Prednisone Taper: This is the second time that I... - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

Prednisone Taper

RaisinBran profile image
5 Replies

This is the second time that I have jumped up from 3mg to 8mg because of severe leg and knee pain, shoulder etc and a lot of fatigue. This was recommended and works beautifully. After two weeks I am suppose to drop back to 3mg but I feel so good, I don’t want to. What do my experts think? Thank you and I just love the support you give all of us!!!!

Written by
RaisinBran profile image
RaisinBran
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Bcol profile image
Bcol

Personally I'd drop back to three in a couple of steps, perhaps come down to 5.0mg and if things are OK then go back to 3.0mg. However you and your doctor, maybe need to decide if your original dose of 3.0mg was too low and the inflammation has got the upper hand again. If so, you may need to stay at the/a higher dose, one that takes away the pain/symptoms, for longer and then taper down as normal/usual from that higher dose.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Well think you probably need to drop down a bit, but maybe not as low as before.

Why not try 5mg? But then stay there rather than drop again. Give yourself a few weeks at 5mg and then decide with your doctors what to do from there.

As Bcol suggested perhaps 3mg was too low.

SnazzyD profile image
SnazzyD

Some of it, like the fatigue, might have been low adrenal function which isn’t apparent when you are on 8mg. To deal with that you need to reduce very slowly indeed and in 0.5mg chucks. From 8mg I was doing that over 6-8 weeks until I got to around 5mg and then I slowed down even more. Does the PMR schedule no harm either to go more slowly.

PMRpro profile image
PMRproAmbassador

I would say that 3mg is too low - it is letting inflammation build up and that's why you got the pain again. I'd suggest to not go lower than 5mg and see how you feel there,

RaisinBran profile image
RaisinBran in reply toPMRpro

Thank you Pro

Not what you're looking for?

You may also like...

Decreasing Prednisone, symptoms

I have now had GCA/PMR for two years and amazingly am now down to 3mg prednisone. I have been...
Stella3 profile image

Prednisone Taper

Hello. This is my first post. In late June I spent a week in the hospital with fatigue, muscle ache...
GeorgeZiser profile image

Just can't seem to taper past 3mg of Prednisone.

I am going on 2 1/2 years on Prednisone. I have tapered down from 15mg to below 1mg three times...
RaisinBran profile image

Prednisone Taper

Hi! I hope everyone is doing well!I am currently down to 5 mg and am having difficulty tapering...
Joy713 profile image

Taper Every Other Day?

Hello PMR - Chat group, I just had an interesting conversation with a friend, who is also an...
Jgyles profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.