My cup runneth over

[Flivoless]

Perhaps that should read bucket. Been feeling pretty smug getting from 25mg to 5 over two years without pain - PMR pain anyway - and without a flare so I've been thinking that I might just have got this wretched disease licked but - isn't there always a but? - my swagger has diminished big time. Went down to 4.5mg three weeks ago and at two weeks in I got a nasty pain in right shoulder, which I put down to an old injury, but then the left also started giving me gyp swiftly followed by painful legs when getting up from a chair and very painful hands in the mornings. Been up 10mg for two days and all pain gone. I'll give it another couple of days at 10 then go back down to 6 then off we go again with the, very slow, taper. He ho.

[SheffieldJane]

I can relate to your pattern of events as a fellow “stuck at 5 “. I was expecting adrenal symptom and I am fatigued, but sharp PMR like pains are puzzling me. Half a mg drops at 4 week intervals might do it, when my current pains settle. Good luck to you!

[Flivoless in reply to SheffieldJane]

I wish you all the best.

[Sharitone]

Even so, I think you have every reason to feel smug about 25-5mg in just 2 years.🙂

[Trainy]

That is pretty much what has happened to me. Got down to 3 from 15 over the year. Also got to feeling smug. Doctor pressing me to get off pred. I mg drop per month for 3 months. Now can hardly move after dropping to 2, especially my hands. Like starting all over again.

[PMRpro Ambassador in reply to Trainy]

You shouldn't need to go to the beginning! Add 5mg for a week and go back to where you were OK. And don't push to get lower!

[Trainy in reply to PMRpro]

Thanks I will do that. Been searching the cupboard for 5mg's because can't now get a prescription until Tuesday at earliest. Result, found enough until then.

[whitefishbay]

I am never smug about health now...you never know what will come next. Did a gentle outdoor class with some other oldies with my physio neighbour. Nothing too strenuous with lots of stretching. The next day I could hardly walk. My feet felt like I had broken them. Better now after feet up and icing but really....I have to keep being able to walk. Life is funny...not funny.