negatives!Let's start with negatives first:- -...

Well!...... the remains of the tooth have gone and the whole experience has had ...

Kendrew

•4 months ago

35 Replies

Recurring UTI’s - Diagnosis - Atrophic vaginitis

Referred to Urology after many recurring UTI’s. Appointment included many tests including a flexible cystoscopy, which was very uncomfortable as doctor had...

Referred to Urology after many recurring UTI’s. Appointment included many tests...

Baner

•4 months ago

12 Replies

The correct way to ween down on hydrocortisone? Advice please.

My last post was when I was just starting on 20mg of hydrocortisone changing from prednisolone and needed advice. Further down the line more advice needed...

My last post was when I was just starting on 20mg of hydrocortisone changing fro...

Suffolklady

•4 months ago

23 Replies

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Not a UTI

Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The...

Thinking I had picked up a UTI (strange feeling in bladder area and frequent fee...

Pusph

•4 months ago

19 Replies

Prednisone-2 week jump and back to 1-2mg over what you were taking.

Thank you for all of your suggestions. One more question. Should I taper in 1/2mg from my temporary 8mg or can I just drop from 8mg to 5mg. I was taking 3mg...

Thank you for all of your suggestions. One more question. Should I taper in 1/...

RaisinBran

•4 months ago

5 Replies

First Rheumatology Appointment

I had my first rheumatology appointment today and I think it well unless any of you think otherwise as I wasn’t sure what to expect. I was diagnosed with PMR...

I had my first rheumatology appointment today and I think it well unless any of ...

GreatGranny4

•4 months ago

10 Replies

PMR diagnosis

I am a 68 year old female who was diagnosed with PMR in December. I began on Prednisone 20 mg, and responded well, so my Prednisone was reduced to 15 mg for...

I am a 68 year old female who was diagnosed with PMR in December. I began on Pre...

Bummed24

•4 months ago

22 Replies

Aching face

Diagnosed with PMR in March 2023. Started on 15mg Prednisolone and got down to 12mg in July but not able to go down further. Pred relieved most of my symptoms...

Diagnosed with PMR in March 2023. Started on 15mg Prednisolone and got down to 1...

Lealass

•4 months ago

12 Replies

PREDNISOLONE and Methotrexate

hi, I’ve been on Pred for 15 months, gradually withdrawing. I got down to 3 mg and no further - a huge flair up. My rheumatologist has now suggested I take...

hi, I’ve been on Pred for 15 months, gradually withdrawing. I got down to 3 mg a...

JojoBorder

•4 months ago

10 Replies

Down to 5mg! - wondering about changing timing of dose?

Hi Everyone, I haven't posted lately as I have been steadily reducing using Dorset Lady's 5-week plan - at a .5mg rate since 7 - with a few pauses along the...

Hi Everyone, I haven't posted lately as I have been steadily reducing using Dor...

Hopingsail

•4 months ago

8 Replies

steroid injections

I had a steroid injection in my low back yesterday. This was to help nerve pain I have been having in my thigh. Today, could I use the steroid from this...

I had a steroid injection in my low back yesterday. This was to help nerve pain ...

Linny3

•4 months ago

17 Replies

GCA Neck pain

I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titrated down now 3mg. Have a great GP with whom I have a telephone appointment...

I was diagnosed with GCA in October 2022. Started on 60mg of Prednisolone & titr...

DHEH

•4 months ago

16 Replies

anyone afraid of actually coming off pred?

pmr for 5 years , GCA for 3. I’m down to 2mg pred reducing 0.25 every six weeks. Doing well but as I approach the time of actually taking my final dose, I...

pmr for 5 years , GCA for 3. I’m down to 2mg pred reducing 0.25 every six weeks...

Rosina1871

•4 months ago

49 Replies

Update

Since having my hip op the other hip has become very painful. I had an appointment with my consultant and told him i was in awful pain across the bottom of my...

Since having my hip op the other hip has become very painful. I had an appointme...

Viv54

•4 months ago

21 Replies

symptoms of B12 deficency

I continue to suffer from tingling feet and feeling tired also sweating for no good reason. Has anyone got suggestions of how to cope with this. I get...

I continue to suffer from tingling feet and feeling tired also sweating for no g...

Infob12quest

•4 months ago

4 Replies

Recurring infections?

Hi. I have been on steroids since last April - currently 10mg daily - for suspected GCA (tests were inconclusive so going on initial symptoms and response to...

Hi. I have been on steroids since last April - currently 10mg daily - for suspec...

Menno1525

•4 months ago

4 Replies

Tapering from 1mg

It is the 3rd time I've tried to taper from 1mg. Each time I get shoulder pains. But I don't know if this is because I'm also doing exercises. I don't seem to...

It is the 3rd time I've tried to taper from 1mg. Each time I get shoulder pains....

Blossom20

•4 months ago

9 Replies

going back to starting dose

hi- I’ve been on pred for more than 7 years. Had my first flare about 15 months in and since then I have never felt as well as the first year. Nevertheless...

hi- I’ve been on pred for more than 7 years. Had my first flare about 15 months ...

CarnationLily

•4 months ago

8 Replies

Prednisone Taper

This is the second time that I have jumped up from 3mg to 8mg because of severe leg and knee pain, shoulder etc and a lot of fatigue. This was recommended and...

This is the second time that I have jumped up from 3mg to 8mg because of severe ...

RaisinBran

•4 months ago

5 Replies

PS to Periodontal Abscess and Prednisone

Thanks to everyone who took the time to reply to my post about gum/tooth infections and prednisone. All the replies were helpful! I did manage to generate one...

Thanks to everyone who took the time to reply to my post about gum/tooth infecti...

Donna5658

•4 months ago

2 Replies

Uvitis when tapering prednisone

My eyes became very sore a month ago, on Christmas day actually. I had headaches around my eyes. They were very red and stingy. There was no discharge or...

My eyes became very sore a month ago, on Christmas day actually. I had headaches...

spacevoyager

•4 months ago

20 Replies

stopping Actemera

hello, I posted a few weeks ago about my problem getting my infusion early. I finally got them to agree to do it one day early having to leave two days late...

hello, I posted a few weeks ago about my problem getting my infusion early. I f...

Plains

•4 months ago

17 Replies

Tooth Extraction Enquiry

I'm having the remains of a broken tooth extracted in two days time and because its apparently going to be a bit tricky, I'm going to be sedated. On offer is,...

I'm having the remains of a broken tooth extracted in two days time and because ...

Kendrew

•4 months ago

29 Replies

PMR or Ankylosing Spondylitis

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This was after many telephone consultations and each time having been prescribed...

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This...

Freelabour

•4 months ago

4 Replies

PMR/GCA exercise

Hi just watched the exercise webinar, thank you so much, very informative......question please, how doe we either download, or obtain a hard copy of the...

Hi just watched the exercise webinar, thank you so much, very informative......q...

purplesprouting

•4 months ago

2 Replies

Exercise webinar today

I have just watched the webinar covering the launch of a booklet concerning exercise routines for PMR/GCA sufferers. Well done to all who contributed. It was...

I have just watched the webinar covering the launch of a booklet concerning exer...

jayemmemm

•4 months ago

9 Replies

Successful taper

After 4 years of yo yoing I have at last successfully tapered from 10mg to 9.5 mg to 9mg. I've been doing the extra slow taper and it is the only thing that...

After 4 years of yo yoing I have at last successfully tapered from 10mg to 9.5 m...

Kiwisufferer2019

•4 months ago

25 Replies

Am I on the right track?!

Was diagnosed in Nov 23 with pmr and put on 15mg until 22 dec when dr dropped me to 12mg. All was fine with no niggles. On 15 jan I reduced to 10mg and the old...

Was diagnosed in Nov 23 with pmr and put on 15mg until 22 dec when dr dropped me...

Timek

•4 months ago

27 Replies

Update on Earlier Posts about my Carpal Tunnel Syndrome

I had an appointment with the Orthopaedic team this morning. I had a very thorough examination of both wrists, hands and arms. Also an ongoing comprehensive...

I had an appointment with the Orthopaedic team this morning. I had a very thorou...

Bcol

•4 months ago

9 Replies

Extra steroids?

Having had my first cold since before the pandemic after Christmas, I went off the to the doctors about 10 days ago because although I felt I'd recovered I was...

Having had my first cold since before the pandemic after Christmas, I went off t...

ladygigger

•4 months ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2024

Update on Tooth Extraction

Recurring UTI’s - Diagnosis - Atrophic vaginitis

The correct way to ween down on hydrocortisone? Advice please.

Not a UTI

Prednisone-2 week jump and back to 1-2mg over what you were taking.

First Rheumatology Appointment

PMR diagnosis

Aching face

PREDNISOLONE and Methotrexate

Down to 5mg! - wondering about changing timing of dose?

steroid injections

GCA Neck pain

anyone afraid of actually coming off pred?

Update

symptoms of B12 deficency

Recurring infections?

Tapering from 1mg

going back to starting dose

Prednisone Taper

PS to Periodontal Abscess and Prednisone

Uvitis when tapering prednisone

stopping Actemera

Tooth Extraction Enquiry

PMR or Ankylosing Spondylitis

PMR/GCA exercise

Exercise webinar today

Successful taper

Am I on the right track?!

Update on Earlier Posts about my Carpal Tunnel Syndrome

Extra steroids?

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