After 4 years of yo yoing I have at last successfully tapered from 10mg to 9.5 mg to 9mg. I've been doing the extra slow taper and it is the only thing that has worked. I have a fracture of .y sacral bone and now Dr thinks I have a stress fracture of my pelvis. Having my 4th aclasta infusion next week. Have been in terrible pain in my groin and could hardly walk. If I hadn't had a walker I couldn't have stayed at home by myself. I am waiting for an appointment with the specialist who replaced my hip. Hope I don't have to wait too long. Hope this big storm coming is not going to impact any of you. Stay safe all of you.
Janis
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Kiwisufferer2019
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Thank you I hope they are too. It will be good to find out though and get whatever it is sorted! I've never had so many scans and ultrasounds in such a short time in my life. I was always taking Ted for scans and treatments. He certainly got good care even though our health system is in trouble. Janis
Yes, we suffer the same, swells and coinciding king tides and torrential rain on small land mass, has devastating consequences. They showed the next one coming on the news tonight for you. Queensland Australia are in the firing line again a cyclone in the coral sea, going to hit Townsville and the coast up there. We had huge rainfall and storms last January. Huge number of orchards and wineries covered in meters of silt. Thank goodness I don't live in an area that floods. Thanks for your reply, I'll let you know what the outcome is. Not allowed to drive because of the medication , so feeling pretty brassed off at the moment. It's horrible having to rely on other people.
Not being able to drive is a pain... but it's for yours and others safety - so has to be. Keep as cheerful as you can, at least it's summer so you can get in garden [hopefully]...
Unfortunately I can't get in the garden or do anything as I can hardly walk, too much pain, a I can do to get to the bathroom and kitchen. The constant pain is very tiring, so I wouldn't be driving anywhere anyway, even if I was allowed. Thank goodness I've got a walker! 🤭
I can get on to the deck, but it's been too hot to sit out there! 29 30 and the humidity very high. Today is better pleasant temperature. The more I walk, the more painfully it becomes.
Like you I am finding beating the region of 10 very difficult, have been thereabouts for over two years and its a pain, but your other problems sound horrendous, good luck with getting help soon .
good luck - hope it resolves. I had a fracture of pelvis and it was v v painful - BUT once healed there is no pain at all, unlike some bone fractures. all the best.
Poor Kiwi, I do feel for you in your pain. Prayers and loving thoughts 🙏 ❤️ I am in Tasmania so know all about small islands and weather patterns. I had Covid over Christmas and haven't felt well since. I upped my steroids as a last resort and I feel marginally better. Hope you will too.......
I wrote a long reply to you and it's disappeared. I love Tasmania, we went over about 6 years ago, loved the old buildings and went to the wall, what an amazing place, very clever man. Incredible carvings , so lifelike. The north is very Iike NewZealand. I'd love to go back. I had covid last Christmas 2022, my last Christmas with my husband, it'll be the first anniversary of his death next week 1st Feb. I miss him terribly, we were married 52 years and did nearly everything together.
The price of love is grief, the deeper the love the deeper the grief. I've got a lot to be thankful for, lovely family and wonderful memories of all the fun and happy times we had. There was a lot of laughter in our marriage, and things we did together, the fishing, a mutual love of growing things, especially veges and for Ted native trees, he was very good at growing natives from seed, and many people had some of his trees, especially the kids, 2 of them have land, so lots of Ted's trees planted on their places, very special for them. Thankyou Louisa for your compassion and understanding, it's been a very difficult year especially with these latest health problems, it was always me looking after Ted and taking him for all his scans and treatments, now I'm by myself it's very difficult. The kids are all busy with their jobs, I am lucky I have some lovely friends. Do hope you feel better soon.All the best Janis.🥰
So sorry Kiwi to hear of your loss. It makes things very much more difficult I know (my husband died 7 months ago) but at the same time we have a little more space to rethink our own lives and how to look after ourselves rather than our nearest and dearest, perhaps in surprising ways - thinking outside the box. Like you I have have been dancing around 10 mgs for a while - seem to have been stuck on 9.5 for 9 months! So congratulations on the 9mgs! I do hope the pain goes down and you find some solace in all the beauty around you.
Thank you Alchemy 8, you have suffered too, I was going to concentrate on my health the past few months, but have had one thing after another that has affected my mobility, so haven't been able to walk let alone exercise. Have you tried the very slow taper to help you get under10mg? It's the only that thing that worked for me, I wish I'd tried that a couple of years ago. Good luck. Remember the grieving process affects your health too. I hope you succeed, I'm on my way to 9mg, when the fractures heal I will be out walking and getting my fitness back. Take care
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