Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for December 2022

Sudden neck cramps!

I've had PMR for 18 MTHS and down to 2.5 mg Pred daily, about to reduce to 2mg. But getting increasing cramps in neck , from left shoulder to head! They wear...

I've had PMR for 18 MTHS and down to 2.5 mg Pred daily, about to reduce to 2mg. ...

Allum

•1 year ago

22 Replies

New Year Posts: from 4pm on 31st Dec to end of 1st Jan 2023.

Once again we'll be opening up the forum for people to share personal messages of well wishes for the new year from: 4pm on 31st December through to end of...

Once again we'll be opening up the forum for people to share personal messages o...

Fran_Benson

Partner•1 year ago

2 Replies

Flare or Adrenals

Hi, I’ve been on 6 mg for a bout three months now, didn’t want to reduce over the holidays. I have pain in my shoulders and hips when I get up, this gets...

Hi, I’ve been on 6 mg for a bout three months now, didn’t want to reduce over t...

Carathedog

•1 year ago

7 Replies

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Kirsty and Desert Island Discs and Hilary Mantell

Radio 4 this morning...Kirsty talking about chronic pain and followed by Hilary M on steroid treatment she had.. Worth a listen to both. HM said she finally...

Radio 4 this morning...Kirsty talking about chronic pain and followed by Hilary ...

Temoral

•1 year ago

5 Replies

Newly diagnosed

Hello everyone My symptoms became noticeable about 2 months ago (although I think they had been around in a mild form for much longer but I passed them off as...

Hello everyone My symptoms became noticeable about 2 months ago (although I thin...

SNOWMAN546

•1 year ago

12 Replies

Tapering and mood changes

I'm tapering from 5mg the ds method. I'm now toggling between 4 - 4 1/2 and have noticed lately that I am having anxiety attacks. I have had this problem in...

I'm tapering from 5mg the ds method. I'm now toggling between 4 - 4 1/2 and have...

christi48

•1 year ago

5 Replies

forgot to take prednisone this morning, I think.

I'm on 30 mg prednisone for PMR/GCA and I am pretty sure I forgot this morning...at 6AM...it is now 7PM and don't know if I should take it now or wait until...

I'm on 30 mg prednisone for PMR/GCA and I am pretty sure I forgot this morning.....

Joseph14612

•1 year ago

6 Replies

Has anyone any information about pseudo dementia as a result of GCA. Could my mum’s rapid onset dementia symptoms be related to her GCA?

Has anyone experienced mental health problems due to GCA and can higher doses of steroids help?

Has anyone experienced mental health problems due to GCA and can higher doses of...

Daughter-Hayley

•1 year ago

19 Replies

covid positive on 40 mg of pred

Good afternoon, I hope you are all well and had a good Xmas. I have tested positive for covid this morning and I am on 40 mg of pred. Do I need to adjust...

Good afternoon, I hope you are all well and had a good Xmas. I have tested pos...

Jlml

•1 year ago

17 Replies

fatigue overwhelming

84 years old pmr and gca for six years most of time suffering from severe fatigue have to go to bed every afternoon for two to three hours. Also very weak and...

84 years old pmr and gca for six years most of time suffering from severe fatigu...

astley123

•1 year ago

9 Replies

Knee pain leading to sciatica - pred reduction due

Slowly, over just a few weeks, my left knee has become more and more painful on the inner side with stabbing pain from below the kneecap and tightening pain...

Slowly, over just a few weeks, my left knee has become more and more painful on ...

Miserere

•1 year ago

19 Replies

private health!

As with fellow PMR sufferers shoulder pain has been a common factor I started shoulder repair about 20 years ago with steroid injections and rotator cuff...

As with fellow PMR sufferers shoulder pain has been a common factor I started ...

AnniesRyder5

•1 year ago

2 Replies

How to know when PR has burned out

I'll be down to 2 mg prednisilone come the New Year - so how will I know when my Palindromic Rheumatism has ended? Happy New Year to all the forum members...

I'll be down to 2 mg prednisilone come the New Year - so how will I know when my...

Theziggy

•1 year ago

18 Replies

PMR Erro update

thank you all for all your kind words. I have let it go now. The rant I was able to have on this forum helps through all our stresses. Happy new Year...

thank you all for all your kind words. I have let it go now. The rant I was ab...

Suffererc

•1 year ago

12 Replies

Return of pain . Needing advice .

Hello folks ,previously I had asked for advice about not being able to keep down my medication due to being sick over a couple of days. This was my third day...

Hello folks ,previously I had asked for advice about not being able to keep dow...

Staffieblue

•1 year ago

10 Replies

waiting for appointment

morning everyone,I’m still waiting for my appointment to see a rheumatologists can any of you tell me how long before you got to see one thanks ( not sure if...

morning everyone,I’m still waiting for my appointment to see a rheumatologists c...

Shaza123

•1 year ago

8 Replies

Return of PMR Symptoms While Doing A Slow Taper

I was diagnosed with PMR in August of this year after several months of increasing musculoskeletal pain in shoulders, neck, thighs and butt. Just before I was...

I was diagnosed with PMR in August of this year after several months of increasi...

Donna5658

•1 year ago

34 Replies

STATUS UPDATE

It has been a couple months now off prednisone per doctors recommendations. As a reminder, the Rheumy believed I did not have PMR despite the elevation of...

It has been a couple months now off prednisone per doctors recommendations. As a...

SMH4CRNA

•1 year ago

15 Replies

Orthopedic Doctor Appointment - Yahoo!

I have just received an appointment for an Ortho Doctor!! My GP has been really chasing for this for an age :) I have pain in differing areas at differing...

I have just received an appointment for an Ortho Doctor!! My GP has been really...

discoballs

•1 year ago

5 Replies

PMR error

I have just come back from my sons home . We spent 4 days with him and his family. Yesterday he decided to lecture me on whether I really knew what I was...

I have just come back from my sons home . We spent 4 days with him and his fami...

Suffererc

•1 year ago

116 Replies

Missing a few days of prednisolone, brain fog

Help...I didn't realise until this morning that I was on the last box ,I convinced myself I got one other. Ive tried to call the GP surgery to speak to the...

Help...I didn't realise until this morning that I was on the last box ,I convinc...

Newbypoly

•1 year ago

17 Replies

Seasons Greetings

Thanks to everyone for virtual companionship and advice!

HeronNS

•1 year ago

13 Replies

Season's greetings and apologies

I just want to wish everyone wealth, health and happiness for the coming year. I have not been on this site much over the past few months. My PMR has been in...

I just want to wish everyone wealth, health and happiness for the coming year. I...

Chihuahua1

•1 year ago

2 Replies

Any connections between bibasilar atelectasis, autoimmune diseases, Covid infections and/or Covid vaccinations?

Hello everyone, just wondered if anyone has any info on the above? I had a CT scan in November of the abdomen to check out my bladder and kidneys and it picked...

Hello everyone, just wondered if anyone has any info on the above? I had a CT sc...

Horsewhisper

•1 year ago

6 Replies

greetings to all my dear friends

oh what fun I have had. 5 nights on the Christmas Markets Cruise with daughter, husband and our two friends. Upgraded suite to share with a a coughing husband...

oh what fun I have had. 5 nights on the Christmas Markets Cruise with daughter, ...

EdithWales

•1 year ago

32 Replies

Low mood/ tears

Hi Everyone. I have reduced to 5.5, heading slowly on DSNS method, but am experiencing a spell of low mood, and feeling teary at the slightest thing. Have...

Hi Everyone. I have reduced to 5.5, heading slowly on DSNS method, but am exper...

Temoral

•1 year ago

25 Replies

Is this a flare? Pain on only one side.

I have had PMR for 3 years. I recently got down to 7 mg a day and was doing great. (I am also on Actemra.) About a month ago, the pain started again in both...

I have had PMR for 3 years. I recently got down to 7 mg a day and was doing grea...

emmamom

•1 year ago

9 Replies

Blurred vision - I'm in A&E!

I discovered this morning that I have slightly blurred vision in my left eye. I overslept after a hectic day yesterday - I did Xmas for hubbie's family. So I...

I discovered this morning that I have slightly blurred vision in my left eye. I ...

Broseley

•1 year ago

198 Replies

13 days on +5mg but still not completely sorted. Link to covid jab? Also dex scan disappointing.

After chat on here with PMRpro and others I added 5mg. I had gone through an awful fatigue etc very slow drop from 6.5mg to 6mg. It took me about 5 weeks and...

After chat on here with PMRpro and others I added 5mg. I had gone through an awf...

Ebiker

•1 year ago

32 Replies

cortico steroid injections

Hi, I’m just wondering why steroid injections aren’t used in PMR? Is it because a high enough dose can’t be achieved? I have way less side effects with a...

Hi, I’m just wondering why steroid injections aren’t used in PMR? Is it becau...

Bramble2000

•1 year ago

46 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Sudden neck cramps!

New Year Posts: from 4pm on 31st Dec to end of 1st Jan 2023.

Flare or Adrenals

Kirsty and Desert Island Discs and Hilary Mantell

Newly diagnosed

Tapering and mood changes

forgot to take prednisone this morning, I think.

Has anyone any information about pseudo dementia as a result of GCA. Could my mum’s rapid onset dementia symptoms be related to her GCA?

covid positive on 40 mg of pred

fatigue overwhelming

Knee pain leading to sciatica - pred reduction due

private health!

How to know when PR has burned out

PMR Erro update

Return of pain . Needing advice .

waiting for appointment

Return of PMR Symptoms While Doing A Slow Taper

STATUS UPDATE

Orthopedic Doctor Appointment - Yahoo!

PMR error

Missing a few days of prednisolone, brain fog

Seasons Greetings

Season's greetings and apologies

Any connections between bibasilar atelectasis, autoimmune diseases, Covid infections and/or Covid vaccinations?

greetings to all my dear friends

Low mood/ tears

Is this a flare? Pain on only one side.

Blurred vision - I'm in A&E!

13 days on +5mg but still not completely sorted. Link to covid jab? Also dex scan disappointing.

cortico steroid injections

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