Is this because of change of meds?: I am on 12.5 mg... - PMRGCAuk

PMRGCAuk

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Is this because of change of meds?

Claremont2023 profile image
10 Replies

I am on 12.5 mg Pred & due to go down to 10mg next week. It seems to me that whatever distance I walk my knees stiffen up later in the day. Does anyone else have this.

Also my meds were dropped too quickly so symptoms started coming back. Now I’ve been put up again for a couple of weeks my face is quite red in the morning. It fades during the day. I’m hoping it’s not a reaction. Also face is puffy which it wasn’t before meds messed with.

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Claremont2023 profile image
Claremont2023
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10 Replies
SheffieldJane profile image
SheffieldJane

I wouldn’t drop by so much, maybe 1.5 mgs but I’d give myself another week at least. I went through a phase of scarlet cheeks, it passed like all the other weird manifestations of Pred. Same with the puffy face. None of my doctors are particularly interested so I just carry on and the symptoms fade.

Claremont2023 profile image
Claremont2023 in reply to SheffieldJane

oh thank you, that’s reassuring!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Hi,

if your taper was too fast first time round, it’s likely to be this time as well..so as SheffieldJane says smaller drops…1mg or it you don’t have 1mg - cut a 2.5mg - so longer as it’s plain white uncoated variety.

Maybe have a read of this as you are new -healthunlocked.com/pmrgcauk...

Puffy face is down yo steroids unfortunately- and if your knees stiffen up perhaps your dose is not quite enough…

PMRpro profile image
PMRproAmbassador

I've been wondering about this - I get stiffer on days I walk more ...

Pixix profile image
Pixix

yes, stiff knees after longer walks, but mine is osteoarthritis I believe! Round moon face is common with pred, & yes, I get the red face & also a red rash under my chin! S x

piglette profile image
piglette

I have found recently that virtually all my friends are complaining about stiff knees and a lot of them are younger than you are and don’t have PMR! I have decided it is part of life.

Claremont2023 profile image
Claremont2023 in reply to piglette

Stiff knees arrived about 4 weeks into PMR, no trouble before that. One knee is slowly returning to normal so far.

piglette profile image
piglette in reply to Claremont2023

That sounds like good news. I get PRP injections for my knee. I had the last one about eighteen months ago and my knee still seems OK.

Claremont2023 profile image
Claremont2023 in reply to piglette

hopefully my other knee will catch up!

piglette profile image
piglette in reply to Claremont2023

That would be good. My brother in law says he is waiting for stem cells to fix his knee.

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