Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for November 2023

how quickly did you feel relief by taking prednisolone?

posted before about potential PMR. Painful bilateral shoulders, upper and lower back pain, neck pain, sacroiliac, thigh pain etc. raised. Inflammation markers...

posted before about potential PMR. Painful bilateral shoulders, upper and lower ...

Hephzi

•5 months ago

48 Replies

MXT and antibiotics

Has anyone had a tooth infection and been prescribed antibiotics while on MXT. Dentist advised that I ask GP which antibiotic is safe to take. GP can only...

Has anyone had a tooth infection and been prescribed antibiotics while on MXT. ...

jessiem

•5 months ago

10 Replies

titrating down Prednisolone

Titrating down your prednisolone becomes more problematic the lower the dose you are on so the reaction can be more profound, e.g if you are on 4mg for example...

Titrating down your prednisolone becomes more problematic the lower the dose you...

DHEH

•5 months ago

3 Replies

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reducing pred

over the 5years I have been fighting with pred I have come to the conclusion that I (you) know your body better than anyone and in my experience do what works...

over the 5years I have been fighting with pred I have come to the conclusion tha...

Ancestry1234

•5 months ago

5 Replies

GCA concern

Hello, first of all sorry for my bad english. My native language is the hungarian. It is my first post here but earlier i have learnt a lot here, and found a...

Hello, first of all sorry for my bad english. My native language is the hungaria...

aewin

•5 months ago

21 Replies

flu shot reaction with PMR

I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.

I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has b...

Joanecindy

•5 months ago

8 Replies

Macular Hole

Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this...

Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! Ho...

doubtfully

•5 months ago

7 Replies

what to do - advice please

afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I...

afternoon all, one of my very occasional posts for some advice basically I am ...

Billiebobdog

•5 months ago

7 Replies

Methotrexate concern

Hi I am seeing the Rheumatologist tomorrow who will ask me how I am feeling and what dose I am down to following yet another flare. I am down to 4 mg but...

Hi I am seeing the Rheumatologist tomorrow who will ask me how I am feeling and ...

gemmalaura

•5 months ago

24 Replies

truly scrumptious

My surgery are doing Blood tests to check for for diabetes, possibly because l am elderly, at 87. My results showed that l did not have diabetes but that l was...

My surgery are doing Blood tests to check for for diabetes, possibly because l a...

Trulyscrumpious

•5 months ago

54 Replies

sick day rules for labyrinthitis

Hi Once again looking for a little guidance please. I’m currently on 8mg a day using DSNS method of tapering and ok so far. However 3 weeks ago I got a...

Hi Once again looking for a little guidance please. I’m currently on 8mg a day ...

Mandyq

•5 months ago

3 Replies

tapering prednisone to fast

I was diagnosed with PMR in June 2023. I was treated with high dose prednisone as I had queried GCA but negative on biopsy. I have been tapering and every...

I was diagnosed with PMR in June 2023. I was treated with high dose prednisone ...

Elvied

•5 months ago

7 Replies

Post Rheumatology Appointment

Thank you to everyone who gave me advice for my Rheumatologist appointment yesterday......it was my first one and I thought I'd give an update on my experience...

Thank you to everyone who gave me advice for my Rheumatologist appointment yeste...

Paulx222

•5 months ago

24 Replies

All in my mind, apparently!!!

I’d be most interested in opinions on this. Had a telephone conversation with my Rheumy a few weeks ago, which was 9 months since the last one – in a year...

I’d be most interested in opinions on this. Had a telephone conversation with m...

Prof99

•5 months ago

16 Replies

Pref Mtx and antibotics

Last week I was emergency admitted to hospital with an unknown virus.I was in for 6 days I was sent home because it could not treated. What did worry me was I...

Last week I was emergency admitted to hospital with an unknown virus.I was in fo...

Doublef

•6 months ago

18 Replies

skin lesions that are not typical bruising from prednisone

Hi everyone, has anyone experienced skin lesions that begin by appearing to be some kind of an insect bite with tremendous itching and irritation and a lot of...

Hi everyone, has anyone experienced skin lesions that begin by appearing to be s...

Kt1943

•6 months ago

7 Replies

Achilles tendinitis and neuropathy in feet

Dear All I know PMR pro had Achilles T in the past and I have had a few minor bouts and now a big bout Driving a lot lately to help my husband who cannot...

Dear All I know PMR pro had Achilles T in the past and I have had a few minor ...

bluegirl7

•6 months ago

14 Replies

Update from Kiwi sufferer.

Well I have had a few bumps in the road along the way. After all the headaches, and ruling out GCA with a specialized artery scan by a different...

Well I have had a few bumps in the road along the way. After all the headaches, ...

Kiwisufferer2019

•6 months ago

36 Replies

I'm in pieces today.

finally been able to pen this. It's bad enough having PMR and GCA curtailing my cycling and fitness. to put down Rex was the final straw. For all who have...

finally been able to pen this. It's bad enough having PMR and GCA curtailing my ...

cycli

•6 months ago

81 Replies

advice

I was diagnosed in October put on 20 mg Prednisolone and after a few days pain was so much better second week gone and could walk the best in a long time went...

I was diagnosed in October put on 20 mg Prednisolone and after a few days pain w...

Omg3

•6 months ago

12 Replies

Pain in Right Hand

Having had lots of replies and helpful advice re my Adrenals questions, it has been pointed out to me that I am more likely to get advice on this hand problem...

Having had lots of replies and helpful advice re my Adrenals questions, it has b...

Golf-1

•6 months ago

16 Replies

GCA or TMJ

Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using the slow taper, I’m to go to 4 tomorrow. In the last 3 days I’ve had a little...

Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using...

Spartans1

•6 months ago

5 Replies

Can PMR without Prednisone lead to GCA?

I understand that taking Prednisone for PMR reduces the inflammation but does not change the trajectory or the PMR process. So is it not the case that the...

I understand that taking Prednisone for PMR reduces the inflammation but does no...

kp60

•6 months ago

15 Replies

Good PMR specialist in Bristol/WestonSM?

GP diagnosed me with PMR in May 2022. I had difficulties reducing below 18mg so she referred me to a consultant at Bristol Royal Infirmary. He is very kind and...

GP diagnosed me with PMR in May 2022. I had difficulties reducing below 18mg so ...

Lyra42

•6 months ago

11 Replies

Tension headaches with jaw tightness

Hi everyone, My 0.5 mg per week taper (recommended by my rheumy and endo), is working well for me. My muscle pain has finally gone away, indicating that it...

Hi everyone, My 0.5 mg per week taper (recommended by my rheumy and endo), is w...

sferios

•6 months ago

16 Replies

Query Re First Few Days: Prednisolone :Edited

Firstly, a huge thank you for everyone's support/responses to my introductory post - I am bowled over, obviously feeling a little sensitive because I spent...

Firstly, a huge thank you for everyone's support/responses to my introductory po...

Hopeful66

•6 months ago

17 Replies

niggles or warnings?

A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight...

A bit of context before my question. I was diagnosed with PMR in mid August by ...

Sibelius5

•6 months ago

7 Replies

PMR Update

Good morning everyone - sunny chilly day here in Devon - uplifting after all the grey and rain! So it’s now 7 weeks since I started Pred at 15mg and after...

Good morning everyone - sunny chilly day here in Devon - uplifting after all the...

Sungolfer

•6 months ago

19 Replies

Kick up the arse or not

Hi a question ..... am i being daft ? I was diagnosed with fm in 2011 bit of a shock but relief to get to the bottom of my pain . I use naproxen and...

Hi a question ..... am i being daft ? I was diagnosed with fm in 2011 bi...

loukh

•6 months ago

42 Replies

Operation

Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems...

Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I ...

Holycow2

•6 months ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

how quickly did you feel relief by taking prednisolone?

MXT and antibiotics

titrating down Prednisolone

reducing pred

GCA concern

flu shot reaction with PMR

Macular Hole

what to do - advice please

Methotrexate concern

truly scrumptious

sick day rules for labyrinthitis

tapering prednisone to fast

Post Rheumatology Appointment

All in my mind, apparently!!!

Pref Mtx and antibotics

skin lesions that are not typical bruising from prednisone

Achilles tendinitis and neuropathy in feet

Update from Kiwi sufferer.

I'm in pieces today.

advice

Pain in Right Hand

GCA or TMJ

Can PMR without Prednisone lead to GCA?

Good PMR specialist in Bristol/WestonSM?

Tension headaches with jaw tightness

Query Re First Few Days: Prednisolone :Edited

niggles or warnings?

PMR Update

Kick up the arse or not

Operation

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